Community blog

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Stories for people affected by MS, by people affected by MS. MS is different for everyone - we hope this blog reflects this.

Latest entries

Superstar Katie's weighty challenge

In September 2014, Katie decided she would honour her aunt and three other family members, who’d lived with MS, with an amazing show of strength. She pledged to lift 1kg for every person in the UK with MS over the month. All 100,000 of them. 

Anxiety and emotional perfectionism

When we feel anxious, panicky or constantly worried, we are responding to a sense of fear that something awful is about to happen. Once you begin to feel anxious, your thoughts and feelings snowball and can lead to a vicious cycle. 

The power of sharing my MS story

When I sat down to write about my experience with MS, I didn’t really think about it ever being published. I didn’t really think at all - I was in the middle of writing a completely different story, and I just diverged to write down a couple of thoughts. 

My virtual visit to a live event

Sometimes MS gets in the way of attending events. I’m so tired from the journey it’s hard to enjoy it. I’m lucky we have the brilliant Brewery Arts Centre in Kendal and the local pubs have good bands on too, but sometimes I feel like I’m missing out. 

A film about MS - Mod scooters and multiple sclerosis

Writer, director and artist Devlin Crow’s upcoming short film, Being, stems from his personal experience of MS and his affinity with sixties culture. Devlin has worked on award-winning productions for over 20 years and shares his experience below.

Am I Father Ted or have I become Father Jack?

The adventures of Fathers Ted, Jack and Dougal, Catholic priests on Craggy Island off the coast of Ireland, entertained millions of viewers in the mid-90s TV series Father Ted. So it was a bit of tragic poetry that Frank Kelly (Father Jack) passed away recently, 18 years to the day since his co-star Dermot Morgan (Father Ted).

Laura and MS: Opening doors with dance on Disabled Access Day

Laura Dajao is a freelance integrated dance artist who has MS. 

Recently she worked with established dancer, choreographer and b-boy Mickael Marso Riviere on Adaption, a short film commissioned by People Dancing. Adaption is part of a series of six films that focus on dance by, with and for deaf and disabled people. 

How mum's poem opened my eyes to her MS

As a child I never realised mum had MS. I remember never being able to understand why she couldn’t take part in the race for parents on my school sports days or horseback ride with me. I never thought much about it because she always made sure I saw her watching and cheering me on from the side. 

Rat's what friends are for

Ten months after my MS diagnosis, I split up with my husband. It was a tough time, but I was incredibly touched by the outpouring of offers of help from family and friends that followed - “If there's anything we can do, please let us know.”

Caring for yourself

If you’re caring for a partner with MS, you’ll have noticed how the spotlight tends to be on them.

Medical professionals, friends, and relatives may begin conversations with ‘how are they doing?’, while you may be quietly fuming or grieving. When others do acknowledge your needs, this may often simply be ‘remember to look after yourself – bye, now!’ 

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