What Pride and MS mean to me
I was diagnosed with primary progressive MS 12 years ago. While it wasn’t really a surprise it was still life changing. My wife Sarah and I have just recently celebrated our twenty second anniversary, so we have been through it all together.
For the first time the MS Society is marching at Edinburgh Pride
We heard that the MS Society were marching at Edinburgh Pride this year and had to be a part of it! It’s really special to take part as it’s representation of both the LGBTQIA+ and MS communities. It highlights that the MS Society can be approached safely for information and support by people who are LGBTQIA+
My wife and I have marched at Edinburgh Pride in the past, it’s full of energy and positivity!
Finding a safe, kind space
My favourite memory of marching in Edinburgh Pride is slightly unconventional. I was struggling with my mental health at the time and after the march I had a panic attack. In our haste to find somewhere quiet we entered a light peaceful room where I had space to breathe. This peaceful room was a safe space for the trans community. While giving my wife and I space, the people there cleared a space for me, someone brought me a cold glass of water and gave me time to recover. I will always be grateful for the kindness shown in this room.
Side by side with people who understand
We were honoured to march alongside our friends with the MS Society the first year they took part in London Pride. It was special for us as we were able to connect with and stand side-by-side with people that understood what Pride and MS meant to us.
London Pride was full of colour and people from all walks of life. The streets were lined with people all cheering, it genuinely is a celebration.”
My favourite memory is rolling in my power chair through the streets of London and we came to a commentator who highlighted the importance of the MS Society. Colour was all around me and the air was filled with music. Meanwhile I saw a woman holding a young man tightly with the sign offering’ free mum hugs’ to those who were no longer in touch with their families.
Colour, music...and tricky cobbles
Sarah and I are looking forward to joining the MS community and the LGBTQIA+ community as we march through the historic streets of Edinburgh. We’ll be celebrating our diversity and standing for our rights. We’re looking forward to the colour, to the music and to being part of this fun day. We can raise awareness of MS and the MS Society within the queer community.
Accessibility is particularly important in events like these, because we’re all differently abled.
Part of the route the Edinburgh Pride March follows has cobbles and these are not great for people who have difficulty walking. Or for those who are seated as they are uneven and often not well maintained. The organisers could look at a different route.
However this is a notable route from the Scottish Parliament to the square that Pride is taking place in. And the march passes through the centre of Edinburgh, which I think is really important. We’ve been on a more comfortable path and it felt very out of the way and disconnected. This is definitely not what Pride is about!
My 5 top tips for the day
1. As it’s Scotland prepare for any eventuality: bring sunglasses, water, suntan lotion and layers.
2. If you’re mobile but tire then you could have someone bring you a folding chair or stool.
3. Pace yourself as there's no rush.
4. You could bring noise defenders if you’re sensitive to sound.
5. Most importantly, enjoy the experience!
More about Edinburgh Pride
For the first time ever, we'll be marching in Edinburgh Pride this year! It's on Saturday 20 June, straight after our research conference MS Frontiers.
Access at Edinburgh Pride
Edinburgh Pride parade route starts at Edinburgh parliament then proceeds up the Royal Mile. Due to the gradient and cobbles, it can be challenging for anyone using a wheelchair or who has walking difficulties.
The Edinburgh parade team run a Ride with Pride open topped bus that travels the route and is free to register a space. We're also organising an accessible MS Society cheer spot for anyone who wants to watch the parade with fellow MS-ers, friends and family.
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