Community blog

Stories for people affected by MS, by people affected by MS.

MS is different for everyone - we hope this blog reflects this.

Latest entries

Multiple sclerosis in the media

Trevis speakingWith another neurological condition all over social media, blogger Trevis Gleason takes a look at MS in the media.

MS - a family affair

Barbara and her sonThe summer of 2011; for our little family, this was sure to entail a fraught yet exciting six weeks between the end of primary school and the first day at the local comprehensive.

How to stop having bad days

Ann in a blue button-up t-shirtSometimes I feel like I've nailed it. I have a routine and a good balance of exercise, work and pleasure.

Last night I woke up with awful back pain. It was like toothache but in every vertebrae of my spine. I took painkillers and eventually got to sleep. This morning I was very grumpy.

Finding the funny

Karine and Sarah stand side by side, each holding a black and white catIt is important to laugh as much as possible, even at your own expense.

In many cases, you will only be able to do this after the event but if you think of situations with an edge of humour, it makes everything better!

Working practices: a letter to myself 20 years ago

This is a letter to myself - the advice I wish I’d read 20 years ago, when I first thought about giving up work.

I was 33 back then, and had recently been diagnosed with relapsing remitting MS. I had just had a big flare-up and had taken a week off because I’d developed a limp.

Do you get tired of fatigue?

Caroline smilingDo you have those moments when you’re trying to describe fatigue to someone who then says the killer line, “Oh, I know just how you feel, I get like that after a day looking after the kids.”

And you know that they don’t know just how you feel?

Blogging: an online journal

Trishna wearing a turquoise topBlogging can be cathartic. It’s an online journal.

A chance for me to mull over things with the knowledge that in doing so, I may be striking a chord with someone in that vast expanse that is cyber space.

The strangeness of strangers

Christopher on the tubeRecently the charity Scope has been running a campaign to address the awkwardness that can occur in everyday interactions with disabled people.

This got me thinking about my own interactions with strangers since I started using a wheelchair.

#IchallengeMS by thinking ‘What would Batman do?'

AnnWe all need heroes. Batman was my favourite superhero when I was a child.

I think because I could be my true self in the dark, this was when I could hang out with my mates and not worry about school. Also he has a cool car, a great sidekick and a butler!

Managing bowel problems: your tips

Bowel problems are among the most difficult symptoms of MS to talk about. Not everyone will have them, but many do.

So how do you cope with constipation or incontinence? That’s what we asked on Facebook, and here’s what you told us.

An illustration of a person clutching their abdomen

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