Photo: Men talking outside

Mind the gap - getting care and services research to the clinic

It can sometimes take years for research findings to be rolled out. The gap between clinical trials and the clinic means that people often miss out on services that were developed with them in mind.

We want to make sure that everyone has access to the therapies, services and support that are right for them. And we’re working hard to make sure that happens.

Managing MS fatigue effectively

‘FACETS’ is a group-based fatigue management programme for people with MS. FACETS stands for Fatigue: Applying Cognitive behavioural and Energy effectiveness Techniques to lifeStyle.

During the programme, people learn strategies to help them manage their energy levels more effectively and explore different ways of thinking about fatigue.

The programme was shown to reduce fatigue and improve quality of life for people with MS in a 2013 trial we funded.

Since then we’ve supported the research team to roll out FACETS, via training days for health care professionals so they can deliver the programme in their practices.

Over 200 health professionals have been trained so far. And a recent survey suggested that more than 1,500 people with MS have already attended a FACETS programme.

Dr Sarah Thomas, who developed the programme, said “One of the most rewarding aspects of carrying out this work has been seeing FACETS rolled out into clinics and, we hope, making a difference to people’s lives.”

Speak to your MS nurse or local group about your nearest FACETS course.

Spreading the word about research

We want to make sure that this success continues. That’s why our researchers are investigating the best way to share research results with health care professionals.

We’re funding a PhD project linked to a cognitive rehabilitation programme that’s being developed, called CRAMMS (Cognitive Rehabilitation for Attention and Memory in people with MS).

The programme uses a variety of memory aids to help people with MS who are experiencing problems with memory and attention. Right now researchers are testing the benefits of the programme in a UK-based clinical trial.

As part of the project, our researcher will chat with MS nurses and neurologists to understand what information they would like to see about programmes like CRAMMS. This will make it as easy as possible for health care professionals to use the techniques in their own clinics.

We want to use this research to ensure that everyone who could benefit from programmes like CRAMMS can access them.