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MS Create: designs from MRI scans

25 Aug 2017 | Kirsty Stevens
Designer Kirsty Stevens has made a career out of her creativity – and her business was inspired by her MS. I work full time at my surface pattern design label, Charcot. Using the visible lesion shapes from my own MRI scans, I’ve turned a negative into a positive by using these shapes in designs for things like silk scarves and screen prints. Making MS visible The main drive for me is raising MS awareness. Since being diagnosed, I’ve...

MS Create: playing the piano

25 Aug 2017 | Hannah Smith
Hello there, my name is Hannah and I was diagnosed with relapsing remitting MS in December 2014. Recently I’ve got back into a hobby that I’ve learnt to love again: playing the piano. I’ve always been able to play the piano from an early age. My aunt is a music teacher and she has taught me over the years. However, once I’d moved in with my partner I drifted further and further away from the piano. My partner has always loved...

MS and creativity: finding my motivation

23 Aug 2017 | Rachael McIntyre
I was diagnosed with MS two and a half years ago, aged 26. I struggled to deal with my diagnosis and felt very angry with the world. Recently though I’ve turned a corner and become more accepting of it. I’ve always been creative and love drawing and painting, but I’d stopped taking the time to enjoy doing it. So much had happened and I didn’t feel in the right headspace to sit on my own and draw: I was worried that I’d end up...

MS Create: “I’ve gone from being in a dark place to a world filled with colour”

22 Aug 2017 | Frances Whinder
Lucie Wake tells us how her passion for art helped her bounce back from an MS relapse. When I tell my MS story, I like to focus on the positives. I’ve always been described as a colourful character. Having a creative outlet is important to me. After school, I did an art degree and got a BA in ceramics. Colour was central to my work. I went on to run my own licensing company (Hocus Pocus) which used characters I’d...

“I’m part of a team rather than a one man band”: Alan, our Campaigner of the Year 2017

18 Aug 2017 | George Marshall
Alan Beevers was named Campaigner of the Year 2017 at our MS Awards for his decade of incredible local campaigning. We spoke to him to find out how he’s helping people in Moray, Scotland. Alan was diagnosed with MS in 2003 and quickly became involved with the MS Society: “Not long after being diagnosed, I met the MS community in Moray, and I became hopeful about my future.” Ever since then, he’s dedicated himself to improving services for people with...

Behind the headlines: does being in the army increase your risk of dying from MS?

17 Aug 2017 | David Schley
marching peppers A new study suggests that being in the army may increase your risk of dying from complications to do with MS. Researchers at Southampton Hospital looked at the death records of men in England and Wales. They found deaths from MS were much higher among people whose last recorded job was in the armed forces. What causes MS? Although the study found a clear difference in death rates, it didn’t look at risk factors for developing MS. We know your...

HSCT insights: dealing with isolation

03 Aug 2017 | hmaunder
Man watching TV What’s it like having HSCT? Three people who’ve had the treatment share their experiences. People having HSCT typically spend about a month in isolation following chemotherapy. This is to keep them safe while their immune system rebuilds. In this blog, we look at what helped them cope with being apart from friends and family. Mark had the treatment on the NHS in the UK, while Kate and Darren...

My tips for having an MRI scan

01 Aug 2017 | Nicola Andrews
Nicola I was diagnosed with MS in 2014 and MRI scans have become routine. They helped with my diagnosis, and since then I’ve had two more (two brain and two spinal). Before my first ever MRI scan all I could think about was a dark tunnel and claustrophobia. I had fears of being unable to breathe and move. To say I was worried about it would be an understatement. In all honesty, it wasn’t at all as bad as I...

5 myths about cannabis and MS

26 Jul 2017 | Hannah Paull
There’s mounting evidence to show that cannabis could help pain and muscle spasms for people with MS. But with tonnes of information swirling around the internet, it’s hard to be sure what’s true and what’s not. We dived into the details to bust 5 common myths about cannabis and MS: 1. ‘Cannabis for medicinal use’ means any kind of cannabis This can be...

School’s out: tips for summer fun from an MS mummy

24 Jul 2017 | Joanne Chapman
Joanne Chapman lives with MS – and a toddler. These are her tips for enjoying the summer holidays with your little ones Keep cool I love the sun, but summer can feel like a double-edged sword as heat and humidity bring out my MS. Keeping cool is essential to look after little man. So I avoid being out in the midday sun, find shade, and wear lightweight, breathable layers with a hat. Water cools. Little man'...

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