Stories for people affected by MS, by people affected by MS.
MS is different for everyone - we hope this blog reflects this.
Every so often I’m reminded of how finely calibrated my life with MS is - how carefully I manage it with pacing and how easily it is thrown off balance.
When I treat my pain like it's an enemy I get angry, the pain gets worse. I become rigid, sad and overtaken by pain. I feel lethargic, hopeless and helpless.
"Yes, modern life. So tiring," says the doctor. She sighs. She doesn’t look at me. I wonder if I am wasting her time. Maybe it was a mistake to come here. And I have taken time off work for the purpose too. Perhaps I am indeed just a malingerer. Exactly what the good doctor appears to suspect.
Clinical neuropsychologist Dr Annie Hickox answers your questions about the emotional or psychological effects of MS, from anxiety to sleep problems. The second is about managing stress.
About 10 years ago, when I was 33, I suffered with various MS symptoms. After numerous tests over about 3 years I finally got a definite diagnosis.
After two years of trying I finally got a part-time job.
It’s perfect, two days a week. Better than that, it’s at my local arts venue where I’m used to working as a freelancer and it’s one of my favourite places to relax.
I didn't think I would ever ride a bike again. Me? No way. Not after being diagnosed with MS last summer.
How do I describe the best experience of my life when it’s also taken every single bit of energy out of me?
Depression and emotional symptoms of MS often go undiagnosed.
I think I am depressed – and, I think I know why. For the past couple of months my condition has been deteriorating. This morning I am unable to wash myself or hold the electric toothbrush steady with both hands. My feet, fingers and legs feel like they have been given a numbing injection from the dentist. They ache all the time.
My doctor peered at me over his half-moon glasses. “I am signing you off work”, he said gravely. “You have to sell your business and you have to stop. You know that.”