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7 ways to be kind to yourself

11 Nov 2017 | Babs Guthrie
Photo shows three knitted donkeys with cut out hearts and a clothes peg It's World Kindness Day today! This has got me and Dizzy thinking about the importance of showing kindness to yourself. This is important for everyone, but particularly when you're living with the difficulties of coping with a chronic illness like multiple sclerosis. Dizzy has taken it upon herself to come up with 7 different ways that we can...

Why we need to keep challenging the government on PIP

09 Nov 2017 | Frances Whinder
MS Society Northern Ireland Council member Simon This week, our Northern Ireland Council member, Simon Matchett, put the spotlight on what needs to change with Personal Independence Payment (PIP).  PIP is a benefit that helps cover the extra costs you can face if you need help doing everyday tasks or find it difficult to get around. It’s replacing Disability Living Allowance (DLA), and is being rolled out across the UK....

Have your say on disability benefit assessments

01 Nov 2017 | Babs Guthrie
Photo shows man in mobility scooter outside Westminster holding a sign that says Make welfare make sense Are disability benefit assessments working? This is your chance to tell MPs what you think. Inquiry into benefits The Work and Pensions Select Committee at Westminster is running an inquiry into Personal Independence Payment (PIP) and Employment and Support Allowance (ESA) assessments. It wants to know if...

What we won in 6 weeks of action

29 Oct 2017 | Babs Guthrie
Moving gif shows press clippings from 6 weeks of action In the last 6 weeks we’ve been speaking up, and decision makers are listening. Too many people affected by MS across the UK are having to fight for the treatments, care, and financial support they need. So in September we launched 6 weeks of action on these key issues to stand up for people living with MS across the UK.  Taking joint action on PIP First...

Things I’ve learned about sex

27 Oct 2017 | ShanaPezaro
Shana WARNING - This blog is explicit. (Mum and Dad - please don't read this!) My ex-husband and I split up 10 months after I was diagnosed with MS. I was 29 years old, a wheelchair user and struggling badly with fatigue. I'd had to sell my business, been signed off work permanently and was learning to self-catheterise. I believed I was unattractive and that no one would ever find me 'sexy'. I was resigned to...

Let’s talk about sex – your questions answered

26 Oct 2017 | Frances Whinder
Love heart sweets When was the last time you thought about sex? And when was the last time you talked about sex? I mean really talked – a proper face-to-face conversation with another adult, not a joke down the pub or a comment on a super sexy TV show. Sex is often on our minds, but not often talked about. And that’s a shame, because talking about sex often leads to better sex. But it can be...

Sex and MS symptoms – your questions answered

26 Oct 2017 | Frances Whinder
A couple holding hands Sex is all around us - in our favourite TV shows (Game of Thrones anyone?), on the billboards we drive past, and in the pop hits that get stuck in our heads. You'd think everyone was having great sex, all the time. But the reality is lots of us have difficulties with sex at one time or another. Sometimes our bodies don't want to play ball, sometimes we don't...

A good time to talk about sex

26 Oct 2017 | Chef Trevis
Trevis and his dog Never an easy topic – MS or not – it’s time to talk about intimacy issues with multiple sclerosis. Why now? For many of us there’s no good time to [external link] speak the unspeakables about MS and sexual difficulties. Talking about the good things Often the conversation about sexual intimacy and chronic illness (or even just plain old aging) deals with what we can’t do (or can no longer do easily). Difficult as it may be, it’s also...

MS doesn’t make you any less sexy

26 Oct 2017 | Devika Jina
“You have MS, and you’re going to have the most amazing sex EVER!” That was the message that flashed on my screen only a few days after I was diagnosed. It was from my best friend, sent after she finished watching a documentary about the love and sex lives of the UK’s disabled population, and it featured a woman with the same illness as me. Happily married, it was obvious how giddy with love she and her husband were. They sat side by side, eyes full of mischief as they told the...

Social care in Parliament

26 Oct 2017 | Frances Whinder
The Houses of Parliament Yesterday in the House of Commons, the Labour Party introduced a debate about funding gaps in social care. Speaking for the Labour Party, Barbara Keeley MP (Shadow Health Minister) said that the current and future challenges for social care in England are not being addressed. She told MPs that 1.2 million people aren’t getting the care they need and that unpaid carers are having to do even more...

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