NICE reject ocrelizumab for primary progressive MS
Why have NICE said no to ocrelizumab?
NICE say ocrelizumab costs too much for the benefits it can provide. In medical trials of the drug, people with primary progressive MS saw an average drop of around 25% in the risk of their disability getting worse.
Ocrelizumab could help slow down my MS and give me back control of my future. This decision is simply wrong. I don’t have any other treatment options. Holly, campaigner with primary progressive MS
Drug manufacturer offers lower price
Roche, the company that makes ocrelizumab have offered a lower price, but NICE are not allowed to accept a different price from what they pay for it to treat relapsing MS. Roche have called for NICE to be allowed to consider their lower price and hope a solution can be reached.
What can we do to reverse this decision?
We’re calling for NICE, Roche and NHS England to put patients first and agree a deal to make ocrelizumab available at a price the NHS can afford. We've made a petition so we can all speak up together. It will be open for two weeks.
Our Director of External Affairs, Genevieve Edwards, says:
This is a deeply disappointing decision, denying many desperate people access to a treatment which may slow down their disability progression.
"MS can be painful and often exhausting. For many people living with primary progressive MS – who have no NHS treatment options – ocrelizumab offered them a shot at a better future.
“Right now our utmost priority is ensuring everyone who could benefit from this treatment is given that opportunity.”
Add your voice to #SpeakupforMS
Tell NICE, Roche and NHS England: People with primary progressive MS need treatments.
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