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Helping people with advanced MS plan for the future

researcher Jonathan Koffman
Lead researcher:
Dr Jonathan Koffman
Based at:
King's College London
MS Society funding:
£124,487
Status:
Complete

About the project

Advance Care Planning (ACP) helps people with long term conditions like MS reduce uncertainty and take control of decisions about their future care. It's been shown to give people living with progressive conditions a better quality of life and help their families.

Jonathan’s team will find out which aspects of ACP are most important to people with MS and their families. They'll conduct interviews with people affected by MS and discuss ACP with health and social care professionals. Their focus is on how carers can sensitively discuss ACP with people living with MS.

The ultimate goal will be to work alongside people living with MS to develop educational resources about ACP, to help and empower others living with the condition.

How will it help people with MS?

Living with MS can bring great uncertainty about the future, which some people with MS find distressing. This project will help improve the quality of care people with MS receive, and help them to take control of decisions about their future.

The difference you can make

We want everyone with MS to have access to the treatments they need to live well with MS. With your help, we can continue to support vital research like this.