Cymru Council

Cymraeg | English

The MS Society Cymru Council represents and works on behalf of people living with MS in Wales.

The Council also works alongside the staff team and our local MS Society groups in Wales to stop MS. It is accountable to the Society's UK board of trustees.

Want to know more? Please read the Cymru Council Authority to Act (2014-17).

Meetings

Over the next few years, the Council will meet on the following dates:

2017

2018

Annual Meeting

The Cymru Council Annual Meeting for 2017 will be part of the Living with MS event, which is taking place in North Wales in October. We will provide more details in due course.

Vacancies

The Cymru Council is made up of a maximum of 12 members, serving two three-year terms each. If you would like to represent your community and meet other people who share the same goals as you, then apply to become a member of the Cymru Council.

For more information and an application pack, please contact Matthew Witty on (029) 2167 8921 or by email at matthew.witty@mssociety.org.uk.

Deadline: The deadline for 2017 Cymru Council applications has passed. However, you can register your interest to apply in 2018.

How to apply: Please request an application pack by sending an e-mail to matthew.witty@mssociety.org.uk or calling (029) 2167 8921.

Meet the council members

Huw Roberts - Chair

Huw Roberts - Chair of Cymru Council “I am a minister at Penuel Baptist Chapel, Loughor, following 43 years working in education culminating as head teacher and finally a senior education manager within Neath Port Talbot.

My working life has revolved around the principle of providing the best life opportunities for all, and as a Cymru Council member, it is a privilege to be elected as Chair of MS Cymru by my peers.

It is important that the MS Society's message is effectively communicated to highlight MS within the wider community, both locally and nationally.  In partnership with my wife, who was diagnosed with secondary progressive MS in 1991, we play an active voluntary role in supporting those affected by MS, by raising funds and the profile of the condition

We share our lives and our opportunities with a realistic optimism and are active members of the TwoCann Tuesday Local Group in Swansea.”

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Naomi Manton - Vice Chair

Naomi Manton - Cymru Council member

“I live with the effects of MS and my first port of call after diagnosis was the MS Society. This is the case for many people and I hope that I ‘give back’ to a fantastic organisation that helped me through a traumatic, scary time.

I’m firmly committed to the MS Society. I sit as Vice-chair of Cymru Council, and I'm the Coordinator of our local MS Group, also managing our social media pages. I run a young persons group where we meet, chat, and socialise every month. It is my aim to help, support, and be a ‘listening ear’ to those affected by MS.”

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Helen Cooke

Helen Cooke - Cymru Council member “My membership of the MS Society goes back nearly twenty years, and I am privileged to be a Helpline Volunteer. I have MS and believe the MS Society is there for everyone, whatever the role this condition plays in your life.

I strive to raise awareness of MS at every opportunity, as I find our wide-ranging and unpredictable symptoms remain little understood beyond the MS community. People describe me as 'a thinker' and someone who asks good questions.

As a trained Counsellor, I am open to diverse opinions and the uniqueness of individuals. I have clear views on good volunteering and take pride in representing people affected by MS in Wales through my role on Cymru Council.””

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Ann Jones

Ann Jones - Cymru Council member “I was diagnosed with Secondary Progressive MS in 2001, and as a result have an understanding of MS and the effects of living with the condition. It never fails to amaze me how many people still remain unaware of the problems experienced by those with MS.

I am presently the secretary of the Rhondda Cynon Taff and Merthyr local group of the MS Society. In that role I represent the both the membership and others affected by MS in the community. I produce the group newsletter and through this inform people living with MS of latest research and fundraising events. I also try to raise awareness of MS and the work of the society.

The role of the council is an important one and I hope that my skills and experience help me contribute in even a small way.”

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Huw Jones

Huw Jones - Cymru Council member “I have had MS for over 20 years and have been heavily involved with the Young at Heart MS group in Bridgend for the last six years. The group has taught me the hugely beneficial effect support social events can have, and the importance of engaging fully with younger people, who are the future life blood of the MS Society.

I spent my career in the private sector until 2002, when I started an internet company.  Now with two young teenagers busy studying, and having recently closed my business, I am able to contribute to the Society.

I believe my skills will help the council to achieve its goals and save costs during these challenging times.”

