I've never been a big fan of mirrors. I used to actively avoid them when I was a teenager and young adult. I didn't like how I looked and I just didn't like myself enough. Things got a lot better in my late twenties and now, approaching my forties, I look at photos of twenty-year-old me and think I looked ok.
My body is buzzing.
This isn't street lingo for saying I look hot (I really don't). You'll know what I mean if your body buzzes, too. Well, I hope you don't but also I hope some of you do. To be honest, I know I'm not alone with this but sometimes it makes me feel lonely.
I’m watching the tennis. Andy Murray has a note to remind himself ‘Be kind to yourself’.
I’m sad that I can’t take part in my favourite sport anymore. My black belt taekwondo uniform hangs on the bedroom door, I put it there to remind me I am a warrior.
Last month I went to the European MS Platform Youth Congress in Poland.
Twenty younger people with MS from across Europe came together to talk about issues facing young people with MS. Issues like employment, advocacy, political campaigning and identity.
Today is a good day, the sun is shining and people are smiling. I used to think I was very grateful but my gratitude has reached a new level. I'm now grateful if I don't wee myself coughing.
The havoc that multiple sclerosis causes to the body can be matched (or exceeded) by the frustrations is brings to the mind.
We were an average family: me, my 30 year old wife and two young children. Then my wife was diagnosed with MS.
The reality of the drastic lifestyle choices we needed to make hit me: my wife’s salary was gone, and we needed to move house, as stairs were out of the question. And a million questions flooded my head.
Two magpies stride across the lawn, chests puffed out as they strut. Two for joy.
And this garden has indeed brought me happiness. I forget about myself – MS included - when I garden. Nerve damage? Pah. Never enters my head. Not once. Good, isn’t it? My head – finally - gets some time off from all that worrying.
Misunderstandings are becoming burdensome. I encounter them every day.
Not feeling ‘quite right’ is probably something a lot of us with MS can understand.