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What I’ve learnt from MS about surviving a lockdown

Gillian Shirreffs

A friend sent me a message recently asking if I could offer any tips on ‘the craft of keeping to a routine and filling your days, while maintaining good wellbeing in all its forms'.

I presume her reason for asking me is that in March 2007 I found myself in a form of lockdown.

My own personal lockdown

I went to work on a Friday morning, blaming the unusually bitter spring weather for the cold numbness that had crept into my toes. By the wee small hours of the following Monday I was in hospital having lost the feeling from my toes to my thighs.

I wouldn’t return to work until June and, even then, I was only allowed to do so in a phased return (three hours a day on Tuesdays and Thursdays).

The reason for this turn of events was an episode of transverse myelitis (TM). TM is a disorder caused by inflammation of the spinal cord. It can also be an early symptom of multiple sclerosis, which is what I was diagnosed with in the May of that year. By then the numbness and altered sensation were not only affecting my feet and legs but my torso, arms and hands as well.

I had to adjust to a long period of bedrest and the disruption to my previously busy life.

What I did to cope with isolation

Bearing in mind this happened thirteen years ago, my options were a bit more limited.

1. Playing solitaire on my laptop

Game after game after game. I played solitaire so often I figured out how to cheat against myself, just to mix things up a bit.

2. Writing poetry

My intention was not to produce publishable work, it was just to write. As someone who is a bit obsessed with words and language, I found that it was an excellent way to distract myself from both the discomfort and the long hours spent alone.

Read Gillian's blog on how writing helps her manage pain - with some exercises you could try!

3. Watching a stack of DVDs

A friend of a friend kindly dropped loads of them off for me. All contained TV detective programmes that were new to me – most were from other countries. I binge watched episode after episode on my laptop before I learned that it’s sensible to ration the good stuff.

4. Savouring my meals

My husband loves to cook, but up until this point I had pretty much taken for granted the pleasure of eating a really nice meal. That stopped.

I began to savour each bite of every meal that was brought to me by tray. This also allowed me to help my husband who was finding it difficult (as an engineer) that he couldn’t fix me or the situation. He wanted to help and his cooking became a tonic for both of us.

5. Becoming curious about time

I allowed myself to become curious about the way the texture of time had changed. Its passing was somehow different and I chose just to hold the thought rather than worry about what it meant.

6. Remembering why I had to do this

On a daily basis I reminded myself that this bedrest and the isolation it inevitably brought was for the best. It was helping my immune system to calm down and my body to recover.

It would allow me to be able to go outside again, maybe not in the next day or week, but eventually.

7. Planning for the future

I made plans for things I wanted to do when I was able to return to 'normal' life: join a poetry class, take up knitting, climb Ben Lomond for the fourth time.

8. I also did some unhelpful things…

Like ordering a ‘miracle’ cream for nerve pain off the internet. And reading too much (and too indiscriminately) about the disease with which I’d just been diagnosed. However, this did teach me the difference between helpful and unhelpful activities, so I’m taking it as a win.

As friends and family will know, I’m a bit obsessed with numbers. I like even ones, particularly anything with an eight in it. It therefore seems appropriate to stop my list here. I hope you take some things from it that are useful during this time.

This blog was first published at