Community blog

Stories for people affected by MS, by people affected by MS.

MS is different for everyone - we hope this blog reflects this.

Latest entries

Finding the funny

Karine and Sarah stand side by side, each holding a black and white catIt is important to laugh as much as possible, even at your own expense.

In many cases, you will only be able to do this after the event but if you think of situations with an edge of humour, it makes everything better!

Working practices: a letter to myself 20 years ago

This is a letter to myself - the advice I wish I’d read 20 years ago, when I first thought about giving up work.

I was 33 back then, and had recently been diagnosed with relapsing remitting MS. I had just had a big flare-up and had taken a week off because I’d developed a limp.

Do you get tired of fatigue?

Caroline smilingDo you have those moments when you’re trying to describe fatigue to someone who then says the killer line, “Oh, I know just how you feel, I get like that after a day looking after the kids.”

And you know that they don’t know just how you feel?

Blogging: an online journal

Trishna wearing a turquoise topBlogging can be cathartic. It’s an online journal.

A chance for me to mull over things with the knowledge that in doing so, I may be striking a chord with someone in that vast expanse that is cyber space.

The strangeness of strangers

Christopher on the tubeRecently the charity Scope has been running a campaign to address the awkwardness that can occur in everyday interactions with disabled people.

This got me thinking about my own interactions with strangers since I started using a wheelchair.

#IchallengeMS by thinking ‘What would Batman do?'

AnnWe all need heroes. Batman was my favourite superhero when I was a child.

I think because I could be my true self in the dark, this was when I could hang out with my mates and not worry about school. Also he has a cool car, a great sidekick and a butler!

Managing bowel problems: your tips

Bowel problems are among the most difficult symptoms of MS to talk about. Not everyone will have them, but many do.

So how do you cope with constipation or incontinence? That’s what we asked on Facebook, and here’s what you told us.

An illustration of a person clutching their abdomen

Handle with care

Barbara and her sonSomething peculiar happens the day your neurologist hands down your MS diagnosis.

Your family and friends will do one of two things:

Being empowered

Mary standing next to her tandemIs this really me? Did I really just take part in a two-day bike ride? With MS?

From getting me back out into my local countryside with my husband, our tandem has now enabled us to take part in a cycling event in Anglesey.

Singing: the best fun you can have without chocolate?

AnnI read a statistic that 40 per cent of people with MS develop problems with their voice, which shocked and scared me.

I know it's only a statistic, but my voice is my best asset.

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