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Me and my MS Nurse: Karen and Julie

04 Oct 2017 | Frances Whinder
Karen who lives with MS, at an appointment with her MS nurse, Julie Keeping on top of your MS treatment can be challenging. But for many, an MS nurse makes all the difference. Find out why Karen thinks of Julie, her MS nurse, as a ‘safety net’. I’ve been seeing Julie for several years now – ever since I moved to Leeds. I see her once every six months and we talk about how my...

5 things that help me live well with MS

02 Oct 2017 | hmaunder
Ronnie Hi, my name is Ronnie and I was diagnosed with MS in 2015. This year I signed up for one of the MS Society’s Living Well with MS courses, because I want to know how to best manage my MS, and to get a support network around me. Here’s some things I’ve learnt help me live well with MS. 1. Sharing with others The course was a chance to share experiences with others and know we’re not in...

How we tested 3 venues for accessibility

01 Oct 2017 | hmaunder
Can you have an accessible day out in Edinburgh if you use a wheelchair? Karine and Sarah put access to the test at three different venues. Check out their film, and a text description of the film and audio description of the film Text description of the film Hi I’m Karine and I’m reporting today for the MS Society for Disabled Access Day, and this is my wife.  Hi, I'm Sarah! First stop: lunch Greeted by a cupcake sign saying ‘open’ we head inside Mimi's Bakehouse in Leith. This cafe has a ramp, accessible loos and we can book a table with extra space...

4 things you need to know about ESA reassessments

28 Sep 2017 | Babs Guthrie
Last week the government announced it will no longer reassess some people with severe and progressive conditions for Employment and Support Allowance (ESA). This applies to people who meet new criteria and have no prospect of getting better. We've been calling for an end to these unnecessary reassessments. And we'll continue to work hard to ensure this change meets the needs of people with MS. 1. What...

Top tips for travelling with a wheelchair

27 Sep 2017 | Frances Whinder
I love travelling. Before I was in a wheelchair, I’d visited 70 countries. Now things are more challenging and require more preparation. But I’ve visited nearly 20 countries in my wheelchair. My name is Susie Twydell. I’m 39 and I was diagnosed with MS in 2007. I’ve been a full-time wheelchair user for four years. When I’m planning a trip, I find reviews from other wheelchair users inspiring and helpful. So I set up a...

"My dogs allow me to take things at my own pace."

22 Sep 2017 | Morag
Morag Since her MS diagnosis Morag has found her four-legged friends to be a constant source of support. I’m 67 years old and proud mum, mum-in-law, and granny to three fabulous kids whose lives I’ve been lucky enough to share to the full. I live with my husband Phillip in The Black Isle, just north of Inverness. Every day, I walk a couple of miles with my seven year old Dalmatian, Kruger.  Phillip,...

Skool runnings: MS and being mum to a teenager

12 Sep 2017 | Barbara Stensland
Teenage boy with his head in a book MS hit our little family of two when The Teenager had just started high school. Up until then, I had been an eager, hands-on parent, the type that ‘helps’ their child create a magnificent castle from nothing but empty loo rolls and a glue gun. Or stands at the sidelines for every rugby match, cheering on each side (not quite knowing the rules of rugby). I washed...

MS Active Together: Dom’s story

03 Sep 2017 | Frances Whinder
Personal trainer Dom Thorpe has created a series of workout videos for MS Active Together, our new initiative to encourage people with MS to get active. He tells us how his mum’s MS inspired his career. Ever since I was a child, I’ve been interested in sports and fitness. About 10 years ago, I decided to turn my passion into a career and become a personal trainer. I had the opportunity to learn how to train people with disabilities. The idea...

Did you win our Sunshine Raffle?

01 Sep 2017 | Hannah Paull
We're delighted to announce the lucky winners of our summer Sunshine Raffle! A huge thank you to everyone who entered. Your support makes a real difference - in 2016 alone, you helped us to raise over £477,000 for vital MS research and support for people with MS. Every ticket brings us closer to stopping MS for good. Our lucky Sunshine Raffle winners are: First prize (£4,000) 311003 – Mrs Pallett, Warwickshire Second prize (£1,000...

Why we walked for MS

01 Sep 2017 | Hannah Paull
Emma and her wife Miri are big fans of the MS Walk. Emma tells us what she enjoys most about the event and why she's getting involved again. I was diagnosed with MS five and a half years ago years ago. It was a difficult time for me and a big thing to wrap my head around. My family and I really relied on the MS Society for support. I wanted to give back and meet other people with MS, so I started volunteering six months later. Walking for MS I've taken...

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