Stories for people affected by MS, by people affected by MS.
MS is different for everyone - we hope this blog reflects this.
Things are looking better this year. I can feel my feet and my toes.
I've been diagnosed for 14 months now and I've realised there are some things about my MS that I haven't told my friends.
‘If you are affected by disability, what do you want to tell the world? Design a Postcard!’
I looked at the project brief from ‘Postcards from the edges’ and smiled. I knew exactly what I wanted to say. Five minutes later I had made my postcard and sent it off.
It’s taken me years to put MS into a manageable place in my head.
For a long time I was all too aware of things I could no longer do with family and friends, and I became somewhat obsessed with how my body kept reducing what it could do.
Life is not always fair. If things were different, what would you be doing? Really?
It’s easy to blame MS for stealing previously laid plans, but in truth the chances are that life would be very different now, regardless of your surprise with dealing with MS too.
I’ve put myself on a data diet. My mobile phone bills are too high, I feel addicted to my iPhone, and I’ve been getting wound up by things I read on Facebook or Twitter at night and not sleeping very well.
I caught a cold last week. It’s the nasty bug that’s doing the rounds. I had a headache, a cough and sniffles. Exactly the sort of symptoms you would expect if, most of the time, you are healthy. What I wasn’t expecting was the sharp exacerbation in my MS.
While MS brings with it various frankly unwelcome consequences, an unexpected side effect I’ve experienced is of losing my inhibitions. Well ... some of them!