Stories for people affected by MS, by people affected by MS.
MS is different for everyone - we hope this blog reflects this.
I’ve never really minded being called a dizzy blonde, although I should; labels tend to stick, and reputation is important, working as a freelancer. I have so many other labels that I do enjoy: poet, facilitator, creative writing tutor, artist, funny lady.
As the first anniversary of the London Paralympics approaches, I’ve been thinking about how, if at all, the Games have affected me personally. Looking at my wheelchair, I realise just how they have.
Having primary progressive MS is of course a life-changing experience. But my life with MS is not really that much worse than it was before: it's just very different in many ways. I get around differently, and do different things (or the same things differently).
Being balanced is a challenge I never thought I'd face. Arrogance personified I suppose!
When I was younger, and involved in any sport that didn’t involve sitting over a chess board, balance and coordination were considered an absolute necessity.
Applying for jobs is a great way of facing up to what I can no longer do.
I can't carry plates - especially hot ones - so waitressing is out. I lose feeling and dexterity in my hands if I handle a lot of objects, so washing up and working on the tills is out too.
"The hottest day of the year", "Another scorcher" and "Isn't it beautiful out?" - all statements to be heard echoing around Northern Ireland for the last few weeks.
Well. I'm sorry to be such a spoil sport, but I am about to go all Jack Dee on the next happy camper who says they wish it could be like this all the time.
Like many things that happen in my life, I am blaming my current bad humour on MS. Am I the only person who is beginning to hate the sun?
I’ve had MS since 2004 and have been feeling increasingly frustrated at not being able to get out into the countryside with my husband Pete, as my legs are no longer prepared to carry me any distance.
This week I have encountered insensitivity from an unexpected quarter: the medical profession.
When people ask me how I am it's difficult to answer because MS is complex. I thought a film might help to explain the sometimes hidden symptoms, feelings and effects of MS. So we made one!