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Disease modifying drugs
Information for people considering the drugs in the Risk Sharing Scheme and how to manage common side effects.


Useful link

Reduced effectiveness
Read about the impact neutralising antibodies can have on Disease Modifying Drugs or Beta Interferons.



Disease modifying drugs

 
» Disease modifying drugs and the different types of MS
  • Are disease modifying drugs used to treat all types of MS?
  • How effective are disease modifying drugs over the long term, and are there long term side effects?
  • What effect do disease modifying drugs have on the different types of MS?


» What are disease modifying drugs and how are they available?
  • Are disease modifying drugs a cure for MS?
  • Which disease modifying drugs are available in the UK?
  • Are disease modifying drugs available on the NHS?
  • What is the 'Risk Sharing Scheme'?


» Who is eligible for disease modifying drugs under the Risk Sharing Scheme?
  • Do you have to satisfy certain criteria to be prescribed disease modifying drugs?
  • What are the criteria to start beta interferon treatment with relapsing remitting MS?
  • What are the criteria to start beta interferon treatment with secondary progressive MS?
  • What are the criteria to start treatment with glatiramer acetate?
  • How are relapses defined in the criteria for taking disease modifying drugs?


» Choosing which disease modifying drug to take
  • Are there any differences in effectiveness between the four disease modifying drugs in the Risk Sharing Scheme?
  • Should I be involved in choosing between the different drugs?



» How do I get prescribed disease modifying drugs?
  • How do I get a referral to a prescribing centre to get disease modifying drugs?
  • Who makes the decision to prescribe disease modifying drugs on the Risk Sharing Scheme?
  • Can I change from one type of disease modifying drug to another?


» Practical matters: storing and travelling with disease modifying drugs
  • Will disease modifying drugs get damaged if I take them with me when I travel?
  • How should you store disease modifying drugs?


» Pregnancy and breastfeeding, and disease modifying drugs
  • Can I take disease modifying drugs if I am pregnant or breastfeeding?


» Research into disease modifying drugs
  • Is there any research into new disease modifying drugs?


» Starting treatment with beta interferons or glatiramer acetate
  • At what stage of my MS should I start taking disease modifying drugs?


» Stopping disease modifying drugs
  • What are neutralising antibodies, and how do they affect taking disease modifying drugs?
  • Are there any reasons why I should stop taking disease modifying drugs?
  • Are there any reasons why a neurologist should stop prescribing the drugs?
  • Stopping disease modifying drugs because of side effects


» Taking disease modifying drugs
  • How do you take the drugs?
  • Will I be taught how to inject the drugs?
  • How often will I see specialists if I take disease modifying drugs?