Privacy Policy

The Multiple Sclerosis Society which is a registered charity (registered charity number 1139257 with registered office at 372 Edgware Road, London, NW2 6ND (“us”, “we”, “our” or “MS Society”), is committed to protecting your privacy and your personal information when you use the Website and the Website Services (as defined in our Terms of Use).

This Privacy Policy explains to you what personal information about you we collect, what we do with it and the methods we use to protect your privacy. By accessing and using the Website you agree that you consent to the use being made of your personal information which is set out in this Privacy Policy.

If you have any questions about the information we hold about you or this Privacy Policy please contact us at the following email address

If we change our Privacy Policy we will post the changes to the Website and may place notices on other pages of the Website. Your continued access and use of the Website will signify that you agree to such changes.

The information we collect

We may ask you to provide us with personal information in order to process your account and allow you to participate in the discussion boards on the Website and use other aspects of the Website Services. We may ask for information such as your name, date of birth, gender, email address, postal address, the nature of your interest in the MS Society and any other information requested by us using our forms on the Website. We will keep a record of this information and also any correspondence if you decide to contact us.

What we do with your information

We will use your information in order to provide you with the Website Services, improve and personalise your experience on the Website and to communicate with you about the MS Society on any matter relating to the conduct of your account or your use of the Website Services.

If we collect data for the purpose of organising a specific event, we may occasionally release such information to named co-organisers or co-sponsors with your consent.

Despite your preference settings there may be occasions when we have to contact you for operational or administrative reasons relating to the Website Services.  

Newsletter Subscriptions

After confirming which newsletter subscriptions you would like to receive, you will receive emails about the topics you expressed an interest in or relevant related items. All emails sent in such a way will contain details on how to unsubscribe. You may unsubscribe at any time by emailing

Submissions on the Website

Any communication or material that you supply to the public areas of the Website will be treated as non-confidential and non-proprietary. The Terms of Use in relation to Your Content shall apply to such material. Personal details will only be published on the Website with your permission or if submitted as part of Your Content.


When you access and use the Website, the pages you access, together with a cookie, will be downloaded to your computer. Cookies are software applications which store information about your visit to our Website on your hard drive. This information supplied by cookies can help us to provide you with a better experience when using our Website and the Website Services by analysing the way in which the people use the Website. Cookies do not identify you personally but they do identify your computer. 

You are able to disable cookies using your browser software (for information on how to do this check your browser information/help facilities). You will still be able to browse the Website if you do not enable cookies, but you must enable cookies if you wish to use the areas reserved for registered users.

We may use the information collected by cookies to monitor the performance of the Website and the Website Services. Such information will not disclose your individual identity or personally identifiable data without your permission.

Find out more about cookies and how we use them.

How we protect your information

The internet is not a secure medium and therefore it is inherent that any email or information sent to the Website or submitted to enable use of or when using the Website Services may be liable to be compromised. We have several security procedures in place to try to protect your personal information including firewalls, password protection and encryption.

Sharing or transferring information

Due to the global nature of the internet the information you provide to us may be transferred to countries outside the European Economic Area when it is in transit over the internet. As a result it may pass through countries that do not have the same type of data protection laws and protections in place as are complied with by the MS Society. We have taken the technical steps set out above to try and improve the security of your information when in transit over the internet.  By submitting your information to us you consent to these types of transfer.

We may disclose your information to third parties if we are under a duty to do so to fulfil a legal obligation or to enforce our own contractual agreements or to protect the rights, property or safety of our members and users of the website services or others. This may include the exchange of information with third parties for the purposes of prevention of criminal activities. 

Third Party Websites

We will not be responsible for the conduct or content of third party websites, including without limitation, any link contained in a third-party website.

SMS Service

The MS Society SMS service is provided by a third party provider. Data obtained from you in connection with this service may include your mobile number, your network provider’s name, and the date, time and content of your message.

By using this service, you consent to the MS Society transferring your information to our third party provider to enable provision of this service as well as consenting to receiving further information from the MS Society using SMS messages from time to time. You can unsubscribe from the SMS service at any time by texting MSS NOSMS to 88008 to opt out or by mailing including the words “mobile phone marketing opt out” in the subject line. 

Cost of donating by text and what The MS Society receives

All texts are charged at the amount set out for the relevant keyword below plus one message at your standard network rate (based on your service provider rates); the charge will show on your bill and the sender will show as a five digit number. 100% of donations are passed to the MS Society.

HOPE - £3 donation

FUTURE - £5 donation

There is no limit on the number of times you may make a donation via text but there is a daily limit of £30 on text donations. You will not be able to donate more by text from the same number on the same day, but you may still incur your standard network message charge if you try.

Accessing the Personal Data we hold on you

You may contact us at any time to obtain details of the personal data that we hold about you by any of the following methods:

  • sending an email to;
  • sending postal mail to Supporter Services, MS Society, 372 Edgware Road, London, NW2 6ND; and/or
  • calling by telephone on 0300 500 8084 and asking for Supporter Services.

Updating your information

If any of your information that you have provided to the MS Society changes, for example if you change your email address or name or if you wish to cancel your account please let us know the correct details by sending an email to the following email address If you already receive information from the MS Society, we will continue to send it unless you tell us otherwise by writing to us at Supporter Services, MS National Centre, 372 Edgware Road, London, NW2 6ND or by emailing

Contact us

If you have any questions, please email us at

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