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Behind the headlines: MSCT and MS

23 Nov 2017 | David Schley
Image shows representation of a stem cell sphere dyed blue MSCT (or Mesenchymal Stem Cell Therapy) is an exciting new area of research being explored as an MS treatment. And it's featured in tonight’s channel 4 documentary which follows lawyer Mark Lewis as he takes part in an MSCT trial in Jerusalem.  Like HSCT, MSCT uses stem cells – but that’s where the similarity ends!...

Give us a Budget for people with MS

20 Nov 2017 | Jonathan Blades
Photo shows hand holding up red budget briefcase from business insider This Wednesday Chancellor of the Exchequer, Phillip Hammond, will outline how the government plans to spend the nation's money in the Autumn Budget. Here's four things we want the Chancellor to commit to for people with MS. 1. Money to stabilise the care crisis We know the social care system in England is in crisis. 1 in...

What a relief: UK Toilets all mapped out for World Toilet Day

19 Nov 2017 | Babs Guthrie
Today is the 16th World Toilet Day, a special day to raise awareness of the world sanitation crisis and, more locally, of toilet provision for people who really need them. Most people in the UK are lucky and don’t have to think too much about where they use a toilet. But for a lot of people who have MS, locating an accessible toilet is often crucial. It can be tough if you don’...

"I don’t just read an MS neurology textbook, I read my dad"

17 Nov 2017 | Ghazia Ahmed
Research Network member Ghazia in a cafe I'm Ghazia, I’m 23 years old and live in London. I am a fourth year medical student from St George's, University of London. I’ve been aware of MS from a young age, as I watched it gradually affect my father. At first, I was too young to understand why he couldn’t take part in parent races on Sports Day or why he said his arms felt funny sometimes.  As my love for...

One father on why he left a legacy to the MS Society

17 Nov 2017 | hmaunder
Father and daughter Mike tells us why pride and hope for his daughter inspired him to leave a legacy to help stop MS. Family usually come first when people think about their Wills. It just feels to my wife and me that people with MS are now part of our wider family. We started making monthly donations to MS Society Scotland when our daughter was diagnosed with MS. We’re now retired, not wealthy, but lucky enough...

Why I’m researching – and hiking – to stop MS

16 Nov 2017 | Frances Whinder
Dr Julia Edgar and friends at the 10in10 challenge This year, one of our researchers, Dr Julia Edgar, took on the 10in10 challenge – hiking up 10 peaks in the Lake District in 10 hours. Julia explains what inspired her to get involved.  Growing up in Scotland, where MS affects around one in 500 people, it was the first neurological condition I was aware of. A family friend had what I now know to be secondary progressive MS....

Me and My MS nurse: Emma and Elaine

15 Nov 2017 | Frances Whinder
Emma and her MS nurse Elaine Since Emma moved to the Isle of Wight, she’s been grateful to have MS nurse Elaine looking out for her.  Emma on Elaine When did you first meet Elaine? When I moved to the Isle of Wight at the end of 2013. Did you have any concerns about the appointment? No, I was just happy and thankful that I’d have someone looking out for my welfare. I’m always...

We can't afford not to make cannabis available for medical use

15 Nov 2017 | Babs Guthrie
Photo shows researcher holding cannabis plant Steve is 55, he was diagnosed with MS in 1987. This is his story. "Imagine running a marathon while sharp pain darts up and down your legs. This is what multiple sclerosis feel like for me. When muscle spasticity kicks in my legs just twist and turn and bend back on themselves and it’s excruciatingly painful. Cannabis based...

The nightmare is finding the right care

14 Nov 2017 | Babs Guthrie
Photo shows Mike and Janet sitting down smiling to camera. Janet clasps Mike's arm. Janet looks after her husband Mike who has progressive MS. They rely on respite care for any kind of break - but it's not easy to find care that works. “Mike was diagnosed with primary progressive MS in 2001. We managed without any social care to start with and then as Mike deteriorated we tried...

'Our quality of life went out the window'

14 Nov 2017 | Babs Guthrie
Photo shows Paul in a red jumper sitting reading a document with Lesley who wears a blue top Paul is 72 and the primary carer for his wife Lesley who has progressive MS. They tried paid care three years ago but it wasn't a good experience. So now Paul looks after Lesley's needs alone. "Lesley is quadriplegic and I am her full time carer. We had paid carers about three years ago, but it was such a horrible...

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