Our Cymru Council works on behalf of people living with MS in Cymru/Wales.
Cymraeg | English
The Council is ultimately accountable to our Board of Trustees.
Our meeting dates for 2022 are:
- Saturday 26 February
- Saturday 28 May
- Saturday 13 August
- Saturday 5 November
Meetings (except for occasional confidential items) are open to MS Society members. If you’d like to join a Cymru Council meeting online, please contact us by email at [email protected]
Meet our Cymru Council members
Huw Roberts (Chair)
My wife Eiona was diagnosed with secondary progressive MS around 30 years ago. We’ve been involved with the MS Society and the MS community since then. We’re a team of active fundraisers and volunteers with the MS Society and with our local Wind Street Warriors MS Support Group.
It’s an honour and privilege to be a Council member. It provides an amazing opportunity to be in a team that: informs people of the condition, the diverse affects it has, how they can be supported and listened to, whilst simultaneously supporting all people affected by MS, and the MS Society in its work.
My family has been affected by MS for 10 years. We were faced with a condition we knew little about - it was scary, emotional and we did not know where to turn. We then discovered local MS Society groups, and realised we were not alone.
The MS Society was a huge help then, and continues to be. There is so much to focus on – access to the right treatment, social care, respite and help for carers, employment support, understanding the welfare bill - all are issues my family have faced. I am also an active fundraiser.
I sought out the MS society in 2019 after being diagnosed with relapsing MS. This followed a burning pain in my limbs and optic neurosis – what I now know to be symptoms of MS. The MS society were instrumental in supporting me when newly diagnosed. They provided information on all aspects of MS and wellbeing services, and continue to be a huge help.
I hope my experience of working and volunteering in the third sector helps me to contribute to the MS society. And to join the campaign for everyone’s rights.
I was diagnosed with MS in 1997 and have lived since then with the problem of fatigue. I have developed a range of responses to well- meaning people who say - oh yes, I get tired too.
I use this as an opportunity to inform people about MS and the varied range of symptoms, and the work of the MS Society in helping people with MS and affected by MS.
I am now happily retired and have the time to support and help causes that I feel passionately about. I am very pleased to be a member of the Cymru Council and will contribute in whatever way I can towards the vision of a world free from the effects of MS.
I’m a barrister practising mainly in Family and Criminal Law. I was diagnosed with relapsing MS in March 2019.
I have lots of experience representing the views of others and have experience of being a trustee of large representative charities in Wales. Although I live in Somerset with my family, we are regularly back in Cardiff (when allowed!) and maintain lots of links with organisations and people across Wales.
I am looking forward to working with members to ensure the Council truly represents those living with MS in Wales and advocates for them effectively.
I’ve been married for nearly thirty years and had MS for most of that time. Like many people, I continued working (in IT and Mobile Telecommunications) for more than a decade with steadily worsening symptoms and have been working as a writer since “retiring” - with significant success.
I believe it’s important to recognise the achievements and variety of experiences that members have and for our councils to involve a good cross-section of the MS community. We all have something to learn about living with our own individual MonSter, whatever it might throw at us.
On a more practical note, I have twenty years of experience in working with others to plan, implement and document all sorts of projects, often without detailed instructions and with a limited budget. I live near the Heads of the Valleys with my husband (who plays guitars and mandolin) and three assorted rescue cats.
I have been involved with the Gwynedd a Mon group of the MS Society for almost twenty years since a very good colleague was diagnosed with MS. I saw and felt first-hand the huge impact this had not only on him but on family and friends too.
During my time with the group I have been, at various times, treasurer and co-ordinator as well as being heavily involved with support. I have led the development of the group from meeting just once a month to having activities three or four times a week.
Over the years in addition to my personal experience and contact with those with MS, I have worked closely with MS professionals, social workers, and members of MS Cymru staff enabling me to see and work from many angles.
I had symptoms for many years before being diagnosed with relapsing MS in 2008, and more recently, it has become secondary progressive MS. I became a member of our local group Conwy and North Denbighshire in 2008, but as I was working full time, I could only attend their exercise classes. I also did a talk at a North Wales MS Society conference on “Working with MS”.
When I took early retirement in 2018, I became more involved with the group, and in August 2018, I became the group coordinator. I love my role on the coordinating team and I feel very privileged to now be a member of the Cymru Council too.