The Council is ultimately accountable to our UK Board of Trustees.
Our remaining meeting dates for 2018 are:
- Saturday 11 August (Metropole Hotel, Llandrindod Wells)
- Saturday 20 October (Ramada Plaza, Wrexham)
Next year's dates are:
- Saturday 2 February (Future Inns Hotel, Cardiff Bay)
- Saturday 13 April (Ivy Bush Royal Hotel, Camarthen)
- Saturday 10 August (Metropole Hotel, Llandrindod Wells)
- Saturday 12 October (Ramada Plaza, Wrexham)
Meetings (with the exception of occasional confidential items) are open to MS Society members. If you’d like to attend please contact Matthew Witty.
Meet our Cymru Council members:
Huw Roberts (Chair)
I am a minister at Penuel Baptist Chapel, Loughor, following 43 years working in education culminating as head teacher and finally a senior education manager within Neath Port Talbot.
My working life has revolved around the principle of providing the best life opportunities for all, and as a Cymru Council member, it is a privilege to be elected as Chair of MS Cymru by my peers.
It is important that the MS Society's message is effectively communicated to highlight MS within the wider community, both locally and nationally. In partnership with my wife, who was diagnosed with secondary progressive MS in 1991, we play an active voluntary role in supporting those affected by MS, by raising funds and the profile of the condition.
We share our lives and our opportunities with a realistic optimism and are active members of the TwoCann Tuesday Local Group in Swansea.
Naomi Manton (Vice Chair)
I live with the effects of MS and my first port of call after diagnosis was the MS Society. This is the case for many people and I hope that I ‘give back’ to a fantastic organisation that helped me through a traumatic, scary time.
I’m firmly committed to the MS Society. I sit as Vice-chair of Cymru Council, and I'm the Coordinator of our local MS Group, also managing our social media pages. I run a young persons group where we meet, chat, and socialise every month. It is my aim to help, support, and be a ‘listening ear’ to those affected by MS.
My membership of the MS Society goes back nearly twenty years, and I am privileged to be a Helpline Volunteer. I have MS and believe the MS Society is there for everyone, whatever the role this condition plays in your life.
I strive to raise awareness of MS at every opportunity, as I find our wide-ranging and unpredictable symptoms remain little understood beyond the MS community. People describe me as 'a thinker' and someone who asks good questions.
As a trained counsellor, I am open to diverse opinions and the uniqueness of individuals. I have clear views on good volunteering and take pride in representing people affected by MS in Wales through my role on Cymru Council.
I was diagnosed with MS in 2001, when my children were aged 7 and 5 - this was just the beginning of another chapter in my life!
I am highly effective, self motivated and skilled at encouraging people with MS and carers to socialise, or signpost them to where they can get the needed assistance. An active recruiter, I have encouraged many people to join our local group, Wrexham and District.
I am also a successful fundraiser, having arranged for me and a team of 10 people to partake in a Skydive event, boosting income for both research and the local group.
I was diagnosed with Secondary Progressive MS in 2001, and as a result have an understanding of MS and the effects of living with the condition. It never fails to amaze me how many people still remain unaware of the problems experienced by those with MS.
I am presently the secretary of the Rhondda Cynon Taff and Merthyr local group of the MS Society. In that role I represent the both the membership and others affected by MS in the community.
I produce the group newsletter and through this inform people living with MS of latest research and fundraising events.
I also try to raise awareness of MS and the work of the society. The role of the council is an important one and I hope that my skills and experience help me contribute in even a small way.
Rev. Nanette Lewis-Head
As a new volunteer I am on a steep learning curve, but have been for many years involved with friends living with MS. My background has been in a caring profession linked with a keen public awareness of people’s needs.
I also have the determination to seek community support, and to bring attention to minority groups who sometimes feel their needs are not heard.
I am not reticent in speaking on behalf of others, or playing my part in ensuring the best of health services and support for members, whilst building on the excellent foundations already in place.
I have witnessed the impact that MS has had on a very close family member for over 20 years. It has affected their employment, relationships and their own mental wellbeing.
I believe strongly in person-centric services and that we should work with individuals. I believe that we should listen to the views and opinions of all including those living with mental health problems, in poverty or isolation.
With my understanding of the Welsh Government and its devolved powers, I can fight for parity of services across the UK, while ensuring that MS Society in Wales reflects the diversity of this nation.
My wife has secondary progressive MS and was first diagnosed in 1987. I became her full-time carer in 2006 when I took early retirement from my work as a civil servant in the Welsh Government. I have been a member of the Bridgend and District Group for many years.
I have served the group as a committee member, as a secretary and as a Chairman for six years. This gave me the satisfaction of team working and of providing a service to people with and affected by MS. It has also given me a very good understanding of the effects of MS on individuals and families and of the positive effects of exercise and social interaction.
I am proud to serve the MS community as a member of the Cymru Council and to help local groups, the Cymru Council and MS Cymru work together with one aim – to stop MS.
I was diagnosed with MS in 2012, and despite my father having had the condition, I knew very little about the effects of MS.
Since then I have trained as a support volunteer for the MS Society and I am passionate about employment rights for people with MS. I write a blog, ‘Stumbling in Flats’, which has followers in over 100 countries, and was published as a book in 2015. As a Council member, I bring my organisational skills and appreciation of the difficulties faced by people living day-to-day with MS.
I firmly believe that if we can reach out to those going through the very early stages of the MS diagnostic process, we can improve their lives immeasurably.
Become a National Council member
We are looking for new volunteers to join our national councils. Our volunteers are the backbone of the MS Society and you would be joining a highly committed team of everyday superheroes who are helping our vision become a reality.
Candidates for election to our National Councils will be proposed for election at this year's AGM on 22 September 2018.