Northern Ireland National Council
The Council is responsible for MS Society Northern Ireland’s strategy, and is accountable to the Society’s UK Board of Trustees.
The Council works alongside the staff team in Northern Ireland, as well as local MS Society branches. Together we can beat MS. Meet the council members:
- Siobhan Allister
- Iain Crosbie
- Pat Crossley
- Ivan Prue
- Peter Eakin (Chair)
- Tom Hunter
- Naomi O’Loughlin
- Janet Williamson
- Catherine Doran
- Peter McReynolds
- Greta Gurklyte
- Theresa Leavy
I am 52 years of age and have been married to Stephen for 26 years; we have two children, Daniel (23) and Ben (18).
I have lived with MS for four years. After diagnosis, I was grateful for the reliable and up-to-date information provided by the MS Society. The Society’s strength lies in its volunteers who are united by a common aim: to beat MS.
In my role as a volunteer at branch level, I am aware of the importance of remaining active within the community in order to avoid isolation. Living with MS can be difficult, however I feel it is vital to encourage people to seize every opportunity to enjoy life, not just to endure it.
My vision is that the Northern Ireland Council continues to influence decision makers and to campaign and promote more access to MS specialists, access to MS medicines and provide carers with an annual carers' assessment.
A key message I observed at the annual meeting was a need for communication, lobbying and local support. This is something that resonated with me as I am an effective communicator and have lobbied with the Director of the Society at Stormont for local services. I know lobbying locally about local issues is a major challenge, given austerity measures and proposed changes to Disability Living Allowance.
I was diagnosed with MS in 2004. In my working life I was a senior project manager for a large multinational company and worked in Europe and North America until my medical retirement in 2009. I feel my skills in managing diverse, multicultural and multilingual projects have some relevance to the council activities, as do my knowledge and understanding of governance and compliance issues. Together with other MS Society members, I was instrumental in setting up the Belfast Branch and chaired for 2 terms. I have experienced dealing with newly diagnosed colleagues.
I also have been with the national MS Society Research Network since 2005,and have reviewed numerous grant proposal applications. Since 2009, I have been with the Research Network Steering Committee which is both rewarding and challenging. Becoming a Council member would be a privilege.
I have been Secretary/Support Officer of the Ballymoney branch for almost 30 years and am aware of the day-to-day needs of people affected by MS.
I do my best to raise awareness of MS - fundraising and speaking. I did a parachute jump which raised over £9,000.
I endeavour to build relationships with politicians, emphasising the need for services for people affected by MS. My involvement on various boards ensures I keep up-to-date with charity law and provides valuable contacts.
I was a hospital medical records officer, retired to become a full-time mum and now enjoy a fulfilling active retirement!
I am 42 years old, and have an aggressive remitting relapsing form of MS. I was officially diagnosed in 2009. It was a hard pill to swallow because all I could think of was the negative side and images of the disease.
I am passionate about raising awareness amongst newly diagnosed young persons and their families and everyone who meets me. My passion is exercise, keeping fit and enjoying life. It is infectious! I am fortunate that I can still do the things that I enjoy and will hopefully bring a ‘fresh’ approach to the council! It was a real honour for me to be offered the opportunity to be co-opted into the Northern Ireland Council. I want to reach out and help young folk and their families who are living with MS in some way. Hopefully I can progress new skills that I am learning in the counselling course that I am attending.
Whilst chatting to a young MSer recently at an event, three words came up in conversation: improvise, adapt, overcome. These have stuck with me. In fact, they are printed on the back of my MS Society running vest, striving to be as positive and upbeat as possible. Life is for living and for making the most of what we can do with it.
I got involved with the MS Society 15 years ago, as a committee member with the Foyle branch. I'll admit that I didn't know much about MS at the time.
Over the years, I became more involved with our branch, and I've been Chair for the last six years. We have a wonderfully active group of volunteers who make a great difference to people affected by MS.
I know there is a big job to do, and I enjoy that challenge. We've got to keep the most important aspect of our work in mind - that we're here to help everyone affected by MS.
Firstly, I would say that it would be an honour if I was chosen to be a council member. I have relapsing remitting MS and I see the Society as a family, that not only supports me, but is there to support everyone affected by MS; ranging from those who have the condition, to family members and carers.
The main thing that I have taken from the MS Society is that I have not been shown sympathy or pity, but empathy, and this is something that I would hopefully build upon and be able to show to others. I was working as a broker in London when I started to feel the effects of my MS and after my return to Northern Ireland in 2006, for a less stressful life, I had a major relapse that led me to being diagnosed in 2008.
I have been fortunate that my business experience has enabled me to develop a skill set that the MS Society is looking for in a council member. I have now trained as a counsellor and volunteer for the MS Society two days a week offering counseling to a range of people affected by MS.
