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Having MS is enough. It shouldn't be made harder by a welfare system that doesn't make sense.

Welfare support is vital for many people with MS. It helps us manage the extra costs of the condition, stay in work for longer and participate fully in society.

But our welfare system often ignores invisible symptoms like pain and fatigue and doesn't recognise how MS symptoms fluctuate.

The assessment criteria for PIP fail to capture the difficulties people face. And benefits assessors don't always take evidence provided by professionals into account. Too often people with MS are under pressure to repeatedly prove they need support.

Extra costs of MS

We know the rising cost of living is affecting us all. And MS can make living costs even higher. We're concerned about what this could mean for our community - so we want to speak out about it.

Later this year, we'll launch a new campaign. But first we need to hear from you. 

People with MS need to be front and centre of our campaigns. So we want to hear how MS affects your finances. 

Please fill in our survey and let us know about your experiences - it should take around 15 to 20 minutes. 

Take our survey now

Speaking up for people with MS

The UK Government released their plans to improve disability benefits in their Health and Disability Green Paper in August. Now we've responded to the consultation alongside our campaigns community.

We waited two years for the Health and Disability Green Paper. So we wanted to make the most of this opportunity to make sure the UK Government knows what they need to do to make benefits work for people with MS. Almost 500 of our campaigners took action to tell the government how to improve disability benefits.

Using the responses from people living with MS, we have also responded to the consultation directly as an organisation. In our response, we spoke out about the importance of recognising that many people claiming benefits are not receiving enough money, and that people living with MS who are unable to work should not be condemned to a life in poverty.

The government must urgently reform the assessment criteria and how assessments are carried out. We know personal independence payment (PIP) is failing people with MS. This includes the unfair 20-metre rule and inaccurate ‘informal observations’ that fail to take into account the fluctuating nature of MS and hidden symptoms. Decisions need to be backed up by evidence not assumptions, and assessments carried out by people with good knowledge of MS. 

Read our response to the UK Government's consultation

At the end of last year, the Scottish Government published a consultation on their plans for Adult Disability Payment (ADP), which will replace Personal Independence Payment (PIP) in Scotland.

Thanks to your feedback, they have now adopted many of our recommendations. But they intend to keep the 20 metre rule.

We’re urgently calling on the Scottish Government to review this criteria in their plans for Adult Disability Payment (ADP). And we need you to add your voice.

Send your MSP a message: Scrap the 20 metre rule

Making progress

October 2021: Telling the UK Government how to improve disability benefits

Almost 500 of our campaigners responded to a Government consultation on disability benefits using our online form. We were able to show the Department of Work and Pensions that people living with MS demand a fairer benefits system.

We also submitted a response from the MS Society to the consultation, based on information from people who responded to our online form.

August 2021: Speaking up for MS in Scotland

In Scotland we asked our community to email their Member of Scottish Parliament (MSP) about proposals to include the 20 metre rule in the new Scottish benefit Adult Disability Payment (ADP).

Send your MSP a message: Scrap the 20 metre rule

July 2021: Health and Disability Green Paper is out

The Government published its Health and Disability Green Paper, a set of proposals on how the welfare system can better meet the needs of disabled people and people with health conditions. They also launched a consultation for people to share their views. The consultation is open until October.

January 2020: Open letter to Justin Tomlinson MP

We handed in our open letter at 10 Downing Street. We received a reply from Minister for Disabled People Justin Tomlinson, which said the PIP assessment process would be considered as part of their planned ‘Green Paper’ on health and disability.

November 2019: PIP Fails campaign

Research with our MS community shows PIP assessments are failing people with MS. Together 20,000 of us signed an open letter to the next government calling for common sense changes to the process.

April 2019: Our report shows PIP 20 metre rule costs millions

We published research showing the PIP 20 metre rule isn't only failing people with MS, it also costs the government millions more than it will save.

Over 8,000 of us emailed the then Work and Pensions Secretary Amber Rudd MP to call for the rule to be scrapped as part of the government’s next spending review.

December 2018: Government waste £1 million on PIP appeals

We highlighted that people with MS win 83% of their appeals on PIP – as the government wastes almost £1 million trying to stop them.

October 2018: PIPville comes to the Houses of Parliament

We handed in our 20 metre rule petition to the government and installed our PIPville stunt outside the Houses of Parliament.

June 2018:  Scrap the PIP 20 metre rule

We published research showing the PIP 20 metre rule isn't only failing people with MS, it also costs the government millions more than it will save.

Over 8,000 of us emailed the then Work and Pensions Secretary Amber Rudd MP to call for the rule to be scrapped as part of the government’s next spending review.

December 2018: Government waste £1 million on PIP appeals

We highlighted that people with MS win 83% of their appeals on PIP – as the government wastes almost £1 million trying to stop them.

October 2018: PIPville comes to the Houses of Parliament

We handed in our 20 metre rule petition to the government and installed our PIPville stunt outside the Houses of Parliament.

June 2018:  Scrap the PIP 20 metre rule

The 20 metre rule is one of the many things about the PIP assessment that doesn't make sense. Our video showed how it's failing people with MS.

In June 2018 we launched a new phase of MS: Enough focussing on the PIP 20 metre rule. Under DLA (Disability Living Allowance) the rule was 50 metres. The reduction from 50 metres to 20 led to thousands of people with MS having their mobility support cut.

More than 36,000 of us spoke up and we launched a new report highlighting the damaging impact of the 20m rule on people with MS.

May and June 2017 : No more cuts to disability benefits letter

Before the 2017 general election, more than 16,500 of us signed a letter to party leaders asking them for no further cuts to disability benefits.

November 2016: MPs pledge to help people with MS stay in work

More than 90 MPs signed our pledge to support people with MS getting the support they need to stay in work.

March 2016: Government U-turn on PIP changes

UK Government announced changes to PIP assessment scoring that would leave some people with MS £150 worse off each week. Together with other charities, we secured a full government U-turn. More than 22,000 signed our MS: Enough petition.

Over a single weekend 3,000 of us emailed your MPs, calling for an emergency debate on the issue.

September 2015: MS Enough launch

We launched MS: Enough with a petition and video asking 'Does Emma need benefits?