Campaigns in Scotland
Making Scotland’s new welfare system make sense
For the first time ever powers over some disability benefits are coming to Scotland. These include Personal Independence Payment (PIP), Disability Living Allowance (DLA) and Carers Allowance. We’ve been asking you what you want to see in the new social security system, and you’ve told us:
- less face to face assessments
- lifetime awards
- easier application forms
- a system which is flexible to the needs of a fluctuating condition such as MS.
The Bill to establish a new Scottish social security system was passed in April 2018. It will be a while before it is fully up and running, but we’re working hard to make sure the voice of the MS community is heard and that the system works for people living with MS. Read about our response to the Government's consultation on the new social security system.
Join our campaigns community for all the latest updates and actions on social security in Scotland.
Access to treatments in Scotland
In Scotland, there are 12 disease modifying therapies (DMTs) available on the NHS for people with relapsing MS. However, our research shows that in Scotland only 57% of people that are eligible to take a DMT are currently taking one.
We've been finding out how people in Scotland with relapsing MS make decisions about whether to take a DMT, and which DMT to take. After consulting with you we’re working on a series of recommendations, which we’ll share soon.
This year, the first treatment for people with early primary progressive MS, ocrelizumab, will be assessed for use on the NHS by the Scottish Medicines Consortium. It will also be assessed for everyone with relapsing MS.We’ll be making a submission to the SMC to support access to this treatment on the NHS, and we need your help. If you think you could benefit from this treatment, email us to tell us why.
How do MS treatments get approved for the NHS in Scotland? Read our blog for an overview.
MS Week in the Scottish Parliament
MS Awareness Week was on 23-29 April, and we got loud for MS research in Scotland. We took our Kiss Goodbye to MS campaign to the Scottish Parliament and asked MSPs to show their support for MS research and the great work of MS researchers across Scotland.
We were delighted to have cross party support for our campaign.