Millions of pounds taken from people with MS under PIP

Published date: 31 Aug 2017 at 12:01AM

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People with MS have lost out on at least £6 million a year in benefits since Personal Independence Payment (PIP) was introduced.

PIP started to replace Disability Living Allowance (DLA) in 2013.

The Department for Work and Pensions has told us that between October 2013 and October 2016:

  • almost one in three people (2,600) with MS who received the highest rate mobility component of DLA had their payments cut after being reassessed for PIP.
  • nearly a quarter (800) who received the highest rate for the care component of DLA had their payments cut after reassessment for PIP.

This discovery comes from a freedom of information request we made to understand the extent of benefit cuts.

The system doesn’t make sense

Genevieve Edwards, our Director of External Affairs, said: “These staggering figures show how PIP is failing some people with MS who need the highest level of support.

“It doesn’t make sense that people are losing money they once qualified for, when they are living with a progressive condition.”

PIP assessments must improve

We’re concerned too many people aren’t getting what they’re entitled to.

We know you’re often not given the chance to properly explain what it’s really like living with MS in your assessments. And assessors rarely understand how unpredictable it can be.

What’s more, it’s now harder to qualify for the highest rate of mobility support for PIP.

Before the changes, you wouldn’t receive the higher level of support if you could walk more than 50m. Now you won’t get the higher rate if you can walk more than 20m – including with sticks or walking aids.

We don’t think this is fair.

Time to fix this broken system

We’re calling on the Government to urgently fix this broken system and ensure PIP assessments reflect the realities of living with MS.

Having MS is hard enough. It shouldn’t be made harder by a system that doesn’t make sense.

>> Join our campaigns community and help us campaign to make welfare make sense.

Page last updated: 31 Aug 2017

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