Bringing together young people with MS during lockdown
When I was diagnosed with MS I felt aloneLike everyone else, I’m keeping in touch with my family and friends via calls, video chats and social media. But what about when it comes to MS? My family and friends are extremely supportive, but I know it’s sometimes hard for them to fully understand.
I can write about it and talk about it, but the reality is, unless you have MS you can’t fully understand what someone is experiencing.
When I was diagnosed, I felt so alone. And this is what led me to start my young persons’ support group 'MS Friends'. And I can't tell you how much it’s helped me (and hopefully others) over the last few challenging weeks.
Online support for young people with MSMS Friends is an online support group for people aged 18-35 living with MS across the UK and Ireland. It's an amazing group of people which started out with 6 girls who individually reached out to me because of my blog.
After getting to know them, I asked these girls if they would like to be part of a group with other young likeminded people. That’s where MS Friends was born, and now there are 88 of us!
At the moment we have a Facebook group page where we post our stories and discussion points. There’s also an optional Whatsapp group chat which is a bit more active. We re-named it ‘Multiple Savages’ because for the most part, we all just gossip, joke around and occasionally talk about MS!
Meeting up during lockdownI usually organise meetups every 2 months but, of course, that’s not possible at the moment. So, instead, I decided to set up weekly zoom meetups. The first and second week I made a quiz for everyone and in the last 2 weeks, we have taken part as a team in Scott Mills pub quiz for the MS Society.
The aim each week has been to beat our score from the previous week. It's been lovely to meet so many of the group via zoom and we are already planning our next meet up (whenever it will be).
Staying connected is so important, especially during a time like this. Hearing how other people are feeling and dealing with their MS during the COVID-19 outbreak can be very helpful and affirming.
This whole situation hasn't been easy but having each other has made it that little bit easier.
Email Amy at email@example.com to become a member of MS Friends.
We don’t want anyone in our MS community to feel alone during this crisis. And that means we need your support.
We’re rapidly expanding our services and tailoring them so anyone who needs us can get help online or over the phone.
Our MS Helpline has seen a big increase in calls - we want to answer every single one.
Will you help us be there for everyone by making a donation?
Make a donation
Help us be there for everyone with MS
£10could pay for two phone conversations with a trained member of our new Keep In Touch team
£20could pay for our MS Helpline team to answer a call or message from someone who needs our help
£65could pay for someone with MS to have a session with our Benefits Adviser to help them get the support they need
Every penny you give us helps us be there for someone affected by MS.
£10a month could help cover the cost of a MS Helpline call with our specialist MS Nurse
£20a month could help people with MS get vital support from our Benefits Advisor
£30a month for a year could pay for a day on the MS Helpline, helping people in our MS community
Your regular donation means we can be there for everyone with MS. So no one has to face this pandemic alone.