Community blog

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Stories for people affected by MS, by people affected by MS. MS is different for everyone - we hope this blog reflects this.

Latest entries

Carer of the Year winner Zena tells us why caring matters to her

Zena Nicolaou, 26, won Carer of the Year at the 2016 MS Awards earlier this year for her dedication to caring for her mother Niki.

Zena undertakes most of the household chores for her mother such as cooking and cleaning and helps her wash, do her hair as well as reading to her. She’s also helped Niki raise awareness of MS in the Greek community.

Olivia's dream came true when she met her hero

I’m Olivia, I’m 14 and I’ve been caring for my mother, who has MS, for the past six years. I am always on the go. If I’m not at home, I’m either at school or at work earning money to save for when we need it most. 

We are a single-parent family. Mum, my two brothers and I are all very closely connected. We have strong family ties, partly down to MS. 

Caring is the best job I’ve ever had!

Richard Collins is married to Janis Winehouse and is her full-time carer. He tells us about the challenges and highlights of a relationship where MS often dictates the schedule.

When Jan and I first got together seven years ago, she was driving. Jan would go out, do her shopping and was still working as a locum pharmacist.

How many kinds of sweet flowers grow in Dawn's accessible country garden?

More and more evidence is building about the value of gardening for people with MS, and now summer’s arrived it’s a good chance to spend time doing just that. We spoke to Dawn to find about more about her special garden and how it helps her manage her MS.

Musical stories magnificently sung

Sometimes you have to use the skills you already have, but put them to use in a way you may not have initially envisaged. The “Ms. A Song Cycle” album is fantastic example.

The album was conceived by lyricist Rory Sherman who knows well how MS can affect women - his mum and sister both have MS. The album will raise money for the MS Society and awareness about MS. 

Superstar Katie's weighty challenge

In September 2014, Katie decided she would honour her aunt and three other family members, who’d lived with MS, with an amazing show of strength. She pledged to lift 1kg for every person in the UK with MS over the month. All 100,000 of them. 

Anxiety and emotional perfectionism

When we feel anxious, panicky or constantly worried, we are responding to a sense of fear that something awful is about to happen. Once you begin to feel anxious, your thoughts and feelings snowball and can lead to a vicious cycle. 

The power of sharing my MS story

When I sat down to write about my experience with MS, I didn’t really think about it ever being published. I didn’t really think at all - I was in the middle of writing a completely different story, and I just diverged to write down a couple of thoughts. 

My virtual visit to a live event

Sometimes MS gets in the way of attending events. I’m so tired from the journey it’s hard to enjoy it. I’m lucky we have the brilliant Brewery Arts Centre in Kendal and the local pubs have good bands on too, but sometimes I feel like I’m missing out. 

A film about MS - Mod scooters and multiple sclerosis

Writer, director and artist Devlin Crow’s upcoming short film, Being, stems from his personal experience of MS and his affinity with sixties culture. Devlin has worked on award-winning productions for over 20 years and shares his experience below.

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