The Council is ultimately accountable to our Board of Trustees.
Our meeting dates for 2019 are:
- Saturday 10 August (Future Inns Hotel, Cardiff Bay)
- Saturday 12 October (Ramada Plaza, Wrexham)
Meetings (with the exception of occasional confidential items) are open to MS Society members.
If you’d like to attend please contact Matthew Witty.
Meet our Cymru Council members
Huw Roberts (Chair)
I am a minister at Penuel Baptist Chapel, Loughor, following 43 years working in education culminating as head teacher and finally a senior education manager within Neath Port Talbot.
It is important that the MS Society's message is effectively communicated to highlight MS within the wider community, both locally and nationally. In partnership with my wife, who was diagnosed with SPMS in 1991, we play an active voluntary role in supporting those affected by MS, by raising funds and the profile of the condition.
We are also members of the monthly Diablo’s Dynamos group meeting in Swansea.
Naomi Manton (Vice Chair)
I live with the effects of MS, and my first port of call after diagnosis was the MS Society. This is the case for many people and I hope that I ‘give back’ to a fantastic organisation that helped me through a traumatic, scary time.
I sit as Vice-chair of Cymru Council, and I'm the Coordinator of our local MS Group, also managing our social media pages. I run a young persons group where we meet, chat, and socialise every month. It is my aim to help, support, and be a ‘listening ear’ to those affected by MS.
I was diagnosed with MS in 2009 after many years of investigation. I found the MS Society a great lifeline and because of this I would like to become more involved by becoming a council member.
I have worked in the transport industry as a Transport Manager from 1979, working in specialist construction and then in international distribution. Afterwards, I retrained in Psychological therapies and worked as a Mental Health professional.
I am currently a Community Councillor, and want to use my skills to help other people with MS, by putting their needs and wishes to the MS Society.
I am 52 and have SPMS. I was a school caretaker for 30 years, which kept me feeling young. I then volunteered to be a trade union steward, and proud to say that I never lost a case.
Other aspects of this role included negotiating contracts, pushing for change within the union, and running the social club. I have also set up Boccia practice in Cardiff.
I would like to see the MS Society embrace technology further in the hope to bring people together across Wales. I am strong believer in fairness and equality. Everyone should have a voice.
I was a time served mechanic when I was diagnosed in 2003. This news devastated me, but I was helped by the MS Society. I appreciate how valuable the organisation is not only to me and my family but to everyone living with and affected by MS.
Being active in the MS community is very important to me. I am involved in campaigning and supporting the MS Society groups in West Wales.
Volunteering in the My MS My Rights My Choices project is also giving me the opportunity to learn new skills while supporting people living with MS.
My family has been affected by MS for 10 years. We were faced with a condition we knew little about - it was scary, emotional and we did not know where to turn. We then discovered local MS Society groups, and realised we were not alone.
The MS Society was a huge help then, and continues to be. There is so much to focus on – access to the right treatment, social care, respite and help for carers, employment support, understanding the welfare bill - all are issues my family have faced. I am also an active fundraiser.
I was diagnosed with MS in 2004, and the following week I joined a rugby club then spent the next ten years not looking - or feeling - particularly disabled.
Since then I've become progressively more disabled and found myself stunned by how different life is, and how seemingly ordinary things like buses, taxis, and toilets can so easily be the things that lead to isolation and depression because of the obstacles they cause.
Thanks to a group in Cardiff that the Society supports, I've found my MS community and through it I've started getting involved.
I was diagnosed with SPMS in 2001, and as a result have an understanding of MS and the effects of living with the condition. It never fails to amaze me how many people still remain unaware of the problems experienced by those with MS.
I am the administration volunteer for the Rhondda Cynon Taff, and Merthyr local groups of the MS Society. I also try to raise awareness of MS and the work of the Society. The role of the Council is an important one; I hope that my skills and experience help me contribute in even a small way.
Rev. Nanette Lewis-Head
As a new volunteer I am on a steep learning curve, but have been for many years involved with friends living with MS. My background has been in a caring profession linked with a keen public awareness of people’s needs.
I also have the determination to seek community support, and to bring attention to minority groups who sometimes feel their needs are not heard.
I am not reticent in speaking on behalf of others, or playing my part in ensuring the best of health services and support for members, whilst building on the excellent foundations already in place.
My wife was diagnosed with SPMS in 1987. I became her full-time carer in 2006, when I took early retirement from the Welsh Government. I have been a member of the Bridgend and District Group for many years and
a committee member, secretary and Chairman. This gave me the satisfaction of team working and of providing support to people with and affected by MS.
It also gave me an understanding of the effects of MS on individuals and families, and of the positive effects of exercise and social interaction. I am proud to serve and support the MS community.
Become a National Council member
We're looking for new volunteers to join our national councils. Our volunteers are the backbone of everything we do. You'd be joining a highly committed team of everyday superheroes, working to make our vision a reality.