Stories for people affected by MS, by people affected by MS.
MS is different for everyone - we hope this blog reflects this.
Today is a good day, the sun is shining and people are smiling. I used to think I was very grateful but my gratitude has reached a new level. I'm now grateful if I don't wee myself coughing.
The havoc that multiple sclerosis causes to the body can be matched (or exceeded) by the frustrations is brings to the mind.
We were an average family: me, my 30 year old wife and two young children. Then my wife was diagnosed with MS.
The reality of the drastic lifestyle choices we needed to make hit me: my wife’s salary was gone, and we needed to move house, as stairs were out of the question. And a million questions flooded my head.
Two magpies stride across the lawn, chests puffed out as they strut. Two for joy.
And this garden has indeed brought me happiness. I forget about myself – MS included - when I garden. Nerve damage? Pah. Never enters my head. Not once. Good, isn’t it? My head – finally - gets some time off from all that worrying.
Misunderstandings are becoming burdensome. I encounter them every day.
Not feeling ‘quite right’ is probably something a lot of us with MS can understand.
A few weeks ago I relapsed. I woke up and I couldn't raise my right arm. Then my right hand went dead. And over the next few days the vision in my right eye clouded over.
A few of us MSers are no strangers to falling and are well acquainted with the ground. One moment you're on your feet, minding your own business, the next you're lying on the floor quickly assessing what injuries you have.
Every so often I’m reminded of how finely calibrated my life with MS is - how carefully I manage it with pacing and how easily it is thrown off balance.
When I treat my pain like it's an enemy I get angry, the pain gets worse. I become rigid, sad and overtaken by pain. I feel lethargic, hopeless and helpless.