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Invisible symptoms: twitches and spasms

27 Jun 2017 | Annthepoet
Ann It’s early evening, I’m relaxing watching a bit of TV or reading with my feet up. That’s when it starts: my toe, usually my big toe on my left foot, slowly starts to point towards the ceiling. It aches, I push my toe back down, this repeats for an hour or so. Sometimes it leads to a massive leg spasm, sometimes the toes just twitches away for ages. It’s usually worse in bed, my leg kicks out without me controlling it. It’s not every night, just now...

Walking the West Highland Way to help stop MS

26 Jun 2017 | hmaunder
Amazing MS Society Scotland fundraisers doing the West Highland Way This spring MS Superstars Bernadette and Timmy walked the 96-mile West Highland Way to raise funds to help stop MS. Bernadette shares her day-by-day diary of their walk. I’ve often driven past West Highland Way walkers on my drive from Glasgow, to visit my dad in the village of Archarcle where I grew up. In our rural part of the world...

World Continence Week: getting help for my wee problem

22 Jun 2017 | FallingFiasco
Karine Bladder problems are common in MS. Karine shares her experience and how she got help. One of the latest developments in my MS journey is not being able to empty my bladder properly (urine retention). We Brits find it difficult to talk openly about such matters, so I thought I would share my story to help other people feel at ease. One night last November, I got ready for bed following my usual routine: I went to...

#MyMSStory: My MS-iversary

21 Jun 2017 | Danielle Walker
Last month, it was my anniversary. It’s been 16 years since I was diagnosed with MS. It’s hardly an occasion to celebrate, but at this time of the year, I do find myself reflecting on how things have changed since then. In 2001, Tony Blair was Prime Minister and Iain Duncan Smith was leader of the opposition. The Office was the talk of offices throughout the land, and Coldplay’s Parachutes won the BRIT for Best British Album. Mobile phones...

Hot tips for keeping cool in the heat

20 Jun 2017 | Hannah Paull
Dust off your sandals and crack out the ice lollies – summer has finally arrived in the UK. While the hot weather can brighten up our days, it can also make it harder to manage MS. So we got our MS community on the case. We asked you how you stay cool during the heat wave. Here’s what you said: Take it easy with an ice lolly Stay cool in the shade Make use of your hot water bottle The sun has got its hat on – and so should you A ball cap or big...

Handling the heat - latest research

19 Jun 2017 | Katie Roberts
Over 60% of people with MS say they experience heat sensitivity. We caught up with heat sensitivity scientist Dr Davide Filingeri to find out how he’s tackling this invisible symptom. What is heat sensitivity? Many people with MS find that their symptoms get worse in the heat. This can be triggered by hot baths, the sun, or exercise. The effects of heat are temporary, but heat sensitivity can be extremely unpleasant. It can have a massive impact on day-...

Young carer Thomas looks after his mum

16 Jun 2017 | Babs Guthrie
Photo shows young carer Thomas looking to camera at the MS Society Awards 2017 Thomas has been helping his mum since he was six. We recognised his amazing achievements as a young carer at the MS Awards this year. This is his story. A visit from the MS Nurse I realised my mum had MS when I was about nine years old. The MS nurse came round to the house to help explain it to me – we’re really close and I...

“Like Coronation Street’s Johnny, people have put my MS symptoms down to being drunk.”

14 Jun 2017 | hmaunder
Bruce Bruce Barrett was diagnosed with MS aged 31. He hopes the new storyline in Coronation Street, which sees Johnny Connor diagnosed with the condition, will help people understand MS. When I first saw Johnny stumble and have various difficulties I said to my wife Amy: “he’s got MS”. The first signs of my MS were my walking getting slower and slower, like I was walking through treacle. Then my feet would go...

Getting the work-life balance right – my life as a working carer

13 Jun 2017 | Hannah Paull
In 1998, my then girlfriend Portia was diagnosed with relapsing MS. We knew immediately what we wanted to do – we wanted to get married. So soon after, Portia became my wife and our life together began. At the time, we could easily manage. Three children came along and we could enjoy life with them without too much trouble. Then our lives changed again in 2014. Portia had an epileptic seizure one night at the dinner table. She was rushed into intensive care and spent three weeks in hospital. To make matters worse, she caught a superbug and pneumonia while in hospital. The whole...

What could the new Conservative Government mean for people with MS?

09 Jun 2017 | Michelle Mitchell
It seems like yesterday the surprise general election was called. The six weeks of campaigning have been a blur and I’ve followed along with interest every step of the way. And last night I couldn’t help but stay up to watch the votes pour in. While we’re not yet certain who will be living at Number 10, the Conservatives are still set to form the Government....

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