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Stories for people affected by MS, by people affected by MS. MS is different for everyone - we hope this blog reflects this.

Latest entries

Having a visible then invisible disability

I've never been a big fan of mirrors. I used to actively avoid them when I was a teenager and young adult. I didn't like how I looked and I just didn't like myself enough. Things got a lot better in my late twenties and now, approaching my forties, I look at photos of twenty-year-old me and think I looked ok.

When everything is buzzing

AnnMy body is buzzing. 

This isn't street lingo for saying I look hot (I really don't). You'll know what I mean if your body buzzes, too. Well, I hope you don't but also I hope some of you do. To be honest, I know I'm not alone with this but sometimes it makes me feel lonely.

Good advice from Andy Murray

AnnI’m watching the tennis. Andy Murray has a note to remind himself ‘Be kind to yourself’.

I’m sad that I can’t take part in my favourite sport anymore. My black belt taekwondo uniform hangs on the bedroom door, I put it there to remind me I am a warrior.

Emotional barriers and MS

Shana using her mobility scooter beside Brighton beach

Last month I went to the European MS Platform Youth Congress in Poland.

Twenty younger people with MS from across Europe came together to talk about issues facing young people with MS. Issues like employment, advocacy, political campaigning and identity.

Sharing, caring and getting a grip

AnnToday is a good day, the sun is shining and people are smiling. I used to think I was very grateful but my gratitude has reached a new level. I'm now grateful if I don't wee myself coughing.

I can’t recall what I’ve forgotten: memory and MS

Trevis with a white dog sat on his lapThe havoc that multiple sclerosis causes to the body can be matched (or exceeded) by the frustrations is brings to the mind.

Coordinating care: Trevor's story

Trevor

We were an average family: me, my 30 year old wife and two young children. Then my wife was diagnosed with MS.

The reality of the drastic lifestyle choices we needed to make hit me: my wife’s salary was gone, and we needed to move house, as stairs were out of the question. And a million questions flooded my head.  

Gardening and MS: forgetting my worries

HelenTwo magpies stride across the lawn, chests puffed out as they strut. Two for joy.

And this garden has indeed brought me happiness. I forget about myself – MS included - when I garden. Nerve damage? Pah. Never enters my head. Not once. Good, isn’t it? My head – finally - gets some time off from all that worrying.

Misunderstandings

Chris on a London Underground trainMisunderstandings are becoming burdensome. I encounter them every day.

5 tips for coping with an MS diagnosis

Tasha and her friend Lee-Ann by the River Thames, in front of Tower BridgeNot feeling ‘quite right’ is probably something a lot of us with MS can understand.

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