Campaigns blog

Amy blogs about the stress of her PIP assessment - and how the new system in Scotland is completely different.

Bethen first claimed PIP since shortly after being diagnosed with MS in 2014. She's now had three assessments.

In her blog, Amy Johnson talks about her experience of the PIP process as like, "being on trial for being ill."

Elisha's PIP assessment didn't take into account her fluctuating and invisible MS symptoms.

Rob's calling on the UK Government to fix PIP. Read his story on why it's not working.

You’ve sent us lots of great questions about our Approved but Denied campaign for better access to Sativex. In this blog we tackle some of your most frequent questions.

A Bill to introduce five days of leave for unpaid carers has received Royal Assent and become law. The Carer’s Leave Act will come into effect in 2024.

The UK Government is planning big changes to disability benefits. But they still don't have a plan to fix the problems with PIP.

Last week, Charlotte Nichols, MP for Warrington North, was elected as Chair of the All Party Parliamentary Group (APPG) for Multiple Sclerosis. We spoke to Charlotte about why she’s excited to Chair the APPG this year.

This week the UK Government released their biggest planned changes for disability benefits in a decade. We look at what they mean for people living with MS. Some of these changes might be concerning, but they aren’t coming in for years, so we have lots of time to campaign for them to work for people with MS.

We’re calling for change from the remaining local health bodies who aren't yet routinely funding Sativex for eligible people with MS. You can support people living with MS to get this potentially life-changing treatment in a few short steps.

Last week, members of our Northamptonshire Group met with their local MP Tom Pursglove MP. As Minister for Disabled People, Tom is responsible for disability policy in the UK Government.

The Scottish Government is holding a consultation on the mobility component of ADP. Find out what we’re doing to end the 20 metre rule.

New legislation will give employees the right to request flexible working from day one of their employment. Employers may only reject these requests if they have a credible reason for doing so.

Carers give vital support to people with MS. But they’re some of the hardest hit by the cost-of-living crisis. Read about what we’re calling on the UK Government to do and the ways we’re supporting carers.

I’m working, I’m not on benefits, but I’m still affected by the cost of living crisis. I’m also a gay man, and I think that matters. People in the LGBTQ+ community have a greater chance of bad healthcare experiences. So sometimes things feel even more challenging.

With a new Prime Minister in place, we've been making sure the new Government know what support people with MS need. Join us as we look back at a busy week in UK Parliament.

The rise in the cost of living has affected me in so many ways.

I can’t sleep because I’m worried about paying bills and buying food. It’s making me physically ill. Not sleeping increases my fatigue which makes it difficult for me to function.

I’m terrified of what’s to come. I’m watching my money very closely and I have a tight budget. But I’m already in arrears with my electricity and gas. I manage my money fortnightly — I scrimp and save, but there’s still been times when I’ve run out.