Gif: Sophie looking up and smiling thoughtfully

Strength, support and togetherness

I look very normal on the outside but inside I’m going through a bit of a turmoil.

Eight years ago I started having blurry vision, so I had an MRI. MS was sort of brought up then but never diagnosed and two years later my eyes got better.

Then three years ago, when my twin girls were a year old, I started getting a funny sensation in my leg. I was meant to be running at my eldest daughter’s sports day, but I just couldn’t do it.

My GP insisted I saw a neurologist in August, then I had an MRI in September. By October I had my diagnosis of relapsing MS.

I tried to get help

Being newly diagnosed, I didn’t know what help I was eligible for. Through talking to other people I realised I could get benefits, so I applied for Personal Independence Payments (PIP).

I really struggled with the assessment. I had to do various exercises but they didn’t watch me walk, which is what I struggle with the most.

I found out by letter they’d decided I didn’t qualify for PIP. It made me really angry, I didn’t think the assessment represented what I go through day to day.

The decision was overturned in appeal, when I sat in front of three professional ladies, who had no bias. My experience inspired me to speak out. And that’s where the MS Society came into my life.

Speaking up together

Then I joined the MS Society’s campaigns community and helped speak out about PIP for everyone with MS.

I appeared on Victoria Derbyshire to highlight how unfair PIP is for people with fluctuating conditions like MS. And I consulted on Hollyoaks, making sure their character Nancy’s MS was shown realistically.

You can make a difference

Living with MS can leave people feeling lonely and isolated. We're here to connect everyone with the information, care and support they need.

You can help make sure no one has to face MS alone.

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