Making the most of the lockdown
Since the lockdown I made sure my son and I both kept to a routine from the day he was no longer at school. As I’m considered vulnerable I’m also working from home to support the students I work with.
I’ve set up my work alongside my son on our dining table so I can complete my work for the day, as well as support him with his school work. It also makes it easier to prepare lunch and dinner and do other household chores. And I’m still working on specific projects with the MS Society, which is something I really enjoy being involved with.
Staying well physically and mentally
For exercise I go out for walks with my son, who goes on his scooter or bike. This fresh air really helps me. I find it difficult to spend too long in the house because I get head tension and brain fog. Before the lockdown I was on a physio program at the gym, but it was postponed. So I now join in with Cosmic Kids Yoga with my son.
Recently, I’ve been getting MS hug, twinges in my body and odd numbness in areas of my body. But when this happens I just rest my body until it stops.
Most weekday evenings I tend to not do too much once my son goes to sleep. I get cognitive overload, so this gives me time to relax my mind and stops me becoming overwhelmed. To lift my mood I listen to music or watch a lighthearted comedy series or film.
Staying connected with friends and family
I’ve been keeping in touch with close family and friends via messaging, calls or WhatsApp/Zoom chats. This has been a great opportunity to swap ideas about different activities to do during lockdown!
At home with my son we play board games, and I’ve joined in with drawing, colouring, painting and crafts with him. He’s really enjoyed doing this together and it’s been relaxing for me too. I’ve also started growing plants and flowers for the first time, which has been really lovely to do.
Taking things moment by moment
There hasn’t been a moment when I’ve been bored during the lockdown. I understand the importance of staying at home and keeping safe, and I’m making the most of quality time with my son.
I actually feel better emotionally not being in the hustle and bustle of life. I’m able to have a general plan for my working days which helps me manage my fatigue better. In general, taking a moment at a time has been the best approach for me and my son.
We don’t want anyone in our MS community to feel alone during this crisis. And that means we need your support.
We’re rapidly expanding our services and tailoring them so anyone who needs us can get help online or over the phone.
Our MS Helpline has seen a big increase in calls - we want to answer every single one.
Will you help us be there for everyone by making a donation?
Make a donation
Help us be there for everyone with MS
£10could pay for two phone conversations with a trained member of our new Keep In Touch team
£20could pay for our MS Helpline team to answer a call or message from someone who needs our help
£65could pay for someone with MS to have a session with our Benefits Adviser to help them get the support they need
Every penny you give us helps us be there for someone affected by MS.
£10a month could help cover the cost of a MS Helpline call with our specialist MS Nurse
£20a month could help people with MS get vital support from our Benefits Advisor
£30a month for a year could pay for a day on the MS Helpline, helping people in our MS community
Your regular donation means we can be there for everyone with MS. So no one has to face this pandemic alone.