Karine was diagnosed with primary progressive MS in 2013. She has been writing about her experiences and raising awareness of MS ever since. Karine is hopeful that progress in research will mean everyone with MS can live independent lives.
Primary progressive MS has a massive impact on my life, as well as on my wife, Sarah’s. Sarah can only work part time, as I need a lot of help with day-to-day life.
We try to stay positive and make sure we have some adventures to keep our spirits up.
Why new MS treatments are so important
Research is key to help improve the lives of people with MS. And in the future it could even prevent people from developing MS.
At the moment, there are only disease modifying therapies (DMTs) for a minority of people with progressive MS. It has taken time for this aspect of the condition to be understood and scientists are still exploring. A treatment that prevents or slows progression would help people like me live our best lives and maintain independence. This is important for physical health, but also for mental health.
That’s why I’m sharing my story. I want to raise awareness of the condition, to highlight the importance of research and to help others. If we all work together, we will be closer to ending MS.
The support of others make a huge difference
I have made a lot of friends with MS since my diagnosis in 2013 – those connections have helped both Sarah and I so much. There is a sense of community, we all understand the ups and downs and it really feels like you have a kindred spirit. The support among MS buddies is incredible as we all try to navigate the condition and live our lives.
It feels incredible to know that other people in the MS community are doing what they can to find life-changing treatments. These could help me and others with MS. I would like to say a massive thank you to those who have donated to fund research into MS.
For those people who are considering a donation this Christmas, please help improve lives. Your money will be used to find treatments and potentially stop this cruel condition from continuing.
Will you help us stop MS?
We’re making real progress in all areas of myelin repair research. Will you donate today to help us continue to build the connections between MS, its causes, and how we can stop it?