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4 tips for autumn half term family fun

20 Oct 2017 | hmaunder
Autumn leaves Looking for autumn half term activities to do with your children? Read on! Four mums and dads living with MS share some great ideas for indoor and outdoor fun. Chloe and her kids get creative in the kitchen...

MS Active Together: how I got back in the saddle

17 Oct 2017 | Rachael McIntyre
Rachael on a cycling trip Ever since I was little, I’ve always loved to cycle. I remember getting my first ‘grown up’ bike when I was 10 for Christmas. I loved that green bike! When I graduated from university, I bought myself a road bike and did some bike touring on Orkney and in Sutherland. Cycling was something I loved to do. So, as you can imagine, when I had a bad relapse and it affected my ability to...

‘The financial assessment was really stressful’

13 Oct 2017 | Babs Guthrie
Photo of Edith in her wheelchair sitting at a kitchen table looking to camera Edith is 30, she was diagnosed with relapsing MS aged 16. She works full-time and receives social care for everyday essential needs. But getting the care she needs wasn't easy. “My MS started worsening about five years ago. I moved back in with my parents and they became my full time carers, helping me...

'I want a say in my care'

13 Oct 2017 | Babs Guthrie
Pam is 50, lives in Liverpool and has primary progressive MS. “Five years ago I had an operation and was sent home with a care package. I have had a care package ever since. I have two carers each morning and evening now. Carers are coming later and later I work four days a week in an accounts department for a hotel. The carers used to be very good about coming on time in the mornings...

‘I just struggled alone’

13 Oct 2017 | Babs Guthrie
Photo of David in his garden looking directly to camera David  was diagnosed with MS in 1996. He used to have a good social care package, but had to contribute a lot more after being financially reassessed in 2010. He put a stop to his care because of the stress caused by the financial burden.  “I remember being discharged from hospital and a social worker visiting me the...

‘My husband is at breaking point’

13 Oct 2017 | Babs Guthrie
Angela is 35 and lives with her husband and two daughters. She is a mother of two who was diagnosed with RRMS in 2015. This is her story. “Day to day the biggest challenge is my energy levels, which are very low. I’m mobile but I fall from time to time. I really need support with the domestic tasks, like laundry and cleaning. I don't have the energy to fight for...

Visiting the Rwandan mountain gorillas – in my wheelchair!

13 Oct 2017 | Frances Whinder
A baby gorilla investigates Susie's wheelchair When MS started to affect her mobility, Susie thought she’d have to give up travelling. Then other wheelchair users showed her what was possible… I love to travel. I’ve always dreamed of seeing the mountain gorillas in Rwanda. But when MS started to affect my mobility, I doubted that I’d ever be able to do it. When I started using a wheelchair in 2012, I thought it...

Cannabis and MS in Parliament

10 Oct 2017 | Jonathan Blades
On Tuesday, the House of Commons debated a Private Member’s Bill to legalise the prescription of cannabis for medicinal purposes. Paul Flynn, MP for Newport, introduced the Private Member’s Bill, (sometimes known as a Ten Minute Bill). During the debate, he highlighted the experiences of people with MS who've taken cannabis to manage their symptoms. People like the late Elizabeth...

How could exercise boost your mental health?

10 Oct 2017 | georgemarshall
However your MS affects you, a little gentle exercise can have a big impact on your mental health and wellbeing. Here are four ways exercising can help keep your mind healthy. 1. Lift your mood There's a scientific reason why people often feel better during and after exercise. Being physically active can encourage your brain to release ‘feel good’ chemicals called endorphins that help lift your mood. Studies...

Me and my MS Nurse: Karen and Julie

04 Oct 2017 | Frances Whinder
Karen who lives with MS, at an appointment with her MS nurse, Julie Keeping on top of your MS treatment can be challenging. But for many, an MS nurse makes all the difference. Find out why Karen thinks of Julie, her MS nurse, as a ‘safety net’. I’ve been seeing Julie for several years now – ever since I moved to Leeds. I see her once every six months and we talk about how my...

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