Helping people with advanced MS plan for the future

researcher Jonathan Koffman

Lead researcher: Dr Jonathan Koffman

Based at: King's College London

MS Society funding: £125,487

Status: Active

About the project

Advance Care Planning (ACP) helps people with long term conditions like MS reduce uncertainty and take control of decisions about their future care. It's been shown to give people living with progressive conditions a better quality of life and help their families.

Jonathan’s team will find out which aspects of ACP are most important to people with MS and their families. They'll conduct interviews with people affected by MS and discuss ACP with health and social care professionals. Their focus is on how carers can sensitively discuss ACP with people living with MS.

The ultimate goal will be to work alongside people living with MS to develop educational resources about ACP, to help and empower others living with the condition.

How will it help people with MS?

Living with MS can bring great uncertainty about the future, which some people with MS find distressing. This project will help improve the quality of care people with MS receive, and help them to take control of decisions about their future.

The difference you can make

We want everyone with MS to have access to the treatments they need to live well with MS. With your help, we can continue to support vital research like this.

The next research breakthrough is in reach

Your donation will help stop MS.

  • Please enter an amount

    Our minimum donation is £2, please enter a different amount.

£10could buy vital lab supplies for MS researchers, helping them find ways to stop MS faster

£20could pay for lab equipment like petri dishes to grow bacteria important for studying the genetics of MS

£30could process one blood sample, giving us crucial information about genes that could lead to treatment breakthroughs

Every penny you give really does take us a step closer to stopping MS. Your donation will make a difference.

  • Please enter an amount

    Our minimum donation is £2, please enter a different amount.

£10a month could pay for lab equipment like microscope slides to study the building blocks of MS

£20a month could pay for lab equipment like petri dishes to grow bacteria important for studying genetics

£30a month could process a blood sample to help us understand what causes MS, so we can stop it in its tracks

Your regular donation means we can keep funding world class MS research with confidence. Together we will stop MS.

Photo: young girl with MS sits in hospital chair smiling at male nurse