Community blogs

“Live life not MS” has long been my mantra. It predated coronavirus before I morphed the chant into “Live life not COVID”. That, as much as anything, helped to sustain me during those long months of self-confinement.

According to the government I shouldn't be struggling, and if I am then maybe that's a failure on my part. I feel like this concept of 'not being ill enough to ask for help' has permeated into me so much that I've just stopped asking.

In August 2021 beauty and lifestyle vlogger Nic Chapman Haste travelled to Mexico for HSCT. This is her story.

In this interview, we caught up with Mary on what Black History Month means to her.

I chose to opt for HSCT in Mexico despite being turned down for a trial in the UK. Instead I was hopeful and ready to get well and believe in the process.

In 2017, Miles travelled to Mexico for HSCT, two years after being diagnosed with relapsing MS. He told us he’d made the decision because his mobility had rapidly declined. Find out how he’s doing now, four years after treatment.

In the absence of stories relating to their own cultural identity, Black people can feel ‘not British enough’. This leads to generations of people who don’t own their place in society.

Natalie was diagnosed with highly active relapsing remitting MS in 2016. Within three years of diagnosis her MS was reclassified as aggressive. This is her journey

I live with multiple chronic illnesses and disabilities, including MS. Through going back to college I've learnt how to document my life in a way that helped me to process what I was experiencing.

Lorraine was diagnosed with MS during the first lockdown in 2020. She tells us about learning to talk about MS and how our wellbeing services have helped.

Len Williamson, whose wife Karen had secondary progressive MS, talks about how photography helped him to cope during her illness and after her death.

Ryan shares his diagnosis story and plans for the future.

Subira shares her diagnosis story, and how managing stress has made a huge difference to her health and wellbeing.

Sadie is our Digital Coordination and Production Officer. She joined us in February 2021 after finding out about MS through a family friend.

Danielle joined us in 2008 and has been our Governance Manager since 2019. In this blog, she talks about the different roles she's had here, and how she balances work with managing her MS.

Mark Rainbow was a high flyer when he got his MS diagnosis. As his MS has changed over the years, his priorities have too.

The Tokyo Paralympics get underway today, with three athletes hoping to blaze a trail for people with MS.

Being single and trying to navigate your way around the world of dating is challenging for anyone these days. But it can be especially difficult when your life comes with additional complications, like MS.

I’ve always loved comedy, and I’ve always been the funny one in my friendship group. I told myself that by the time I reached 40 I was going to give it a go, so I signed up for a class and started doing stand-up! I bring in my experience of MS to my comedy and talk about it a lot on stage.

Carol is the first participant in the ChariotMS trial, which will test whether a drug called cladribine can slow down the worsening of hand and arm function for people with more advanced progressive MS. It’s one of the first ever clinical trials for people with advanced MS.