Community blogs, MS stories and more

Grab a cup of tea and read our community's real-life MS stories. Our bloggers write on all sorts of topics, from symptoms, catheters, and dating to their personal MS diagnosis stories.

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Browse our community blogs

Volunteering has been a real learning curve

Terri is Group Coordinator of our East Cumbria Group. She tells us about her enthusiasm for getting people into the great outdoors and why she shares her lived experience to influence service provision.

Rebuilding the Retford Group

Barbara shares some of the innovative and creative things her group has done to improve support for people with MS in the area. And how much fun they’ve had in the process!

MS research is my beacon of hope

Annabelle was diagnosed with relapsing remitting MS in 2011. She was the first person to join the first stage of a myelin repair trial we’re funding.

New treatments could help people live their best lives

Karine was diagnosed with primary progressive MS in 2013. She has been writing about her experiences and raising awareness of MS ever since. Karine is hopeful that progress in research will mean everyone with MS can live independent lives.

Stopping MS would improve all of our lives

Nikoma was diagnosed with relapsing remitting MS in 2018. He and his wife Simone are hopeful that new research will stop MS, and its knock-on effects on the whole family.

Outnumbered

Craig Watson from Falkirk, Scotland, lives with primary progressive MS. He’s often felt his type of MS is overlooked but is pleased to see things are starting to improve.

What to know about MS and pregnancy

Got questions about fertility, pregnancy, childbirth and MS? Consultant Neurologist, researcher and MS pregnancy expert Professor Ruth Dobson dives into your queries.

"If you can still do it, do it"

Kerry, who lives with secondary progressive MS, talks about her journey with cancer and other health issues over the last year – plus exciting news on the upcoming publication of her first book.

The Leicestershire MS support group getting Active Together

The We Are Undefeatable campaign helps people living with MS become more active. Here’s how it's helped one Leicestershire support group.

Black History Month: saluting Dr Mitzi Joi Williams, MS expert

The theme of this year’s Black History Month is Saluting Our Sisters. Roxy writes about neurologist Dr Mitzi Joi Williams.

10 tips to help with everyday costs 

We know the cost of living crisis is causing challenges for people affected by MS. Our MS Helpline Benefits Advisers have 10 tips that could help you manage your costs at home.

A Rugby-inspired cycling challenge to raise funds for MS Society

Ian’s Dad lives with MS, so he and his friend Ryan are teaming up on an extraordinary challenge to raise money to help those living with the condition.

PIP - 'It's a hassle, but there are ways to get over the hurdles'

There’s no doubt that for many people with MS, claiming PIP is a massive hassle. It might even feel overwhelming. But if you can get PIP (Personal Independence Payment) it’s extra money every week that you’re entitled to. And there are ways to make the task of claiming a bit more manageable.

You might be entitled to PIP

Lots of people who call us on the MS Helpline think they won’t be entitled to the benefit PIP - because they’re not ‘disabled enough’ or because no one helps to care for them. But PIP is actually for people who find it harder to do everyday activities because of their health condition. So of course that includes a lot of people with MS.

Introducing our Stakeholder Engagement Officers

Our Stakeholder Engagement Officer, Yvonne, talks to us about the work they do to improve health and social care services for people living with MS.

Volunteering has made me a more rounded person

Judy is Group Coordinator of our Borders Group. She tells us how they benefit from a supportive local community. And how campaigning can really make things happen.

Looking back on my life supporting others

Les reflects on his personal experience of living with, and supporting, those affected by MS for over more than forty years.

Cycling and my mental health

In this blog, Neil MacLeod talks about the benefits of cycling to his mental health while living with MS.

Thinking about HSCT? How, when and why it’s an option for MS

Neurologist Kate Petheram gives us her perspective on the MS disease modifying therapy haematopoietic stem cell transplantation (HSCT)

“Look for the door you can open”

Steve was diagnosed with MS in 1994. He stopped running in 2007, but recently decided to try it again. In this post, he talks about his great experience with the Couch to 5k programme.

Share your story

Just like MS, every MS story is unique.

We'd love to hear about your MS stories, from diagnosis to how you told loved ones and employers. Maybe you have found an interesting way to manage your symptoms or want to tell us about the challenges you have faced?

We're always on the look out for stories about life with MS to share with the community. So get in touch.

Share your MS story