Emotions

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Emotions

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Naglaa Attia

08 Oct 2011 at 7:10AM

Emotions

This is to share what I have been told by the doctor as well about MS

I have been suffering from it for the past year. on top of what we all know about it Dr explained that my emotional health is part of it.
Apparently I went through an extremely sad period of my life last year,
Where I lost confidence and hope in people. During this time i lost a massive amount of weight and was hardly able to sleep. I was screaming at night and in such a state. AT that stage I suffered from numb hands and toes along with blurred visions but was treating each separately
till I was diagnosed with MS it took a while to get better, however this time of the year reminds me of this sad part of my life and i started to suffer from multiple attacks .
What i was surprised to learn is, YES we need to take care of our emotions cause believe it or not it either help you to progress or it might hinder the progress.

Wishing you all, ALL THE BEST

nickyrose

08 Oct 2011 at 11:13AM

I completely agree with you - a positive mind is so important in dealing with MS. I got diagnosed in April and while I have not had any major, life changing symptoms so far, the actual diagnosis devastates you at the beginning. I have been through my dark days and now I am so determined to get on with life as normal and try not to think about tomorrow too much. After all, I could get knocked over by a bus tomorrow and there is nothing I can do about it.

I am very happy now and enjoying life and just coping with the minor irritations that come with MS but it is not going to stop me enjoying life!!

Keep positive - people have far worse diagnoses to cope with!!!

Nicky xxx

nickyrose

08 Oct 2011 at 11:19AM

Meant to also say, I hope this reply does not down play those for who MS is a major. life changing condition - obviously I am lucky at the moment because I am able to be positive. But I have met people who suffer greatly and are still able to be more positive so it is possible!!

oscar1

08 Oct 2011 at 10:02PM

I do agree that this is not easy on any of our partners especially when the severity changes from day to day (this is my experience anyway) Having a stable and positive atittude has got to be the perfect way to approach this but when your life feels like a sack of !!!! at the moment it aint easy.
My wife is at work and my son is on his computer, and I am in front of mine.
Im not out or going out or thinking of going out, I cant.
I wont have a drink in case I cant get up the stairs( Not through quantity but effect) and I dont want to watch X Factor. (even more depressing)
I probably wont anybody coming to see me as I have become persona non grata (if thats how you spell it) since telling people of my DX.
My musings have all been punctuated with I as I am the only thing I can concenrtrate on at the moment.
Im sorry if this is depressing anybody but thats just the way you get from time to time.
God im a miserable git!!!

Tony no mates

Naglaa Attia

09 Oct 2011 at 3:36PM

I KNOW HOW YOU FEEL!!! and I shift between similar feelings to acceptance.
my Doctor explained that these emotions are data and we need to learn to translate it to what is the impact of it on us.
towards the end of the day we need to chose how to deal with it.
please try to stay positive "easier to say than do" but not impossible. please please take care of your emotion. This will help in taking care of self.

VinceA

18 Nov 2011 at 2:51PM

My MS newly diagnosed is not as bad as a lot of peoples but still life changing even though you sort of know what the professionals are going to say (sometimes I hate being in the medical profession! )

If struggling with explaining the swing in emotions' I was advised to look up the seven steps of grief. Although this is written with bereavement in mind it follows the same course for any life changing experiences..

Wish you all well

Mr Sensible

20 Nov 2011 at 12:57AM

Hi Naglaa, Tony and co,

We need to look after ourselves totally, including emotions you're right. Tony's right too that we should concentrate on the I as much as possible - no shame in that.

And Tony, you've got loads of mates - we're all miserable gits too and with peculiar things going on with our bodies, but you've got loads of us here! All the best, and you've got my respect, being in with your son, taking care and being responsible. Easy to say, but when it's really [filtered word], it's more likely to get better than worse.

