Having people to talk to made all the difference
When I was first diagnosed I felt like I’d lost a lot. Finding people to talk to motivated me and helped me find myself again.
Easier to make excuses than face the truth
I used to be a carer and looked after a woman with MS. I helped her wash, and get clean. But I never thought to investigate what MS was.
Then one day I couldn’t do my buttons, I couldn’t do up zips. I used to drop things without knowing it, as my hand was in the same shape as if I was still holding them.
I made up excuses. Everybody makes excuses. Mine was that people were walking into me and bumping things out of my hand.
But after a series of tests, the doctor said ‘there’s a one in a million chance we’re going to diagnose you with MS’. And in due course, they did.
Practice and positivity
MS meant I couldn’t carry on with work anymore, because I couldn’t move properly.
I used to sit inside thinking “I can’t work, but I can’t do this”. I looked at people walking about outside and thought “I’ve got to get out”.
I went along to my MS Society Local Group to get to know other people with a diagnosis.
Being surrounded by positive people motivated me. Just because you’re disabled doesn't mean you can't still do things.
I found it difficult to write with my right hand because it tremored too much. But then I thought “I was blessed with two hands, try and use your left hand.” So now I use my left hand. It’s not perfect but I’m getting there with practice.
The MS Society got me back on the road
In the early days I didn’t know the MS Society could help with grants and things. They helped me get my car when I was first diagnosed.
And when I need information about my health, or someone else’s, I can always ring them.
Share your connections story
No one should have to face MS alone. Particularly in lockdown. Real stories of life with MS help us all feel more connected. And they help us speak up for everyone with MS. Will you share yours?
Tell us about your MS Connections and raise awareness this World MS Day - share your story using #MSConnections and #WorldMSDay hashtags.
This blog was updated on 28 May 2020
Make a donation
Help us be there for everyone with MS
£10could pay for two phone conversations with a trained member of our new Keep In Touch team
£20could pay for our MS Helpline team to answer a call or message from someone who needs our help
£65could pay for someone with MS to have a session with our Benefits Adviser to help them get the support they need
Every penny you give us helps us be there for someone affected by MS.
£10a month could help cover the cost of a MS Helpline call with our specialist MS Nurse
£20a month could help people with MS get vital support from our Benefits Advisor
£30a month for a year could pay for a day on the MS Helpline, helping people in our MS community
Your regular donation means we can be there for everyone with MS. So no one has to face this pandemic alone.