A woman sits at her computer, looking thoughtful.

Help us develop virtual support for friends and family

Do you remember what it felt like when your friend or family member was diagnosed with MS?

 

We’re looking for people to share their experiences with us in a virtual group, as part of our Living Well with MS work. By joining our group you’ll help us develop support for people going through the same experiences as you.

What it will involve

Our group will be made up of friends and family members of people living with MS from across the UK. The group will help us develop new virtual sessions for people with a friend or family member who’s recently been diagnosed with MS (within the last five years).

The sessions will mean we can offer support to more people supporting a loved one with MS. People will be able to connect with others going through the same experience, and support each other.

Wouldn’t it be exciting if you could help us make it happen?

The need for this support

When someone is diagnosed with MS it can be a lot to take it and understand, both for the person with MS and the people around them.

We’ve recently been working with a group of people who’ve been newly diagnosed with MS. Together, we created a virtual session to help connect recently diagnosed people with others at a similar stage of their journey with MS. People also told us that friends and family members could benefit from this kind of virtual support – which is where you come in.

Join us!

Could you share your thoughts, experience and knowledge with us?

By joining our group you’ll take part in five virtual video meetings between February and May. Each meeting will last for one hour. They’ll be hosted on a video conferencing site called Zoom (https://zoom.us/)

Following these meetings, we’ll use what you’ve shared with us to develop our new virtual support offer. You’ll then get the chance to test this out and share your feedback with us. We’ll launch the new sessions in autumn 2019.

What do I need to take part?

  • You’ll need to be the friend or family member of someone who’s been diagnosed with MS.
  • Zoom is really easy to use but you’ll need some basic kit to access it. Ideally, a computer, laptop, tablet or mobile phone with a camera, speakers and a microphone (most tablets and smartphones have these functions). If you don’t have access to this kit, please let us know and we may be able to work around it.
  • A stable internet connection. You can access Zoom on your device through an internet browser like Google Chrome or Internet Explorer. It just takes a simple click to get started!

Sign up

If you’re interested in taking part and helping shape this work please contact Coleen Kelly, Self Management Lead on coleen.kelly@mssociety.org.uk or 0131 335 4050.

Thank you!

Further details about the virtual sessions