Campaigns blog

Find out how MS campaigners are making a difference across the UK.

Latest entries

MS Enough - Northern Ireland

Jenny Ruddy  

External Relations Officer

The MS Society has conducted a new survey of 1,780 people with MS about their experiences of claiming disability benefits – this includes 83 people from Northern Ireland.

Anastasia relapsed after her assessment

Anastasia receives benefits because of her relapsing remitting MS. It is significantly worse now than when she was first assessed. Her mobility has deteriorated and she cannot walk. She relied on her Motability vehicle to get about.

However after her reassessment, her Personal Independence Payment (PIP) was downgraded and her car was taken away.

John's Motability vehicle is his lifeline

John was diagnosed with primary progressive MS while he was working as an IT analyst. He applied for Disabled Living Allowance (DLA) and was awarded a lifetime award.

Amy didn't look tired

Amy went for assessment for Personal Independence Payment (PIP). She has relapsing remitting MS. Her severe fatigue during relapses affects her ability to do things safely, including potentially dangerous activities, like cooking.

MS Society responds to NICE Quality Standard consultation

You may remember that NICE published a new clinical guideline for MS in October 2014. The guideline makes recommendations for how care should be delivered for people with MS. As the treatment for MS can be variable, NICE also develops quality standards.

What does the Budget mean for people affected by MS?

Since the election in May, Ministers have been peppered with questions regarding the nature, scale and detail of the next wave of austerity.

In today’s emergency budget, Chancellor George Osborne made some key statements about public policy, with implications for several aspects of policy affecting the MS community.

More care cuts predicted by Association of Directors of Adult Social Services

Last week the Association of Directors of Adult Social Services published their annual budget survey which revealed that a further £1.1billion will be taken out of social care budgets in 2015-16.

Overall there has been a total of £4.6bn of spending cuts to the social care budget since 2011. This raises significant concerns about the impact this will have on people with MS and other long term conditions. 

Queen’s Speech 2015: New Parliament raises more questions than answers

Last week saw the State Opening of Parliament and the Queen’s Speech, providing an outline of the immediate agenda for the Government. Alfie, our Public Affairs Officer, talks us through what it means.

The Queen's Speech is essentially the first political event following the election and provides the best indicator so far of what the Government plans to do about issues relevant to people with MS and their families.

General Election 2015: Big battles ahead for MS community

Michelle Mitchell

As the dust settles after one of the most hotly contested elections in recent history, the result was not at all predictable: no coalition in sight and a slender Conservative majority in the Commons.

Local people speak out for MS in Cumbria

Angie Stewart, the Regional External Relations Officer in the North of England reports back from her local MS hustings in Copeland, Cumbria.

As part of the MS: Voice for Change campaign, prospective candidates from the five political parties in the Copeland constituency took to the stage last week at Copeland Bowls and Sports Centre. They joined local MS branch members and interested parties to debate issues that are important to people affected by MS and other Neurological conditions.

What's new?