Community blog

Stories for people affected by MS, by people affected by MS.

MS is different for everyone - we hope this blog reflects this.

Latest entries

Feeling the impact of good (and not-so-good) health care

Helen standing outside, with hills in the background2004

"Yes, modern life. So tiring," says the doctor. She sighs. She doesn’t look at me. I wonder if I am wasting her time. Maybe it was a mistake to come here. And I have taken time off work for the purpose too. Perhaps I am indeed just a malingerer. Exactly what the good doctor appears to suspect.

Counselling and self-help

Two people talk

Clinical neuropsychologist Dr Annie Hickox answers your questions about the emotional or psychological effects of MS, from anxiety to sleep problems. The second is about managing stress. 

Giving myself a break: Deirdre's story

About 10 years ago, when I was 33, I suffered with various MS symptoms. After numerous tests over about 3 years I finally got a definite diagnosis.

Deirdre, her husband and her two sons

Finally finding part time work

AnnAfter two years of trying I finally got a part-time job.

It’s perfect, two days a week. Better than that, it’s at my local arts venue where I’m used to working as a freelancer and it’s one of my favourite places to relax. 

Facing my demons

HelenI didn't think I would ever ride a bike again. Me? No way. Not after being diagnosed with MS last summer.

​The People’s Strictly: Trishna's story

Trishna Bharadia and Aljaz Scorjanec post while filming the People's StrictlyHow do I describe the best experience of my life when it’s also taken every single bit of energy out of me?

Run aground

Depression and emotional symptoms of MS often go undiagnosed.

I think I am depressed – and, I think I know why. For the past couple of months my condition has been deteriorating. This morning I am unable to wash myself or hold the electric toothbrush steady with both hands. My feet, fingers and legs feel like they have been given a numbing injection from the dentist. They ache all the time.

MS and work: dismantling barriers

Shana using her mobility scooter beside Brighton beachMy doctor peered at me over his half-moon glasses. “I am signing you off work”, he said gravely. “You have to sell your business and you have to stop. You know that.”

Love and multiple sclerosis

Trevis sat with a white dogFor a good long time now, I’ve taken one month every year to go off the drink (for health reasons, for self-reflective reasons, and simply to make sure that I could).

Maybe this will remind me

AnnSomething is wrong, my legs feel weaker than usual. I woke in the night having a spasm in my leg. I spent most of yesterday resting so I know I haven't done too much.

I check my pill box. Last night's pills are still there. 

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