In the words of one person with MS, PIP can give people the support they need “to live, rather than exist”.
But PIP is failing people with MS. Our new report shows there are still unnecessary barriers at every stage of the PIP process. And these barriers lead to thousands losing or being denied support.
From tackling the long, complicated form, to proving yourself to an assessor, to fighting an incorrect decision – we face an exhausting and demoralising battle every step of the way.
Take action - sign our open letter
As the general election fast approaches, all the political parties are deciding their future plans.
We’ve written an open letter to the next UK government: we need a PIP assessment process we can trust.
We need as many signatures as possible to get our message heard. Add your name today:
Assessors need to understand MS
Our new research shows more than half of people with MS surveyed didn’t feel their assessor understood their MS.
Too often, PIP assessors make inaccurate decisions based on ‘informal observations’ (the way people look or act during their assessment). 67% of people with MS whose assessment included these said they didn’t reflect how MS affects them.
We need a PIP process we can trust. Decisions must be backed by evidence not assumptions. And assessments should be carried out by people with good knowledge of MS.
It’s not just assessments that don’t make sense
Last year 36,000 of us showed the Department of Work and Pensions just how many people are trapped in their homes by the 20 metre rule.
In April, 8,000 of us wrote to the Secretary of State to tell them that the rule costs the government more than it saves.
Now we need to let the next government know that assessments need to change too.