Community blog

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Stories for people affected by MS, by people affected by MS. MS is different for everyone - we hope this blog reflects this.

Latest entries

Me and my MS nurse: Tomas and Anneka

Anneka and Tomas

After his MS diagnosis, Tomas was nervous about starting treatment - but his MS nurse Anneka gave him confidence.

Dealing with being stared at when I'm using my scooter

Shana being stared at for using my scooter for World Smile Day

“Writing poetry helps me stay positive”

Ann performing poetry

I’m writing this post for National Poetry Day. It’s a day when people all over the country will be reading, writing, watching or listening to poems. I love the fact we have a National Poetry Day because writing poems and performing them is one of my favourite things to do.

How pole fitness classes got me back into exercise

Claire shows a pole fitness move

I always enjoyed going to the gym and keeping fit. Going to classes with friends at the weekend and after work was a regular and fun part of my life. Then I developed MS and the symptoms affected my walking, coordination and balance.

Telling friends and family about MS

Emma

I was diagnosed with MS in 2013, two weeks after my wedding and six weeks before conceiving my first baby. It  was a period of mixed blessings.

“Social care helps keep mum independent”: Sue’s story

Alison supports her mum Sue who’s in her seventies and living with MS. She tells us how important it is to have control over her mum’s care and the challenges they face as a family.

Why I’ll be cheering the wheelchair rugby squads at the Paralympics

Debra plays wheelchair rugby aka murderball

MS left me feeling sad and frustrated until my physio introduced me to wheelchair rugby.

The first sign of MS was when my face went numb. It happened back in 2010, on my way home from university. After a whirlwind of doctors, hospitals, MRI's and intense emotions, I was diagnosed with relapsing remitting MS.

MS, balance and dizziness – in a spin?

Barbara

Balance and dizziness are two symptoms that have been part of my MS life since the beginning.

The balance problems started innocuously enough: a slight sensation of walking on large marshmallows and not being able to feel my feet touching the ground. Weird, but not completely worrisome. I could be tired, a bit worn out. Getting older?

5 things I want you to know about MS by Beccy Huxtable

Living with MS is never dull. As well as all the symptoms, which can change on a daily basis, it feels like I constantly have to explain myself. To make life easier, here are five things I would love people to understand about MS:

How going back to study has changed my life

Lorna studying

Last October I started a degree in English Literature and Creative Writing with the Open University. It may sound a bit cheesy, but going back to study has changed my life.

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