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The informal observations in my PIP assessment didn’t depict my everyday life

Louise writes about why she needs PIP - and why the system needs to change.

Asking someone to prove they’re ill is cruel

Amy blogs about the stress of her PIP assessment - and how the new system in Scotland is completely different.

I shouldn’t have to go to court 3 times to get the PIP I need

Bethen first claimed PIP since shortly after being diagnosed with MS in 2014. She's now had three assessments.

The PIP system makes you feel like you’re on trial for being ill

In her blog, Amy Johnson talks about her experience of the PIP process as like, "being on trial for being ill."

What I want the government to know about my PIP assessment

Elisha's PIP assessment didn't take into account her fluctuating and invisible MS symptoms.

MS doesn’t fit into the boxes PIP provide

Rob's calling on the UK Government to fix PIP. Read his story on why it's not working.

Your Sativex questions answered

You’ve sent us lots of great questions about our Approved but Denied campaign for better access to Sativex. In this blog we tackle some of your most frequent questions.

Carer’s Leave becomes law

A Bill to introduce five days of leave for unpaid carers has received Royal Assent and become law. The Carer’s Leave Act will come into effect in 2024.

The UK Government needs to fix PIP once and for all

The UK Government is planning big changes to disability benefits. But they still don't have a plan to fix the problems with PIP.

Meet the new Chair of the APPG for MS

Last week, Charlotte Nichols, MP for Warrington North, was elected as Chair of the All Party Parliamentary Group (APPG) for Multiple Sclerosis. We spoke to Charlotte about why she’s excited to Chair the APPG this year.

The Government’s welfare plans - the good, the bad and the ugly

This week the UK Government released their biggest planned changes for disability benefits in a decade. We look at what they mean for people living with MS. Some of these changes might be concerning, but they aren’t coming in for years, so we have lots of time to campaign for them to work for people with MS.

We won’t stop until Sativex is available across England

We’re calling for change from the remaining local health bodies who aren't yet routinely funding Sativex for eligible people with MS. You can support people living with MS to get this potentially life-changing treatment in a few short steps.

Northamptonshire MS Group meet with Disabilities Minister

Last week, members of our Northamptonshire Group met with their local MP Tom Pursglove MP. As Minister for Disabled People, Tom is responsible for disability policy in the UK Government.

We're calling on the Scottish Government to end the 20 metre rule

The Scottish Government is holding a consultation on the mobility component of ADP. Find out what we’re doing to end the 20 metre rule.

A new right to flexible working

New legislation will give employees the right to request flexible working from day one of their employment. Employers may only reject these requests if they have a credible reason for doing so.

What happened in 2022?

Thanks to your support we’ve made some incredible achievements this year, ranging from campaigns to fundraising to research. Let’s take a look at just some of the highlights of 2022.

Cost of living support is failing unpaid carers

Carers give vital support to people with MS. But they’re some of the hardest hit by the cost-of-living crisis. Read about what we’re calling on the UK Government to do and the ways we’re supporting carers.

This is a real crisis

I’m working, I’m not on benefits, but I’m still affected by the cost of living crisis. I’m also a gay man, and I think that matters. People in the LGBTQ+ community have a greater chance of bad healthcare experiences. So sometimes things feel even more challenging.

Our week in Westminster

With a new Prime Minister in place, we've been making sure the new Government know what support people with MS need. Join us as we look back at a busy week in UK Parliament.

I’m worried about what to cut next if costs increase

The rise in the cost of living has affected me in so many ways.

Speak to someone who knows MS

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