Community blog


Stories for people affected by MS, by people affected by MS.

MS is different for everyone - read real stories and tips from people who know.

Latest entries

HSCT insights: dealing with isolation

Man watching TV

What’s it like having HSCT? Three people who’ve had the treatment share their experiences.

People having HSCT typically spend about a month in isolation following chemotherapy. This is to keep them safe while their immune system rebuilds.

In this blog, we look at what helped them cope with being apart from friends and family.

My tips for having an MRI scan


I was diagnosed with MS in 2014 and MRI scans have become routine. They helped with my diagnosis, and since then I’ve had two more (two brain and two spinal).

School’s out: tips for summer fun from an MS mummy

Joanne Chapman lives with MS – and a toddler. These are her tips for enjoying the summer holidays with your little ones

How I became a para athlete

Amar-Mazigh Aichoun was diagnosed with MS at 13. Now he's a para athlete. He tells us about racing, his training and how MS affects him.

MS in the family: we're siblings with MS

Brother and sister Rodney and Grace both have MS. They live a few minutes apart in Belfast. They told us what it’s like to be siblings with MS.

Grace, 56, was diagnosed with MS in 1997. She’d been living with MS for eight years when Rodney, now 43, was also diagnosed.

Understanding what it means to be an LGBT person with MS

Periklis is a PhD candidate in psychology exploring the experience of LGBT people living with MS. Read on to find out how he’s raising awareness of MS and making a difference for LGBT communities.

Coronation Street’s Johnny: 5 things I’ve learnt about MS

Actor Richard Hawley tells us what he learnt before his Coronation Street character, Johnny Connor, was diagnosed.

"Catheters? Oh alright then"


How help from the continence clinic finally gave Mark some relief from bladder accidents.

A lovely warm evening in 1995. A team outing, yay! I was living in France, and working for Disneyland Paris, as I had done since its 1992 opening. After a few glasses of champagne, a crowd of us hopped merrily on a bus.

Invisible symptoms: twitches and spasms


It’s early evening, I’m relaxing watching a bit of TV or reading with my feet up. That’s when it starts: my toe, usually my big toe on my left foot, slowly starts to point towards the ceiling.

It aches, I push my toe back down, this repeats for an hour or so. Sometimes it leads to a massive leg spasm, sometimes the toes just twitches away for ages.

The invisible symptoms of my MS


I'm generally a very bubbly person, I have a full time job and I like to socialise. I often hear 'you don’t look tired' or 'but you look so well'.

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