Blogs

Latest blogs

Andrew's blog - The Inexpert Patient

1. In defence of ignorance ‘I wouldn’t bother with the MS websites if I were you.’  That’s the one piece of advice I can remember my consultant neurologist giving me when I was diagnosed five years ago.  Now, as then, I can see where he was coming from: my diagnosis was marginal, the symptoms mild and the prognosis about as good...

Trevis's blog - speaking of MS

“My name is Trevis Gleason and I live with Multiple Sclerosis.” I’ve started countless speeches with that opening line. From small gatherings of people living with the disease to, in the case of recent events, fundraising luncheons attended by over a thousand. It’s not easy to get up and tell our stories; sometimes it feels a bit vain and self-...

Donna's blog - to wheelchair, or not to wheelchair?

"This month’s MS Matters drops through the door. I start to flick through it, hmm ... the first page is an advert for ‘Powerchairs’. I put it on the recycling pile. I’m Donna, 31, very happily married with 2 boys (aged 10 & 12). I’ve had MS since 2006; it came on with just one massive relapse – no previous...

Making the MS Society accessible and diverse

We’d like your help to make sure we’re reaching out to all groups and communities. You can fill in our short survey to help us. We want to make sure our support and services are accessible to everyone, and make sure that we’re going above and beyond our responsibilities in terms of equality law. Fill in the survey   Thanks for your help! 

Help us stop the clock on MS

The clocks went back at the weekend, marking the end of British summertime. Sonya Benford, the MS Society’s newest and youngest trustee, talks about why she wants to stop the clock on MS. Find out more at www.mssociety.org.uk/hope "Before I was first diagnosed, everyone assumed that because they couldn’t see my problems, I was...

Louise's blog - Gilenya vs Betaferon

I am standing at a crossroads. Looking one way, I see familiarity, safety, what has gone before. If I look the other way, what I see is new and exciting but there is uncertainty and even danger. I have never been the adventurous sort; I like the familiar and comforting, although occasionally I am given to bouts of spontaneity. But when it comes to anything...

Kerry's blog - my little machine

Kerry is 29 years old and was diagnosed in 2005. "I refer to my body as 'My Little Machine'. Think of it this way ... take a car for example. Imagine you treat it badly by putting in the wrong fuel, neglecting to pay attention to the little details (like that faulty indicator switch) and ignoring the silent pleas for attention as you continue to drive it in to...

Climbing Kilimanjaro for David

“Although I know several people who have MS, it was my brother-in-law, David, that inspired me to do something. I first met David in 1995. He had just started to use a wheelchair but he could do all the basics – eat, drink, talk and laugh! Since then I have watched him slowly deteriorate to his present condition, where he is unable to do any of the basics and is confined to...

Michael's blog - life as a husband, father, carer and student!

Michael is 32 and his wife Julie has secondary progressive MS. They have a daughter, Alice Rose, who is 2 years old. Welcome to my first blog. I thought I’d start by sharing some details about myself and what I hope to get out of writing a blog for you. My name is Michael, I’m 32 years old and I have a wonderful wife and daughter.  My wife...

Julie's blog - looking on the bright side

Hello all! My name is Julie, I’m 31 and I have secondary progressive MS. I’ve been in a wheelchair for about a year now. Still haven’t mastered the wheelie yet but there is time. I was diagnosed on 7 June 2006. The symptoms had been going on for a while before then. The doctor said my tingling hands were a sign of stress and so I...

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