How research is tackling the emotional impact of MS
Improving support after diagnosis
The support people affected by MS will want or need often changes with time. That’s why health professionals across the UK are working to make sure symptom management and emotional support are offered to everyone as standard, throughout the course of their condition.
For example, getting a diagnosis of MS can be frightening, overwhelming, or, for some, even a relief after so long of not knowing. It's important that support is available at this time. We’re supporting Professor Roshan das Nair at the University of Nottingham who’s working to improve the experience people with MS have at diagnosis.
Adjusting to life with MS
But for many people with MS, the hardest time can be when symptoms become visible, such as if you need to start using a walking aid. This can be because it changes your perception of yourself, and may affect confidence.
Dr Angeliki Bogosian at King's College London is learning from people with progressive MS about how they adjust to their new diagnosis. She‘s found that many people cope by scaling back goals and focusing on one or two critical areas. That doesn’t mean giving up on their dreams, but often involves prioritising the things that give them joy.
The benefits of CBT
Professor Rona Moss-Morris, a health psychologist at King’s College London, says it's important not to assume that everyone in distress needs treatment. It’s normal to be upset when you’re dealing with a diagnosis, have a relapse or are experiencing disability progression. Showing signs of distress is a coping mechanism and can be a way of breaking down barriers, opening up the support of friends and family.
It’s when that distress stops you from being able to do what you want to do that support such as Cognitive Behavioural Therapy (CBT) can be important. The saMS trial, funded by the MS Society, showed that CBT really benefits people who are in distress.
Specialist emotional support for MS
It's also not unusual to experience depression, stress and anxiety when you have MS. There are standard management programmes for anxiety and depression available on the NHS, such as CBT. But many people feel that these standard programmes don’t acknowledge the specific challenges of having a long term condition like MS.
So Rona and her team are working with psychologists and people with long term conditions to develop an online CBT treatment called COMPASS, to help people navigate their long term condition. Once COMPASS is up and running, the team hope to start developing condition-specific versions, such as for MS.
This blog first appeared in Research matters magazine. To receive Research Matters by post please contact email@example.com about subscription. You can also download recent issues of the magazine.