Community blog

Dave is 41 and was diagnosed with relapsing remitting MS in 1995. He worked for many years as a manufacturing manager / external sales manager. He tells us why he thinks the ESA system is not fit for purpose.

MS means you quickly work out who your friends are. 

I’m not counting your family members who have a duty to understand as best they can, and ‘be there’ for you whenever possible. No, they have little choice (like it or not). 

I have to confess that I feel a bit of a fraud writing this. Oh, I have multiple sclerosis, but not so as you’d notice. If we met on the street, or you had to pick me out of a line up, you wouldn’t pick me as the woman with MS.

There are three things that annoy me about having Primary Progressive MS. The first one is obvious: it's annoying to struggle to get around, to be very very slowly losing the use of my legs. The second one is a detail: I hate it when people refer to my wheelchair as a 'chair'.