The art of living with MS
Patterns in the MRI
I’m a self-employed designer with my own MS-inspired design label. It’s called ‘Charcot’.
I use the nasty MS lesion shapes from MRI scans of my brain to design patterns for screen prints, digital prints and luxurious silk collections. I’m really proud to not only make MS visible, but make it wearable too!
It’s a creative way to raise awareness with audiences that wouldn’t necessarily have a connection with MS
Diagnosed at art school
I was diagnosed with relapsing remitting MS when I’d just turned 22 and was studying Jewellery and Metal Design at art school in Dundee.
Three years after my diagnosis, I started on a medication to reduce relapses. Since then I’ve not had any major relapses, which is amazing.
Fatigue and altered sensations
I do still experience other symptoms regularly. Fatigue is my worst symptom. It affects my ability to think.
Stress, physical or mental exertion can bring it on. When I’m extremely fatigued I get spasms in my left leg.
I also have altered sensations in my hands, feet and across my skin – combined numbness and tingling.Donate now to stop MS
I don’t know what my future holds and how I’ll be affected. Kirsty, living with MS
Self-employment works for me
I’ve always wanted to be self-employed, even before my MS diagnosis. Now I realise I’m very lucky to be able to adapt my working day. Working from my home studio allows me to really listen to my body and take breaks.
Make MS more predictable
MS is so unpredictable. I don’t know what my future holds and how I’ll be affected. This is one of the hardest parts of living with MS.
I’d like to see treatments that make MS more controllable from the outset, so when we’re diagnosed we’ve got a better idea of what to expect.
I’m really excited about research into re-myelination. It could repair the damage caused to the coating of the nerves (the myelin) in the central nervous system. And that could reverse the symptoms and disability that come with this devastating illness.
It would mean the world to me if I had access to a treatment that could stop MS.
Will you join Team Stop MS?
We’re the closest we’ve ever been to treatments for everyone.
We can see a future where no-one needs to worry about their MS getting worse. To get us there we’ve launched our biggest fundraising appeal yet and we need your help.
Photographs: Julie Howden
The next research breakthrough is in reach
Your donation will help stop MS.
£30could process one blood sample, giving researchers crucial information about genes and the immune system.
£50could pay for an hour on a microscope, so scientists can study cells and tissue in greater detail and improve their understanding of the biology of MS.
£100could pay for half an hour of MRI use, so researchers can monitor the success of clinical trials and understand MS in more detail.
Every penny you give really does take us a step closer to stopping MS. Your donation will make a difference.
£10a month could pay for lab equipment like microscope slides to study the building blocks of MS
£20a month could pay for lab equipment like petri dishes to grow bacteria important for studying genetics
£30a month could process a blood sample to help us understand what causes MS, so we can stop it in its tracks
Your regular donation means we can keep funding world class MS research with confidence. Together we will stop MS.