Campaigns blog

Find out how MS campaigners are making a difference across the UK.

Latest entries

MS Enough - Northern Ireland

Jenny Ruddy  

External Relations Officer

The MS Society has conducted a new survey of 1,780 people with MS about their experiences of claiming disability benefits – this includes 83 people from Northern Ireland.

Anastasia relapsed after her assessment

Anastasia receives benefits because of her relapsing remitting MS. It is significantly worse now than when she was first assessed. Her mobility has deteriorated and she cannot walk. She relied on her Motability vehicle to get about.

However after her reassessment, her Personal Independence Payment (PIP) was downgraded and her car was taken away.

John's Motability vehicle is his lifeline

John was diagnosed with primary progressive MS while he was working as an IT analyst. He applied for Disabled Living Allowance (DLA) and was awarded a lifetime award.

Amy didn't look tired

Amy went for assessment for Personal Independence Payment (PIP). She has relapsing remitting MS. Her severe fatigue during relapses affects her ability to do things safely, including potentially dangerous activities, like cooking.

General Election 2015: Big battles ahead for MS community

Michelle Mitchell

As the dust settles after one of the most hotly contested elections in recent history, the result was not at all predictable: no coalition in sight and a slender Conservative majority in the Commons.

Independent reviews of the WCA and PIP now published

The Government has now published the findings of the 2 independent reviews it set up to look into how the Work Capability Assessment and Personal Independent Payment are working.

Dr Paul Litchfield led the fifth independent review of the WCA, while Paul Grey carried out the first independent review of PIP. 

Care Act: final regulations and guidance published

MS Society flags waving in front of Big BenThe Care Act comes into full force in April 2015 - and the final versions of its regulations and guidance, which help local authorities follow the law, have just been published. 

Making sure the Care Act works for people with MS

Now that the Care Act has been agreed by the Queen (gained Royal Assent), the Government has been drafting new regulations and guidance that outline how local authorities should put the Act into practice. 

In June the Government published this draft for formal consultation.

How do new medicines get approved in England and Wales?

Orange and white capsulesBefore new medicines are made available in England, they undergo an appraisal by the National Institute for Health and Care Excellence (NICE).

We take a look at the appraisal proccess in England, what happens if a medicine is not recommended by NICE and how you can campaign to access treatments.

Local campaigning toolkit: out now!

Do you want to get loud about the issues that matter to you by starting a campaign to improve the lives of people affected by MS in your area?

Then our new local campaigning toolkit is for you! Whether you've got lots of time to spare or a hectic schedule, anyone can campaign to change the lives of people affected by MS. From writing a letter to organising a public meeting, there are plenty of ways to get involved.

What's new?