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“I’m part of a team rather than a one man band”: Alan, our Campaigner of the Year 2017

18 Aug 2017 | georgemarshall
Alan Beevers was named Campaigner of the Year 2017 at our MS Awards for his decade of incredible local campaigning. We spoke to him to find out how he’s helping people in Moray, Scotland. Alan was diagnosed with MS in 2003 and quickly became involved with the MS Society: “Not long after being diagnosed, I met the MS community in Moray, and I became hopeful about my future.” Ever since then, he’s dedicated himself to improving services for people with...

Behind the headlines: does being in the army increase your risk of dying from MS?

17 Aug 2017 | David Schley
marching peppers A new study suggests that being in the army may increase your risk of dying from complications to do with MS. Researchers at Southampton Hospital looked at the death records of men in England and Wales. They found deaths from MS were much higher among people whose last recorded job was in the armed forces. What causes MS? Although the study found a clear difference in death rates, it didn’t look at risk factors for developing MS. We know your...

HSCT insights: dealing with isolation

03 Aug 2017 | hmaunder
Man watching TV What’s it like having HSCT? Three people who’ve had the treatment share their experiences. People having HSCT typically spend about a month in isolation following chemotherapy. This is to keep them safe while their immune system rebuilds. In this blog, we look at what helped them cope with being apart from friends and family. Mark had the treatment on the NHS in the UK, while Kate and Darren...

My tips for having an MRI scan

01 Aug 2017 | Nicola Andrews
Nicola I was diagnosed with MS in 2014 and MRI scans have become routine. They helped with my diagnosis, and since then I’ve had two more (two brain and two spinal). Before my first ever MRI scan all I could think about was a dark tunnel and claustrophobia. I had fears of being unable to breathe and move. To say I was worried about it would be an understatement. In all honesty, it wasn’t at all as bad as I...

5 myths about cannabis and MS

27 Jul 2017 | Hannah Paull
There’s mounting evidence to show that cannabis could help pain and muscle spasms for people with MS. But with tonnes of information swirling around the internet, it’s hard to be sure what’s true and what’s not. We dived into the details to bust 5 common myths about cannabis and MS: 1. ‘Cannabis for medicinal use’ means any kind of cannabis This can be...

School’s out: tips for summer fun from an MS mummy

24 Jul 2017 | Frances Whinder
Joanne Chapman lives with MS – and a toddler. These are her tips for enjoying the summer holidays with your little ones Keep cool I love the sun, but summer can feel like a double-edged sword as heat and humidity bring out my MS. Keeping cool is essential to look after little man. So I avoid being out in the midday sun, find shade, and wear lightweight, breathable layers with a hat. Water cools. Little man'...

What it’s like to be diagnosed with MS at 16 – part three

21 Jul 2017 | Carla Callaghan
MS Award winner and student Zoe writes about life after an MS diagnosis in the third part of her blog series.  After a rollercoaster few months, I began a phased return to school. It was undoubtedly difficult and strange. Occasionally I had to use my walking stick, which only made star appearances as I didn’t want to be known as ‘The Girl with MS’. If could choose it would be something way cooler like ‘The Girl with...

How I became a para athlete

21 Jul 2017 | Hannah Paull
Amar-Mazigh Aichoun was diagnosed with MS at 13. Now he's a para athlete. He tells us about racing, his training and how MS affects him. When I was 13, my body started to go numb and my vision got blurry. I didn’t pay much attention to it, because as a kid these things don’t bother you. The GP told me I had a throat infection and gave me some antibiotics. The next day my symptoms got lots worse and my mum took me to A&E. I had a stroke and was...

Help tell NHS England about your experience of MS treatment and care

20 Jul 2017 | Babs Guthrie
Glass sided hospital link corridor We know that people living with MS access the different treatments and therapies they need in a variety of locations. You might need to see a neurologist, an MS nurse, a physio or a counsellor as part of your care. You might see them in a specialist hospital, a local hospital or in your own home. In some...

Top tips for planning a short break

18 Jul 2017 | Frances Whinder
Sunshine got you in the holiday mood? We can all benefit from getting away for a few days of rest and relaxation. But sometimes our MS symptoms can make us worry about how we’ll manage away from home. With a little planning, a short break can be a lovely escape. These are our top tips for a hassle-free getaway. 1. Choose your location Where do you want to go? Do you want to take a break in the UK, or further afield? There...

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