Campaigns blog

Find out how MS campaigners are making a difference across the UK.

Latest entries

Putting MS at the heart of the national elections

It may seem like no time at all since the 2015 UK General Election but for campaigners in Scotland, Wales and Northern Ireland there are important elections just around the corner.

The elections for the Scottish Parliament, Northern Ireland Assembly and the National Assembly for Wales take place on 5 May and the decisions made at these national legislatures have an ever increasing impact on people’s lives.

Working out work for people with MS – Trishna’s trip to the APPG

Work. Unless we win the lottery, we expect to spend most of our adult lives doing it. Then MS comes along and throws you a curveball. 

New law could improve access to off-patent drugs

The Access to Medical Treatments (Innovations) Bill has now become law. This is an important milestone in our Treat Me Right campaign as it could improve access to repurposed off-patent drugs for people with MS.

One of the Act’s main clauses will introduce a database of innovative treatments including evidence about repurposed off-patent drugs.

The Risk Sharing Scheme - what does it mean for me?

What is the Risk Sharing Scheme?

The Risk Sharing Scheme (RSS) is a patient access scheme for treatments. It was set up in 2002 in response to a National Institute for Health and Care Excellence (NICE) decision that two licensed MS medicines were not cost effective and should not be made available on the NHS.

A watershed moment in Government welfare policy?

Major political developments over the course of the last week marked the most significant shift in Government policy and public opinion on disability benefit reform during this Parliament.

Together we scored a vital win for people with disabilities

Stephen Crabb, the new Secretary of State for Work and Pensions has announced proposed changes to Personal Independence Payments (PIP) won’t go ahead.

This is a fantastic result for people with disabilities. 

Delivering our voices to Westminster

On Tuesday I went to Westminster to help deliver the MS: Enough petition 22,642 of us signed. 

If you added your name – thank you.

Taking your voice to Westminster

I was joined by MS Society supporters Jackie, Shana, John and Rajvir, who all claim benefits. They’ve all been involved with MS: Enough and want to see the welfare system make sense for everyone affected by MS.

Five things you need to know about changes to Personal Independence Payment (PIP)

The Government has announced changes to the Personal Independence Payment (PIP) assessment process, to be implemented from January 2017. 

The change halves the number of points you can score in the assessment for using an aid or appliance to manage continence needs, or to dress and undress.

What does the 2016 Budget mean for people with MS?

Central to the Chancellor’s 2016 budget was the announcement that a further £3.5 billion of efficiency savings will be made by 2020.

Many people with MS have already been hit hard by changes to disability benefits and lack of investment in care and support, so this is difficult news to hear. Small concessions in welfare plans are not enough to counter some of the more challenging decisions that have been made.

Introducing the new look APPG for MS

Simon Hoare MP speaks at the APPG for MSThe All Party Parliamentary Group (APPG) for multiple sclerosis (MS) held the second of three evidence sessions this Tuesday, as part of the review of employment support policies for people with MS.

APPG Chairman Simon Hoare, MP tells us more about the Group and his role in it.

What's new?