I am 32, married, and a mum to two boys - Ryan (nine) and Kieran (eight). I studied molecular biosciences and worked in microbial research for a brief period. I was diagnosed with relapsing remitting MS six years ago and I became involved with Foyle MS Society a year later. I am currently Vice Chair of Foyle MS Society, and served last year as Chair.
I am extremely passionate about our MS Society and I believe I have a lot to contribute in ideas and experience. Whilst everyone’s MS is unique, we all have similar issues and concerns such as family, relationships and career. We all have the ‘right to a full life’."
I was diagnosed with MS 10 years ago. During my struggle to accept my diagnosis my local branch were extremely supportive, and as a result I became involved in the Newry Branch.
I have represented the branch as Chair for the last five years, during which we have established an office base providing information and support to those affected by MS. During this time we have tirelessly raised money to establish services including weekly art and yoga classes. These classes are not only aimed at improving the self confidence of people with MS but to try to prevent social isolation.
I am married with two children and a grandchild. My family have been a great source of support to me over the last 10 years and have been very proactive in helping with fundraising for the Society.
My relationship with the MS Society started long before my own diagnosis, as I previously reported on their work through my job as a journalist with the Derry Journal.
Diagnosed with relapsing remitting MS in March 2009, I continue to use my skills as a writer to report on the work of the charity and to engage with others in the MS community. I have also given a number of public speeches about the charity's work, as well as sharing my own personal story.
I am incredibly passionate about the work the MS Society does and the wide remit that it covers, especially its research work. As a member of the Foyle Branch, I am a huge advocate of keeping in touch with others living locally with MS. As a young woman I try and engage with others who may need help coming to terms with their diagnosis. As I am still quite young (32) I have an affinity with those who have just been newly diagnosed and fundraise for the charity on a regular basis, hosting Cake Breaks and other events at my home.
On a personal level, I am married to Joe and we have two young daughters, Charlotte and Lucy. I also have a blog - www.alifecopingwithms.blogspot.com - and continually keep in touch with others affected by MS on Twitter - @catdoran
I was diagnosed with Multiple Sclerosis at 26, but like so many of you will relate, I have probably had the condition much longer. I estimate my first relapse at the age of 18.
My background is within human rights law and politics and I currently work for a well known politician in Belfast. This role is with the public on their behalf and I wish to use the skills of research, lobbying and advocacy to take the views and sentiments of those affected with MS to the highest level.
I stood for the NI Council to ensure those living with MS are represented and have access to best treatments. Moreover, I want to ensure their families are provided with all the support necessary.
In addition, I want to change the common perception of MS and increase the general public’s knowledge. Through doing this, there are significant opportunities to boost the NI Council and increase its reach in Northern Ireland.
The NI Council has done a fantastic job up until now and I wish to build on its fantastic achievements for many years to come.
After being diagnosed with MS in 2009, I got to experience first hand the care and support provided to people living with MS. It also brought up a lot of questions regarding my future and how others live with this disabling condition.
Diagnosis was difficult to deal with and it took me sometime to fully understand the impact it would have on my life. This journey has given me passion and also helped me identify where I feel work is needed to be done to help people transition and adjust to their diagnosis.
Before coming to the UK I completed a Law degree in Lithuania which helped me to develop a number of key skills which still serve me today, working to deadlines and working as part of a team.
I believe that my experiences since 2009 have equipped me to help and represent people with MS on the council. I have a strong appreciation for the work the MS Society carries out and I don’t feel I would be where I am today without them. I want to contribute to the work the organisation carries out and ensure everyone gets the opportunities I have had.
I have two daughters - Melissa and Kiera. Melissa was diagnosed with MS in 2012 at 12 and wants a cure before she is 35.
As a parent you do all you can to protect your children from pain and suffering. I can't take MS from Melissa, but I can and will fundraise, volunteer and raise awareness.
I am a very positive person and my motto in life is 'PMA' - Positive Mental Attitude. We are grateful for an early diagnosis. We are grateful for NHS - if we lived in ROI or USA could we afford treatment?
After diagnosis I didn't know where to turn. I googled 'children with MS' - with little success. I contacted two MS charities and the only one to reply was MS Society. This is where my loyalty lies. First impressions mean a lot to me.
Melissa relapsed six times within the first 18 months. Since 2012 we have raised over £7,500, appeared on Radio Ulster Appeal for MS Society and Melissa has won MS Society Young Person of the year 2014 and Daily Mirrors Hero of Youth Award for Fundraiser of the year.
Want to get involved in the MS Society? Become a member today.
Got a question about how we're run? Get in touch at firstname.lastname@example.org.