Me and my MS nurse: Liz and Emma
Liz on Emma
When did you first meet?
I met Emma on a visit to the MS Therapy Centre. I felt I needed some more help and guidance following a clinic appointment.
How did you feel leading up to the first appointment?
A little apprehensive. I’d experienced a few disappointments with support from the hospital.
What were your first impressions?
I found Emma to be welcoming, professional and approachable. She had clearly read my notes and put me at ease, reassuring me that I could speak openly about the issues I was experiencing. That was a big relief.
Did the appointment meet your expectations?
I would say it exceeded my expectations. I came away from the meeting feeling reassured, informed and more confident about my treatment options. Emma also offered to follow up on different issues I’d experienced. It eased the pressure, knowing I didn’t need to fight my corner alone.
Did you feel comfortable asking questions?
Yes, Emma is extremely easy to talk to, honest and open in her approach. Perfect ingredients to make someone feel comfortable.
How often do you see each other?
This was a one off but if I need help in the future, I know where to go.
How helpful have you found having an MS nurse?
I would give Emma 10 out of 10. She was very knowledgeable, professional and provided me with practical support.
Sum up your MS nurse in three words
Professional, approachable, proactive.
What difference has she made to your life?
Emma’s made a real difference. She’s helped me to cope with the minefield of information, so I can make well-informed decisions about my future.
Emma on Liz
When did you first meet Liz?
Yesterday! She’d recently been diagnosed with relapsing remitting MS and came to discuss disease modifying therapies (DMTs). She wanted to make a clear, informed choice.
What was the first appointment like?
Liz seemed anxious and bewildered. DMTs are a minefield – so many options, all slightly different. Injections? Tablets? Infusions? Side effects? There are so many things to think about. I feel Liz became more comfortable soon after the appointment started. I could see her anxiety disappearing.
How did you prepare?
I read through Liz’s initial MS nursing assessment and previous MS nurse letters to get a good understanding of her MS journey so far.
Sum up Liz in three words
Grateful, positive and realistic.
How can a person with MS get the best out of their appointment?
Liz did absolutely the right thing by writing down her questions and thoughts. It structured her appointment and enabled her to have answers to her questions.
How important is it for somebody with MS to have a good relationship with their nurse?
Having a respectful, trusting relationship on both parts is really important. It lets the MS nurse offer the right support, so the person with MS can receive the right support and treatment for them. MS is a long-term condition, and you want to make sure that you’re there for the long haul.
What changes would you like to see for the treatment of MS?
MS services need to be adapted. More resources should be made available, so we can offer more timely, consistent support.