The Council is ultimately accountable to our Board of Trustees.
Our meeting dates for 2019 are:
- Saturday 13 April (Ivy Bush Royal Hotel, Camarthen)
- Saturday 10 August (Metropole Hotel, Llandrindod Wells)
- Saturday 12 October (Ramada Plaza, Wrexham)
Meetings (with the exception of occasional confidential items) are open to MS Society members. If you’d like to attend please contact Matthew Witty.
Meet our Cymru Council members:
Huw Roberts (Chair)
I’m a minister at Penuel Baptist Chapel, Loughor, following 43 years working in education. I was a head teacher and then a senior education manager within Neath Port Talbot.
It’s important that the MS Society's message is effectively communicated to highlight MS within the wider community, locally and nationally. In partnership with my wife, who was diagnosed with secondary progressive MS in 1991, we play an active role supporting those affected by MS by raising funds and the profile of the condition.
We’re also members of Diablo’s Dynamos monthly social meeting organised by the Swansea and District Group
Naomi Manton (Vice Chair)
I live with the effects of MS, and my first port of call after diagnosis was the MS Society. This is the case for many people and I hope that I give back to a fantastic organisation that helped me through a traumatic and scary time.
I'm vice-chair of Cymru Council, and I'm the Coordinator of our local group. I also manage our social media pages. I run a young person’s group where we meet and socialise every month. It's my aim to help, support, and be a listening ear to those affected by MS.
I was diagnosed with MS in 2009 after many years of investigation. I found the MS Society a great lifeline so becoming a council member gives me a chance to get more involved.
I've worked in the transport industry as a transport manager from 1979, working in specialist construction and then in international distribution. Afterwards, I retrained in psychological therapies and worked as a mental health professional.
I’m currently a community councillor and want to use my skills to help other people with MS.
I’m 52 and have secondary progressive MS. I was a school caretaker for 30 years, which kept me feeling young. I then volunteered as a trade union steward. In this role I negotiated contracts, pushed/campaigned for change and ran the social club. I’m proud to say that I never lost a case.
I'd like to see the MS Society embrace technology further in the hope to bring people together across Wales. I'm a strong believer in fairness and equality. Everyone should have a voice.
I was a time served mechanic when I was diagnosed in 2003. The news devastated me, but I was helped by the MS Society. I appreciate how valuable the organisation is not only to me and my family but to everyone living with and affected by MS.
Being active in the MS community is very important to me. I'm involved in campaigning and supporting the local groups in West Wales.
Volunteering in the My MS, My Rights, My Choices project is also giving me the opportunity to learn new skills while supporting people living with MS.
My membership of the MS Society goes back nearly twenty years, and I'm privileged to be an MS Helpline Volunteer. I have MS and believe the MS Society is there for everyone, whatever the role this condition plays in your life.
I strive to raise awareness of MS at every opportunity. The wide-ranging and unpredictable symptoms remain little understood beyond the MS community.
As a trained counsellor, I’m used to diverse opinions and unique individuals. I have clear views on good volunteering and take pride in representing people affected by MS in Wales through my role on Cymru Council.
My family has been affected by MS for 10 years. We were faced with a condition we knew little about - it was scary, emotional and we didn't know where to turn. We discovered the local MS Society group, and realised we were not alone.
The MS Society was a huge help and continues to be. There's so much to focus on: access to treatments, social care, respite and help for carers, employment support and welfare. These are issues my family have faced.
I was diagnosed with MS in 2004. The following week I joined a rugby club then spent the next ten years not looking - or feeling - particularly disabled.
Since then I've become progressively more disabled and found myself stunned by how different life is. Seemingly ordinary things like buses, taxis, and toilets can so easily be the things that lead to isolation and depression because of the obstacles they cause.
Thanks to a local group in Cardiff that the MS Society supports, I've found my MS community and through it I've started getting involved.
I was diagnosed with secondary progressive MS in 2001. As a result I have an understanding of the effects of living with MS. It never fails to amaze me how many people still remain unaware of the problems experienced by those with affected by MS.
I'm group administrator of for the Rhondda Cynon Taff group and the Merthyr group. I also try to raise awareness of MS and the work of the MS Society. The role of the Cymru Council is an important one and I hope that my skills and experience help me contribute in even a small way.
Rev. Nanette Lewis-Head
As a new volunteer I'm on a steep learning curve, but have been for many years involved with friends living with MS. My background has been in a caring profession linked with a keen public awareness of people’s needs.
I have the determination to seek community support, and to bring attention to minority groups who sometimes feel their needs are not heard.
I'm not withdrawn when speaking on behalf of others. I play my part in ensuring the best of health services and support for members, whilst building on the excellent foundations already in place.
I've witnessed the impact that MS has had on a very close family member for over 20 years. It's affected their employment, relationships and their own mental wellbeing.
I strongly believe we should work with individuals in a person-centred service approach. I believe that we should listen to the views and opinions of all including those living with mental health problems, in poverty or isolation.
With my understanding of the Welsh Government and its devolved powers, I can fight for parity of services across the UK, while ensuring that MS Society in Wales reflects the diversity of this nation.
My wife was diagnosed with secondary progressive MS in 1987. I became her full-time carer in 2006, when I took early retirement from my work at the Welsh Government. I’ve been a member of the Bridgend and District Group for many years.
I’ve served the group as a committee member, secretary and as a Chairman for six years. This gave me the satisfaction of providing a service to people with and affected by MS.
It's given me a very good understanding of the effects of MS on individuals and families, and of the positive effects of exercise and social interaction.
Become a National Council member
We're looking for new volunteers to join our national councils. Our volunteers are the backbone of everything we do. You'd be joining a highly committed team of everyday superheroes, working to make our vision a reality.