Community blog

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Stories for people affected by MS, by people affected by MS.

MS is different for everyone - read real stories and tips from people who know.

Latest entries

Living with anxiety and MS

Paula

I was diagnosed with MS four years ago, aged 22. I also live with anxiety, which means I sometimes feel fearful and scared in everyday life.

I can wake up feeling worried and nervous for absolutely no reason. It comes out of nowhere and it’s something I’ve experienced for years.

Five tips for living with MS and mental wellbeing

Barbara

We asked people living with MS to share their top tips for wellbeing. Our blogger Barbara has looked at NHS Choices five steps to mental wellbeing and adapted them for people living with MS.

10 uplifting quotes for the not so good days

Today's guest blog is from a donkey who knows MS inside out. Meet Dizzy, close friend and confidante of actress Heather, the star of our latest MS:Enough campaign video.

‘Please offer me a seat’: transport badge available now

Transport for London's badge for people with invisible symptoms is now available for everyone who needs it. Community blogger Tasha was part of the trial. Read about what a difference it made to her commute.

Me and my friends are bossing MS together

Michelle gives her friend a piggyback

When I was diagnosed with MS I was only 19. Well, nearly 20 - it was two weeks before my birthday. It took me a while to tell any of my friends. I didn’t want sympathy and I needed to adjust to it myself.

Planning a holiday by an MS mummy

There’s so much to think about when planning a holiday. Stay in the UK or go abroad? Relax by the pool, or explore a new city? Throw MS symptoms like heat sensitivity into the mix and it gets even more complicated. And if you’ve got children too, you might feel like you’re faced with a hundred decisions before you even set off.

Lewis MacDougall: “Mum’s MS helped me empathise with my character in A Monster Calls”

Lewis MacDougall, 14, won praise for his portrayal of a young boy losing his mum to cancer in film A Monster Calls. He tells us about life with his mum, who had MS and died when he was just 11. 

Top tips for managing fatigue from an MS mummy

Joanne Chapman has MS and a toddler. She tells what having a little one has taught her about managing her MS fatigue.

“Poetry helps me express myself”

Julie with a sign saying kindness

Mum-of-four Julie Clear writes poems about life, love and MS. She tells us why creativity is an important part of her life.

Sex and MS: losing and finding the big O

When you have MS, your bed becomes your best friend. MS can mean beds risk being drab, depressing places cluttered with cake crumbs (just me?), but they’re also conducive to sex – aren’t they?

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