Community blog

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Stories for people affected by MS, by people affected by MS. MS is different for everyone - we hope this blog reflects this.

Latest entries

Turning addiction into art – 468 shades of Rebif

A few weeks ago I forgot my Rebif (interferon beta-1a) shot for the first time in three years.

It felt a bit dramatic – like I might have a relapse before I could get home and take it again. I was so used to my Rebif routine that it had become an addiction.

I suddenly felt light-headed, but the drama ended as soon as the liquid crawled under my skin.

The heat is on: staying cool with MS

The temperature is rising, and while the rest of the UK bask in the sun, people with MS can find their symptoms feel worse. 

We asked MS bloggers to tell us how they cope with the heat - use the comments section below to tell us how you fare when the weather gets warm.  

The Brexit of my body

Trevis and his dog

A large portion – if only a slight majority – of my body decided it didn’t want to be a part of a tenuous union over the past decade and a half, so I understand Brexit better than many of my American countrymen.

10 things festival goers with MS need to know

Claire at T in the Park

I love festivals. Nothing quite beats standing in a field with several thousand others, watching your favourite band and hearing rousing renditions of your favourite songs.  I won't ever forget how close I was to Metallica at Sonisphere a couple of years ago!

Making changes to my medication

I didn't realise how blurry my vision was until I could see clearly again. I feel more in tune with my body and even though it's become more obese and clumsy, it's so much better than it was last year. Also most of the time my legs work OK, as long as I don't overdo it. I have so much to be thankful for.

The summer solstice and trouble sleeping

Karine

I don’t know about you, but I feel strange going to bed when it’s daylight. Even when it is 11pm and my eyes are gritty and heavy, at this time of light nights, I feel like I am being lazy.

Coming up roses at the Chelsea Flower Show

Lorna at the Chelsea Flower Show

How Dad and I are both living with MS

Ben and his dad

Crotch-less suspender tights have changed my life.

Gone are the days of struggling to pull up my tights after going to the toilet. No longer do I swing one-handed off a grab-rail as I fight with the obtuse item of clothing, intermittently crashing back down onto the loo. 

How many kinds of sweet flowers grow in Dawn's accessible country garden?

More and more evidence is building about the value of gardening for people with MS, and now summer’s arrived it’s a good chance to spend time doing just that. We spoke to Dawn to find about more about her special garden and how it helps her manage her MS.

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