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Event Calendar

July

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Beyond Boundaries

From: 4 July 2009
Until: 5 July 2009
Location: Farnborough

 

July

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Beyond Boundaries

From: 4 July 2009
Until: 5 July 2009
Location: Farnborough

 

July

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MS Society Information day

9 July 2009, Homerton University Hospital, Education Centre, Homerton Row, London E9 6SR

 

July

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L'Etape du Tour

20 July 2009, Montelimar to Mont Ventoux

 

September

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AGM 2009

From: 12 September 2009
Until: 13 September 2009
Location: Sofietel London, Heathrow

 

September

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AGM 2009

From: 12 September 2009
Until: 13 September 2009
Location: Sofietel London, Heathrow

 

October

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Primary Progressive Information Day (Hinckley 2009)

3 October 2009, Hinckley Island Barcelo Hotel

 

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MS Society comments on NICE MS drugs appeal decision

29 Jan 2002

The Multiple Sclerosis Society today (Friday,25 January 2002) commented on the rejection of appeals against the National Institute for Clinical Excellence's verdict that the disease-modifying drugs beta interferon and glatiramer acetate should not be prescribed on the NHS.

MS Society acting chief executive, Ken Walker, said, "It is now two and a half tortuous years since the NICE appraisal began. Throughout that time, we have expressed serious concerns about the way in which it has been conducted. In particular, we have repeatedly argued that the measures of cost-effectiveness NICE has used are inappropriate for a fluctuating life-long condition like MS.

"The Department of Health has already announced that people whose neurologists believe could benefit from the drugs will now receive them as part of a long-term national study. The scheme builds on a proposal the Society put to Secretary of State Alan Milburn after it became clear NICE was likely to recommend people should be denied the only drugs which can affect the progress of this devastating disease. We expect details very shortly and are keen to see it begin as soon as possible.

"While that is good news for many people with MS, it sadly comes too late for many others who have become too disabled to qualify for the drugs while the NICE appraisal has dragged on".

"The Society recently voiced its concerns about deficiencies in the NICE process to the Health Select Committee. There is urgent need for change before treatments for other life-long conditions fall foul of NICE's deeply flawed measures of cost-effectiveness".

The MS Society has set up a special information line for enquiries about the Department of Health scheme on 020 8438 0862.

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