Community blog

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Stories for people affected by MS, by people affected by MS.

MS is different for everyone - read real stories and tips from people who know.

Latest entries

Understanding what it means to be an LGBT person with MS

Periklis is a PhD candidate in psychology exploring the experience of LGBT people living with MS. Read on to find out how he’s raising awareness of MS and making a difference for LGBT communities.

Coronation Street’s Johnny: 5 things I’ve learnt about MS

Actor Richard Hawley tells us what he learnt before his Coronation Street character, Johnny Connor, was diagnosed.

"Catheters? Oh alright then"

Mark

How help from the continence clinic finally gave Mark some relief from bladder accidents.

A lovely warm evening in 1995. A team outing, yay! I was living in France, and working for Disneyland Paris, as I had done since its 1992 opening. After a few glasses of champagne, a crowd of us hopped merrily on a bus.

Invisible symptoms: twitches and spasms

Ann

It’s early evening, I’m relaxing watching a bit of TV or reading with my feet up. That’s when it starts: my toe, usually my big toe on my left foot, slowly starts to point towards the ceiling.

It aches, I push my toe back down, this repeats for an hour or so. Sometimes it leads to a massive leg spasm, sometimes the toes just twitches away for ages.

The invisible symptoms of my MS

Jennie

I'm generally a very bubbly person, I have a full time job and I like to socialise. I often hear 'you don’t look tired' or 'but you look so well'.

World Continence Week: getting help for my wee problem

Karine

Bladder problems are common in MS. Karine shares her experience and how she got help.

One of the latest developments in my MS journey is not being able to empty my bladder properly (urine retention). We Brits find it difficult to talk openly about such matters, so I thought I would share my story to help other people feel at ease.

#MyMSStory: My MS-iversary

Last month, it was my anniversary. It’s been 16 years since I was diagnosed with MS. It’s hardly an occasion to celebrate, but at this time of the year, I do find myself reflecting on how things have changed since then.

Hot tips for keeping cool in the heat

Dust off your sandals and crack out the ice lollies – summer has finally arrived in the UK. While the hot weather can brighten up our days, it can also make it harder to manage MS.

So we got our MS community on the case. We asked you how you stay cool during the heat wave. Here’s what you said:

Young carer Thomas looks after his mum

Photo shows young carer Thomas looking to camera at the MS Society Awards 2017

Thomas has been helping his mum since he was six. We recognised his amazing achievements as a young carer at the MS Awards this year.

This is his story.

A visit from the MS Nurse

I realised my mum had MS when I was about nine years old.

“Like Coronation Street’s Johnny, people have put my MS symptoms down to being drunk.”

Bruce

Bruce Barrett was diagnosed with MS aged 31. He hopes the new storyline in Coronation Street, which sees Johnny Connor diagnosed with the condition, will help people understand MS.

When I first saw Johnny stumble and have various difficulties I said to my wife Amy: “he’s got MS”.

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