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How can we best support people when they are first diagnosed with MS?

Image shows an MS health care practitioner with a patient
Lead researcher:
Professor Roshan das Nair
Based at:
University of Nottingham
MS Society funding:
£172,251
Status:
Complete

About the project

An MS diagnosis can be extremely stressful for everyone involved. We know some programmes have been developed to support people through the diagnosis, but these haven’t been fully evaluated and are not routinely offered on the NHS. We want to develop and test a programme that can support people through their MS diagnosis. To do this, our researchers will first review the evidence on:

  • how people adjust to an MS diagnosis
  • the views and experiences of people who are newly diagnosed or currently being diagnosed.

They will use this knowledge to develop an emotional support programme. Our researchers will work with people with MS, carers, our volunteers and health professionals to ensure the programme meets the needs of people with MS and is delivered in the best way. Researchers will then test the benefits of the programme in a randomised controlled trial.

How will it help people with MS?

This research could help to make that everyone gets the emotional support they need during an MS diagnosis.

The difference you can make

You can help us to improve services and support for people with MS.