Stories for people affected by MS, by people affected by MS.
MS is different for everyone - we hope this blog reflects this.
The summer of 2011; for our little family, this was sure to entail a fraught yet exciting six weeks between the end of primary school and the first day at the local comprehensive.
Sometimes I feel like I've nailed it. I have a routine and a good balance of exercise, work and pleasure.
Last night I woke up with awful back pain. It was like toothache but in every vertebrae of my spine. I took painkillers and eventually got to sleep. This morning I was very grumpy.
It is important to laugh as much as possible, even at your own expense.
In many cases, you will only be able to do this after the event but if you think of situations with an edge of humour, it makes everything better!
This is a letter to myself - the advice I wish I’d read 20 years ago, when I first thought about giving up work.
I was 33 back then, and had recently been diagnosed with relapsing remitting MS. I had just had a big flare-up and had taken a week off because I’d developed a limp.
Do you have those moments when you’re trying to describe fatigue to someone who then says the killer line, “Oh, I know just how you feel, I get like that after a day looking after the kids.”
And you know that they don’t know just how you feel?
Blogging can be cathartic. It’s an online journal.
A chance for me to mull over things with the knowledge that in doing so, I may be striking a chord with someone in that vast expanse that is cyber space.
We all need heroes. Batman was my favourite superhero when I was a child.
I think because I could be my true self in the dark, this was when I could hang out with my mates and not worry about school. Also he has a cool car, a great sidekick and a butler!