It's one of the ways we can make sure we're using our resources to make the most impact we can. We use our evidence to influence, campaign and develop services for people affected by MS. And we share it to help our community do the same.
Where does our evidence come from?
We carry out, commission and fund research. And we work with our community to gather evidence on a range of issues affecting people with MS.
Statistics on life with MS in the UK
Incidence and prevalence of MS
We estimate there are over 100,000 people with MS in the UK, and that around 5,000 people are newly diagnosed each year.
This means that around one in every 600 people in the UK has MS, and that each week, 100 people are diagnosed with MS.
Cost of MS
Understanding the cost of MS to each person, to the health and care system and society in general is important. It can help us to make effective use of resources so we can provide better outcomes for people with MS.
One study estimated the average cost in the UK of MS per person, per year as:
- £11,400 for people with mild levels of disability
- £22,700 for people with medium levels of disability
- £36,500 for people with advanced disability.
Other studies put these costs as even higher, particularly for people with advanced disability. Living with advanced disability can cost more because of higher community services and informal care costs, and absence or exit from employment.
Reference: Thompson A, Kobelt G, Berg J et al. New insights into the burden and costs of multiple sclerosis in Europe: Results for the United Kingdom. Multiple Sclerosis Journal. 2017, Vol. 23(2S) 204–216
My MS My Needs
What is My MS My Needs?
In 2015 we worked with our community to develop seven goals. Three of those are
- effective treatments
- responsive care and support
- and independent lives.
To be able to judge if we're achieving these goals, we knew we had to understand the experiences of our community in depth.
So in 2016 we conducted our second My MS My Needs survey. Almost 11,000 people across the UK with MS completed the survey, making it the largest survey of people with MS to date.
Access to treatments
Our series of reports on people with MS’ access to treatment, health care services in the UK
- Social care