The MS Register is the world’s first register, for any condition, to combine information from you, about your MS, with clinical and NHS data.
The MS Register is forming an incredibly accurate picture that is already revolutionising our understanding of MS, inviting people to provide information on life with MS in the UK. We are using this vital information to fuel campaigns for fair, relevant policy and improved healthcare.
The Register aims to:
- provide the most relevant information to researchers
- provide an easier way to collect information from people with MS
- build the evidence we need to campaign
- build a clear picture of the true impact MS has on people’s lives
In the long-term, the MS Register could enable the development of new services that better meet the needs of people with MS. Through the Register, people with MS can be partners in their healthcare, providing the evidence we need to drive vital MS research and campaign for more support.
What can you do?
Your contribution to the MS Register is essential - with your help we could transform the development and delivery of research, care and services for people with MS. If you attend a clinic in one of our partner sites listed below, your online data can be combined with clinical data from your clinician and the NHS.
National Hospital For Neurology and Neurosurgery, Queen Square, London
Shrewsbury and Telford NHS Trust
Basildon and Thurrock University Hospital
Southampton General Hospital
Princess Royal Hospital, Brighton
John Radcliffe Hospital, Oxford
Royal London Hospital, London
Salford Royal, Manchester
Poole Hospital NHS Foundation Trust
Royal Free London NHS Foundation Trust
Basingstoke and Hampshire, Basingstoke
Pinderfields Hospital, Wakefield
Royal Devon and Exeter Hospital, Exeter
Luton and Dunstable NHS Trust
Barking and Havering NHS Trust
Northampton General Hospital
Queen’s Medical Centre in Nottingham
Morriston Hospital, Swansea
Royal Victoria and City Hospital Belfast
How to register
Registering is very simple – go to www.ukmsregister.org and enter your email address and a password. Participants must live in the UK and be over 18. When you have logged on, you will find a series of questionnaires about you and your MS waiting to be completed. You will then receive a reminder email when it's time to log on and update your questionnaires.
You can also contact the UK MS Register Team:
01792 606 354