Community blog
Stories for people affected by MS, by people affected by MS.
MS is different for everyone - we hope this blog reflects this.
Latest entries
The internet has changed my life with MS
Posted on 14 May 2013 at 4:55PM by ChefTrevis
I met an old friend in Dublin for a pint at his local this week.
Waiting for remission
Posted on 09 May 2013 at 8:21AM by Annthepoet
I've been impressed by MS Week. I was also glad it was so easy to get involved, by adding a twibbon to social networking sites and signing the petition to stop the MS Lottery.
A Yank’s Life with MS: Giving back to the body of knowledge
Posted on 22 Apr 2013 at 4:31PM by ChefTrevisIt was important for me, after I had to leave my former career due to multiple sclerosis, to try to stay active and engaged in the community around me. So much of my former life seemed to be connected to “what I did” that it was a pretty tough transition for me.
A change in treatment plan: starting Tysabri
Posted on 08 Apr 2013 at 10:36AM by AnnthepoetMy MS seems to be at new level and it's time to consider disease modifying drugs. It's been a frustrating month, even if it hadn't been for all the snow. I haven't been able to drive my car or even walk on my own. Too much pain and numbness in my legs and feet and my balance is shot.
A journey: travelling across London by train
Posted on 26 Mar 2013 at 3:11PM by admin
I live in South London. Plan: visit my friends in Bow, taking my wheelchair with me.
Dad, MS and me
Posted on 26 Mar 2013 at 12:28PM by choochyThe one person who was firmly in my mind on the day I received my diagnosis of MS last year was my dad. Over three decades earlier, he died aged 35 from complications arising from his MS. We are bound by diagnosis but our situations could not be more different.
A Yank’s Life with MS: Multiple Sclerosis Pain
Posted on 20 Mar 2013 at 9:46AM by ChefTrevisThere may be no greater hidden and personally experienced symptom of multiple sclerosis than pain.
No one can experience it with us, others might not notice it (as they can weakness, speech issues, etc), and there's no obvious injury to which we can point and say, “It hurts because of that.”
MS: hard to fix
Posted on 12 Mar 2013 at 12:14PM by MikeCA
I was always taught to be grateful for what I had been given. It was only in later life that I realised that this goes for everything (not just food)! There is always a positive slant we can put on things, and it’s much healthier for us than than dwelling on the bad stuff.
Small achievements can make a big difference
Posted on 06 Mar 2013 at 5:20PM by AnnthepoetIt's a bit of a shock when you are suddenly not as mobile as you once were. You have to change your whole way of life. I used to thrive on speeding from one project to another and always running to a tight schedule.
One MS symptom I didn’t expect: guilt
Posted on 01 Mar 2013 at 2:48PM by ChefTrevisCategories
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