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Rev. Nanette Lewis-Head

Rev. Nanette Lewis-Head - Cymru Council member “As a new volunteer I am on a steep learning curve, but have been for many years involved with friends living with MS. My background has been in a caring profession linked with a keen public awareness of people’s needs.

I also have the determination to seek community support, and to bring attention to minority groups who sometimes feel their needs are not heard.

I am not reticent in speaking on behalf of others, or playing my part in ensuring the best of health services and support for members, whilst building on the excellent foundations already in place.”

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Antony Metcalfe

Antony Metcalfe - Cymru Council member-elect “I have witnessed the impact that MS has had on a very close family member for over 20 years. It has affected their employment, relationships and their own mental wellbeing.

I believe strongly in person-centric services and that we should work with individuals. I believe that we should listen to the views and opinions of all including those living with mental health problems, in poverty or isolation.

With my understanding of the Welsh Government and its devolved powers, I can fight for parity of services across the UK, while ensuring that MS Society in Wales reflects the diversity of this nation.”

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Terry Moseley

Terry Moseley - Cymru Council member

“My wife has secondary progressive MS and was first diagnosed in 1987. I became her full-time carer in 2006 when I took early retirement from my work as a civil servant in the Welsh Government.

I have been a member of the Bridgend and District Group for many years. I have served the group as a committee member, as a secretary and as a Chairman for six years.

This gave me the satisfaction of team working and of providing a service to people with and affected by MS. It has also given me a very good understanding of the effects of MS on individuals and families and of the positive effects of exercise and social interaction.

I am proud to serve the MS community as a member of the Cymru Council and to help local groups, the Cymru Council and MS Cymru work together with one aim – to stop MS.”

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Paul Robinson

Paul Robinson - Cymru Council member"I was diagnosed with MS in my early thirties and my background is in car insurance, and people management.  I believe one of the biggest challenges facing MS Society Cymru is the development of services for younger people living with MS across Wales.

I was instrumental in the setting up of "Twocann Tuesday", a support group for people living with MS in South Wales.

Since my diagnosis I have been a keen fund raiser – running marathons and learning to skydive, and it is a privilege to serve on the MS Society Cymru Council."

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Daniel Rowlands-Barber

Daniel Rowlands-Barber - Cymru Council member

“I was diagnosed with MS in February 2012. Five years later, I am not letting MS get me down. I work full time, have recently gained a promotion, and meet with other people with MS once a month in Flintshire. Our little group has grown from 2 to 7 in just two years!

I work full time and manage my work and health to get the best out of myself.  I am adjusting to life with this condition, and always keep an eye out for others who may be struggling.”

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Barbara Stensland

Barbara Stensland - Cymru Council member “I was diagnosed with MS in 2012, and despite my father having had the condition, I knew very little about the effects of MS.

Since then I have trained as a support volunteer for the MS Society and I am passionate about employment rights for people with MS.  I write a blog, ‘Stumbling in Flats’, which has followers in over 100 countries, and was published as a book in 2015.

As a Council member, I bring my organisational skills and appreciation of the difficulties faced by people living day-to-day with MS. I firmly believe that if we can reach out to those going through the very early stages of the MS diagnostic process, we can improve their lives immeasurably. ”

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Helen Whittaker

Helen Whittaker - Cymru Council member “I was diagnosed with MS in 2001, when my children were aged 7 and 5 - this was just the beginning of another chapter in my life!

I am highly effective, self motivated and skilled at encouraging people with MS and carers to socialise, or signpost them to where they can get the needed assistance.  An active recruiter, I have encouraged many people to join our local group, Wrexham and District.

I am also a successful fundraiser, having arranged for me and a team of 10 people to partake in a Skydive event, boosting income for both research and the local group.”

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It is a privilege to be elected as Chair of MS Cymru by my peers
Huw Roberts, Chair, MS Society Cymru Council
Contact us

mscymru@mssociety.org.uk

MS Society Cymru
Temple Court
Cathedral Road
Cardiff
CF11 9HA

020 8438 0700

Cymru Council - meeting minutes

201728 Jan | 28 Apr (Due August 2017)

201630 Jan | 23 Apr | 06 Aug | 5 Nov

201531 Jan | 30 May | 10 Oct21 Nov

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