Blogs

Latest blogs

"I don’t just read an MS neurology textbook, I read my dad"

17 Nov 2017 | Ghazia Ahmed
Research Network member Ghazia in a cafe I'm Ghazia, I’m 23 years old and live in London. I am a fourth year medical student from St George's, University of London. I’ve been aware of MS from a young age, as I watched it gradually affect my father. At first, I was too young to understand why he couldn’t take part in parent races on Sports Day or why he said his arms felt funny sometimes.  As my love for...

One father on why he left a legacy to the MS Society

17 Nov 2017 | hmaunder
Father and daughter Mike tells us why pride and hope for his daughter inspired him to leave a legacy to help stop MS. Family usually come first when people think about their Wills. It just feels to my wife and me that people with MS are now part of our wider family. We started making monthly donations to MS Society Scotland when our daughter was diagnosed with MS. We’re now retired, not wealthy, but lucky enough...

Why I’m researching – and hiking – to stop MS

16 Nov 2017 | Frances Whinder
Dr Julia Edgar and friends at the 10in10 challenge This year, one of our researchers, Dr Julia Edgar, took on the 10in10 challenge – hiking up 10 peaks in the Lake District in 10 hours. Julia explains what inspired her to get involved.  Growing up in Scotland, where MS affects around one in 500 people, it was the first neurological condition I was aware of. A family friend had what I now know to be secondary progressive MS....

Me and My MS nurse: Emma and Elaine

15 Nov 2017 | Frances Whinder
Emma and her MS nurse Elaine Since Emma moved to the Isle of Wight, she’s been grateful to have MS nurse Elaine looking out for her.  Emma on Elaine When did you first meet Elaine? When I moved to the Isle of Wight at the end of 2013. Did you have any concerns about the appointment? No, I was just happy and thankful that I’d have someone looking out for my welfare. I’m always...

We can't afford not to make cannabis available for medical use

15 Nov 2017 | Babs Guthrie
Photo shows researcher holding cannabis plant Steve is 55, he was diagnosed with MS in 1987. This is his story. "Imagine running a marathon while sharp pain darts up and down your legs. This is what multiple sclerosis feel like for me. When muscle spasticity kicks in my legs just twist and turn and bend back on themselves and it’s excruciatingly painful. Cannabis based...

The nightmare is finding the right care

14 Nov 2017 | Babs Guthrie
Photo shows Mike and Janet sitting down smiling to camera. Janet clasps Mike's arm. Janet looks after her husband Mike who has progressive MS. They rely on respite care for any kind of break - but it's not easy to find care that works. “Mike was diagnosed with primary progressive MS in 2001. We managed without any social care to start with and then as Mike deteriorated we tried...

'Our quality of life went out the window'

14 Nov 2017 | Babs Guthrie
Photo shows Paul in a red jumper sitting reading a document with Lesley who wears a blue top Paul is 72 and the primary carer for his wife Lesley who has progressive MS. They tried paid care three years ago but it wasn't a good experience. So now Paul looks after Lesley's needs alone. "Lesley is quadriplegic and I am her full time carer. We had paid carers about three years ago, but it was such a horrible...

7 ways to be kind to yourself

10 Nov 2017 | Babs Guthrie
Photo shows three knitted donkeys with cut out hearts and a clothes peg It's World Kindness Day today! This has got me and Dizzy thinking about the importance of showing kindness to yourself. This is important for everyone, but particularly when you're living with the difficulties of coping with a chronic illness like multiple sclerosis. Dizzy has taken it upon herself to come up with 7 different ways that we can...

Why we need to keep challenging the government on PIP

09 Nov 2017 | Frances Whinder
MS Society Northern Ireland Council member Simon This week, our Northern Ireland Council member, Simon Matchett, put the spotlight on what needs to change with Personal Independence Payment (PIP).  PIP is a benefit that helps cover the extra costs you can face if you need help doing everyday tasks or find it difficult to get around. It’s replacing Disability Living Allowance (DLA), and is being rolled out across the UK....

Have your say on disability benefit assessments

01 Nov 2017 | Babs Guthrie
Photo shows man in mobility scooter outside Westminster holding a sign that says Make welfare make sense Are disability benefit assessments working? This is your chance to tell MPs what you think. Inquiry into benefits The Work and Pensions Select Committee at Westminster is running an inquiry into Personal Independence Payment (PIP) and Employment and Support Allowance (ESA) assessments. It wants to know if...

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