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Lynne is pictured with her husband Alastair.

#MSMakesMe an actress

People often tell Lynne "you're so brave!" and "you look great!". How does she respond? She reckons she's up for an Oscar...

Long ago, before MS changed my life, I studied English with Drama at teacher training college. How useful the drama element has been for the past 56 years. I act every single day of my life. My diagnosis was long before disease modifying therapies (DMTs) were available.

Here are some of my thoughts on how multiple sclerosis has affected me. I was surprised when I wrote this how many emotions it brought to the surface. I don’t usually share my emotions – hence the actress.

My multiple sclerosis - letter by letter

MS 

These two letters strike fear, and brought uncertainty into my life.

Understanding

my grief as I learnt to cope with the Many Surprises MS has to offer!

Loneliness

When friends drift away and our family live in Australia and Canada.

Travel

is extremely tough for wheelchair users, especially watching one’s independence being flung into the hold of the plane!

I long

for times past when life was relatively easy, fun, I could drive and I was independent.

Painting

that smile on my face so I’m ready for the day.

Life

is hard, but I keep acting and...

...Everyone’s

fooled!

Sounds

I hear often: ‘You’re so brave, You look great!’ (My acting will soon be up for an Oscar!).

Control

of my life has gone and carers seem in charge. Some are great but there is no continuity. Decisions are made and I feel I have to agree.

Let me

have some dignity and PLEASE SEE ME, I scream inwardly!

Each day

is different, I can’t plan ahead.

Reality

keeping going each day with as normal a life as possible.

Overcoming

frustration, negativity and what I really want to say at times but it’s better I don’t!

Shout

my message out loudly, and someone might hear.

I’m living with MS

and my future’s unclear.

So I act

like I’m happy and paint on my smile.

Emotional support and information

Our MS Helpline is here to give emotional support to anyone affected by MS. Call 0808 800 8000 for free, or email [email protected]. We’re here Monday to Friday, 9am to 7pm except bank holidays.

Find out more about topics raised in Lynne's blog

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