Community blog


Stories for people affected by MS, by people affected by MS. MS is different for everyone - we hope this blog reflects this.

Latest entries

My fifth anniversary with MS

This year will mark five years since I was diagnosed with MS. During that time I’ve laughed, cried and been terrified. But here I am, ready to celebrate my fifth year with the illness, and despite everything I am happy.

Why I love gardening by Tony Johnstone

As a kid living in Zimbabwe, I never understood my mother’s passion for gardening. My only interest in her flowers was to see if I could shoot the heads off her dahlias with my air-rifle! Sorry mum.

While waiting for furniture to arrive in our own first home, I thought the garden could do with some tidying. So I went to the local hardware store to buy the basics like a spade, rake and some hand tools.

How stand up comedy helped me to deal with MS

I firmly believe that you can learn lessons from everything in life. In my twenties I pursued a career in stand up comedy. I had some success but in the end realised I just wasn't that funny.

I was awarded a Millennium Achievement Award to help me to bring more stand up to my hometown Barrow-in-Furness. I was successful in that, as a group of locals took part in a stand up course and were hilarious.

Sticking it to disability by Tim Ferguson

Speaking from experience, I can tell you that a physical disability can be a pain. But the devices available to help disabled people (like me) get around can have surprising benefits.

I’m a person with MS. Neurologists have no idea what causes MS, but they’re paid well because they know what they don’t know better than anyone else.

Three ways to cope with an MS diagnosis

Have you just been diagnosed with MS? Are you wondering what happens now? I was diagnosed this January. Here is my three step guide to making your diagnosis a little easier to deal with…

Turning addiction into art – 468 shades of Rebif

A few weeks ago I forgot my Rebif (interferon beta-1a) shot for the first time in three years.

It felt a bit dramatic – like I might have a relapse before I could get home and take it again. I was so used to my Rebif routine that it had become an addiction.

I suddenly felt light-headed, but the drama ended as soon as the liquid crawled under my skin.

The heat is on: staying cool with MS

The temperature is rising, and while the rest of the UK bask in the sun, people with MS can find their symptoms feel worse. 

We asked MS bloggers to tell us how they cope with the heat - use the comments section below to tell us how you fare when the weather gets warm.  

The Brexit of my body

Trevis and his dog

A large portion – if only a slight majority – of my body decided it didn’t want to be a part of a tenuous union over the past decade and a half, so I understand Brexit better than many of my American countrymen.

10 things festival goers with MS need to know

Claire at T in the Park

I love festivals. Nothing quite beats standing in a field with several thousand others, watching your favourite band and hearing rousing renditions of your favourite songs.  I won't ever forget how close I was to Metallica at Sonisphere a couple of years ago!

Making changes to my medication

I didn't realise how blurry my vision was until I could see clearly again. I feel more in tune with my body and even though it's become more obese and clumsy, it's so much better than it was last year. Also most of the time my legs work OK, as long as I don't overdo it. I have so much to be thankful for.

What's new?