Take care all,

Mr S

roseofthenorth

15 Dec 2011 at 9:37PM

Naglaa Attia wrote:

This is to share what I have been told by the doctor as well about MS I have been suffering from it for the past year. on top of what we all know about it Dr explained that my emotional health is part of it. Apparently I went through an extremely sad period of my life last year, Where I lost confidence and hope in people. During this time i lost a massive amount of weight and was hardly able to sleep. I was screaming at night and in such a state. AT that stage I suffered from numb hands and toes along with blurred visions but was treating each separately till I was diagnosed with MS it took a while to get better, however this time of the year reminds me of this sad part of my life and i started to suffer from multiple attacks . What i was surprised to learn is, YES we need to take care of our emotions cause believe it or not it either help you to progress or it might hinder the progress. Wishing you all, ALL THE BEST

Yes, it is truly important to be at tune with our thoughts and our emotions. Kudos to your letting it all out post.

Remember, MS or any kind of disease afflicts you physically, mentally, spiritually, EMOTIONALLY, socially and psychologically.

I hope that all is well with you.

Naglaa Attia

02 Jan 2012 at 8:22PM

Thanks All,
Wishing you all a great new year 2012.
I feel like moaning a bit ;) Last night I couldn't pick myself up from the floor.My arms and feets felt so heavy. Didn't like this much on the first day of the new year;) I am so tired all of the time. Hard to keep all to yourself.
Are you as irritable as I feel right now????

Sylvie

09 Jan 2012 at 2:43PM

Today I am in full agreement with Tony No Mates (quote from October) as I am feeling absolutely rotten.

I am trying to be positive, to keep myself busy etc etc but all I seem to be achieving is a wet tissue from mopping up the tears which have a mind of their own!

Does anyone know of a way to deal with this?

Sylvie

rahmed

24 Jan 2012 at 12:49AM

Hi Sylvia like you said try to stay positive but that,s easier said then done I myself go through like that ontop that your allways tired but hang in there & keep thinking positive &smile all the best tc rubz.

moirawest

13 Feb 2012 at 6:06PM

I have had 11 years to deal with the physical and mental aspects of MS and yes I am much improved. I no longer get angry. I have developed distraction techniques which have helped me emotionally as well as a few mantras.

There is always some poor sod who is worse off.

It will be a better day tomorrow.

Is it in my control? - no, then sod it.

I could not follow my profession so I changed direction and I am pleased that I have been able to produce art which began as therapy and has turned into a passion. We all have to find our own way but letting go is awesome and helps with emotional balance.

Remaining as relaxed as possible and letting go make my life easier and I would encourage everyone to try this. It certainly helps with pain.

Cheers

Moira

Kate Hartley

25 Feb 2012 at 3:54AM

I have a lovely life, no money problems, a partner who is helpful and extremely supportive, I keep myself in good health as much as I can and I am self employed ( it's a good job as I probably wouldn't be able to hold down a job otherwise) you could say my life is perfect......apart from I've been suffering with MS for the past 10yrs, things have been OK and my neurologist and my MS nurse have been helpful but I can't seem to get any answers! Conflicting reports and confusion are my main problems, I have been taking daily injections of Copaxone for 8yrs now and although my treatment has been effective I have had 4 relapses in 2yrs I only really suffer with vertigo but these are symptoms that I can cope with, I can cope with the ugly inter muscular depressions in my skin the thing I am struggling with and can't seem to get answers for is my anger and mood swings, I seem to be like a time bomb, although nothing is really wrong, weight gain is an issue as I can't seem to shift the weight I've gained from my steroids. Basically I'm trying to ask if there is a connection to why I'm so emotional and anxious without cause.... Help!?

Magnum

27 Feb 2012 at 8:20PM

Wow Kate!

You’ve said so much in just a few words there. It is well known that emotional lability is commonly reported by people who have MS, for many it can be a difficult symptom to acknowledge. Personally speaking, I have found that any loud or sudden noises or when there is very frenetic activity happening around me I feel overwhelmed and easily upset by it. That comes from a man who was previously unflappable. Mood swings are also known to be a common symptom in MS, being a bear with a sore head will do no good for you or anyone else around you. Nobody can give you the right answer, they are your emotions so it’s something you will need to deal with in your own way. It’s not my place to give you advice, so please forgive me for suggesting that you could perhaps let go a little and allow things to run on their own, you don’t have to be superwoman and nobody will think any less of you.

All the best.

Bill.

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