We need action on medicinal cannabis now
In recent months, we’ve heard from hundreds of people with MS who've told us medicinal cannabis is the only way they can treat their painful symptoms.
Our Head of Campaigns and External Relations stood with families of children with epilepsy to send a message to the Prime Minister: we must remove the barriers to accessing cannabis medicines.
Why are we campaigning on cannabis?
We know there are up to 10,000 people across the UK who could benefit from these medicinal cannabis. But to our knowledge no one with MS has yet benefited from last November's change in the law.
It means many people with MS are being driven to break the law to source illegal forms of cannabis, which is unregulated and dangerous. Smoking cannabis with tobacco in particular can speed up the progress of someone’s MS.
I'm doing something that I never in a million years thought I’d do. I've had to sit my children down to tell them why I'm smoking cannabis – all this because the NHS won’t make Sativex available. There aren't many options out there for people with primary progressive MS.
Lisa, 40, living with primary progressive MS
What do we want?
Last week we told NICE we disagree with their recommendation not to approve the routine use of Sativex for spasticity on the NHS.
We want the Government to:
- work with drug companies to lower the price of Sativex so that it can be available on the NHS.
- secure funding for further research into the sue of cannabis-based medical products
- set up a managed access scheme - where people with MS are given free cannabis-based medicinal products in exchange for taking part in research trials.
Share your story
Do you or someone you care for have experience trying to access cannabis-based medicines for MS?