Stories for people affected by MS, by people affected by MS.
MS is different for everyone - we hope this blog reflects this.
While MS brings with it various frankly unwelcome consequences, an unexpected side effect I’ve experienced is of losing my inhibitions. Well ... some of them!
Since the festive decorations are going up in town and Christmas adverts have started on the TV, I decided it was time I tackle my New Year's resolutions.
I only made three this year:
Ever since my wife Caryn and I settled into our new home in a small town in the wilds of West Kerry, we’ve been enveloped in a different way of life. I admit that the Ireland we shifted to in our heads is the country thirty of forty years back.
Last month I set myself a challenge to write a list of ten good things about having MS. I realise now that was ridiculous.
Adam is a 51-year-old civil servant, diagnosed with MS 20 years ago. He now has secondary progressive MS, and uses a wheelchair.
It’s the small things that cause me the most frustration. Like going down the stairs on my bum, only to realise on the bottom step that I’ve left my glasses on the bedside table.
Practice, so goes the saying, makes perfect. Well, for better than a dozen years I’ve been “practising” this living with MS thing… and I don’t think I’m very good at it yet.
My hospital has a wicked sense of humour. The MS clinic (Suite 16, honestly) is in the second furthest away room at the end of a very long corridor of clinics. I used to fume about this as I schlepped my way past 15 other clinics, muttering under my breath, ‘you wouldn’t want to have any mobility problems, eh?’
I’ve never really minded being called a dizzy blonde, although I should; labels tend to stick, and reputation is important, working as a freelancer. I have so many other labels that I do enjoy: poet, facilitator, creative writing tutor, artist, funny lady.