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What we won in 6 weeks of action

29 Oct 2017 | Babs Guthrie
Moving gif shows press clippings from 6 weeks of action In the last 6 weeks we’ve been speaking up, and decision makers are listening. Too many people affected by MS across the UK are having to fight for the treatments, care, and financial support they need. So in September we launched 6 weeks of action on these key issues to stand up for people living with MS across the UK.  Taking joint action on PIP First...

Things I’ve learned about sex

27 Oct 2017 | ShanaPezaro
Shana WARNING - This blog is explicit. (Mum and Dad – please don’t read this!) My ex-husband and I split up 10 months after I was diagnosed with MS. I was 29 years old, a wheelchair user and struggling badly with fatigue. I’d had to sell my business, been signed off work permanently and was learning to self-catheterise. I believed I was unattractive and that no one would ever find me ‘sexy’. I was...

Let’s talk about sex – your questions answered

26 Oct 2017 | Frances Whinder
Love heart sweets When was the last time you thought about sex? And when was the last time you talked about sex? I mean really talked – a proper face-to-face conversation with another adult, not a joke down the pub or a comment on a super sexy TV show. Sex is often on our minds, but not often talked about. And that’s a shame, because talking about sex often leads to better sex. But it can be...

Sex and MS symptoms – your questions answered

26 Oct 2017 | Frances Whinder
A couple holding hands Sex is all around us - in our favourite TV shows (Game of Thrones anyone?), on the billboards we drive past, and in the pop hits that get stuck in our heads. You'd think everyone was having great sex, all the time. But the reality is lots of us have difficulties with sex at one time or another. Sometimes our bodies don't want to play ball, sometimes we don't...

A good time to talk about sex

26 Oct 2017 | Chef Trevis
Trevis and his dog Never an easy topic – MS or not – it’s time to talk about intimacy issues with multiple sclerosis. Why now? For many of us there’s no good time to [external link] speak the unspeakables about MS and sexual difficulties. So, fair play to the MS Society for deciding to make our weekend of an extra hour in bed as the clocks fall back time for a discussion on a 'Sextra-Hour'! Talking about the good things Often the conversation about sexual...

MS doesn’t make you any less sexy

26 Oct 2017 | Devika Jina
“You have MS, and you’re going to have the most amazing sex EVER!” That was the message that flashed on my screen only a few days after I was diagnosed. It was from my best friend, sent after she finished watching a documentary about the love and sex lives of the UK’s disabled population, and it featured a woman with the same illness as me. Happily married, it was obvious how giddy with love she and her husband were. They sat side by side, eyes full of mischief as they told the...

Social care in Parliament

26 Oct 2017 | Frances Whinder
The Houses of Parliament Yesterday in the House of Commons, the Labour Party introduced a debate about funding gaps in social care. Speaking for the Labour Party, Barbara Keeley MP (Shadow Health Minister) said that the current and future challenges for social care in England are not being addressed. She told MPs that 1.2 million people aren’t getting the care they need and that unpaid carers are having to do even more...

How counselling skills and mindfulness helped after my MS diagnosis

24 Oct 2017 | Noor Jawad
Noor Remembering the world is a beautiful place may sound like a cliché – but I also think it’s something we don’t do often enough. How often do we really notice what’s around us, the colour of the pavement we’re walking on or the sounds as we cross the road? I only realised the benefit of noticing all the small happenings in my world after I was diagnosed with MS three years ago. Struggling with...

4 tips for autumn half term family fun

20 Oct 2017 | hmaunder
Autumn leaves Looking for autumn half term activities to do with your children? Read on! Four mums and dads living with MS share some great ideas for indoor and outdoor fun. Chloe and her kids get creative in the kitchen...

Under the microscope: the immune system after HSCT

20 Oct 2017 | Katie Roberts
Image credit: Chris McMurran, University of Cambridge Haematopoietic stem cell transplantation (HSCT) is an intense chemotherapy treatment for MS. It aims to stop the damage MS causes by wiping out and then regrowing your immune system, using your stem cells. >> Read more about HSCT The big question is – what actually happens after the stem cells are put back? We take a closer look. The rebuild After HSCT, haematopoietic stem...

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