MS Register

The MS Register is the world’s first register, for any condition, to combine information from you, about your MS, with clinical and NHS data.

The MS Register is forming an incredibly accurate picture that is already revolutionising our understanding of MS, inviting people to provide information on life with MS in the UK. We are using this vital information to fuel campaigns for fair, relevant policy and improved healthcare.

The Register aims to:

  • provide the most relevant information to researchers
  • provide an easier way to collect information from people with MS
  • build the evidence we need to campaign
  • build a clear picture of the true impact MS has on people’s lives

In the long-term, the MS Register could enable the development of new services that better meet the needs of people with MS. Through the Register, people with MS can be partners in their healthcare, providing the evidence we need to drive vital MS research and campaign for more support.

What can you do?

Your contribution to the MS Register is essential - with your help we could transform the development and delivery of research, care and services for people with MS. If you attend a clinic in one of our partner sites listed below, your online data can be combined with clinical data from your clinician and the NHS.   

Addensbrooke Hospital, Cambridge
Barking, Havering and Redbridge Hospitals NHS Trust
Basildon and Thurrock University Hospital
Basingstoke and North Hampshire Hospital
Belfast City Hospital
Derriford Hospital, Plymouth
Frimley Park NHS Foundation Trust
Ipswitch Hospital
John Radcliffe Hospital, Oxford
Kingston Hospital
Leeds General Infirmary
Luton and Dunstable Hospital NHS Trust
Maidstone Hospital
Morriston Hospital, Swansea
National Hospital for Neurology and Neurosurgery, London
Norfolk and Norwich University Hospital
Northampton General Hospital
Pinderfields General Hospital, Wakefield
Poole Hospital
Portsmouth Hospitals NHS Trust
Princess Royal Hospital, Brighton/Haywards Heath
Queen’s Medical Centre, Nottingham
Royal Berkshire Hospital, Reading
Royal Cornwall Hospitals NHS Trust
Royal Devon and Exeter Hospital
Royal Free and Chase Farm, London
Royal London Hospital, Whitechapel
Royal Preston Hospital
Royal Victoria Infirmary, Newcastle
Salford Royal NHS Foundation Trust, Manchester
Shrewsbury and Telford NHS Trust, Shrewsbury
Southampton General Hospital
Southend University Hospital NHS Foundation Trust
St George’s Hospital, London
Staffordshire and Stoke on Trent Partnership NHS Trust
Stoke Mandeville Hospital, Aylesbury
Torbay Hospital, Torquay

How to register

Registering is very simple – go to www.ukmsregister.org and enter your email address and a password. Participants must live in the UK and be over 18. When you have logged on, you will find a series of questionnaires about you and your MS waiting to be completed. You will then receive a reminder email when it's time to log on and update your questionnaires. 

You can also contact the UK MS Register Team:

contact@ukmsregister.org

01792 606 354

More information 

The UK MS Register research project

News: MS Register secures funding to continue unique work

News: MS Register data gives insight into employment and depression levels

Read the latest MS research in Research Matters

What's new?