Community blog

Stories for people affected by MS, by people affected by MS.

MS is different for everyone - we hope this blog reflects this.

Latest entries

Some things I haven’t said about my MS

Portrait of AnnThings are looking better this year. I can feel my feet and my toes.

I've been diagnosed for 14 months now and I've realised there are some things about my MS that I haven't told my friends.

Postcards from the edges: Shana's story

‘If you are affected by disability, what do you want to tell the world? Design a Postcard!’ 

I looked at the project brief from ‘Postcards from the edges’ and smiled. I knew exactly what I wanted to say. Five minutes later I had made my postcard and sent it off.

Putting MS in its place

Mary sitting in front of a lakeIt’s taken me years to put MS into a manageable place in my head.

For a long time I was all too aware of things I could no longer do with family and friends, and I became somewhat obsessed with how my body kept reducing what it could do.

Where am I now? Finding the balance

Chris on the London UndergroundI haven't written a blog for some time, and I've decided to ask, and answer, the question 'Where am I now?'.

I have primary progressive MS. This type of MS starts off very mild and progresses in a roughly linear fashion.

Coming to terms with MS

Mike sitting in his gardenLife is not always fair. If things were different, what would you be doing? Really?

It’s easy to blame MS for stealing previously laid plans, but in truth the chances are that life would be very different now, regardless of your surprise with dealing with MS too.

A Yank’s Life With MS: holidays, stress and MS

TrevisOne of my favorite American television characters (a character who happened to live with MS) once said, “Stress is something they invented for flavored coffee advertisements”.

Losing some mega bytes

AnnI’ve put myself on a data diet. My mobile phone bills are too high, I feel addicted to my iPhone, and I’ve been getting wound up by things I read on Facebook or Twitter at night and not sleeping very well.

Seconds out

I caught a cold last week. It’s the nasty bug that’s doing the rounds. I had a headache, a cough and sniffles. Exactly the sort of symptoms you would expect if, most of the time, you are healthy. What I wasn’t expecting was the sharp exacerbation in my MS.

Unexpected consequences of MS

Mary Olley sailingWhile MS brings with it various frankly unwelcome consequences, an unexpected side effect I’ve experienced is of losing my inhibitions. Well ... some of them!

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